Hello from newbie at FrankTalk

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paxnova
Posts: 1
Joined: Sat Feb 25, 2012 8:55 am

Hello from newbie at FrankTalk

Postby paxnova » Sat Feb 25, 2012 9:43 pm

Hi all, Healing well prostate cancer forum led me here. Surgery for prostatectomy in December of 2011. I'm interested in learning treatments for ED and general knowledge. Since surgery I haven't tried much. One or twice. Too painful before. Now pain is subsiding and I know I better try, try again. I'm 57 and lost my wife to breast cancer three years ago. I've met a wonderful lady since then and ironically I proposed to her two weeks before a biopsy told me about my cancer. She is very understanding of it all and wants me to explore all options. Thanks in advance for both accepting me to the forum and for advice to come.

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LGX_Man
Posts: 237
Joined: Sat Jan 22, 2011 12:30 pm
Location: San Francsico, CA
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Re: Hello from newbie at FrankTalk

Postby LGX_Man » Sat Feb 25, 2012 9:57 pm

Welcome to FrankTalk Paxnova. You've come to the right place. There are quite a few cancer survivors here. Make sure to join us in the chatroom and meet a few of the members. I myself had an implant in Dec. 2010. 14 months out now and living happily ever after with my new implant.

Hope to see you online soon.

Keith
62. Retired. AMS 700 LGX implanted Nov. 18, 2013. Ask me any questions about being implanted or life afterwards.

regain-is-the-aim
Posts: 260
Joined: Sat Apr 03, 2010 11:09 am
Location: Indianapolis

Re: Hello from newbie at FrankTalk

Postby regain-is-the-aim » Sat Feb 25, 2012 10:40 pm

Pax:

Welcome. I'm also PCa with robotic surgery. As Keith said this is a good place and there is a lot of experience here. As you seem to be feeling well and I assume the sex drive has returned; it is time to begin a penile rehab program. Getting some blood flowing back into your shaft is a good thing and protects your flexibility and length. As the urge is there take advantage of it even though you may not get hard- the act and use is a good reminder to the boys down there that it is time to begin a process to return to action. A climax works wonders for you both between the legs and between the ears. Many of us find the post-surgery climax is even strong than before surgery and can last longer. Mine does and they are amazing. But, please remember- the return to hard takes time.

Under the Pump Treatment section is a device called the "Prelude" it is a soft vac and while not good for sex it does begin the process. It is easy and fun to use and is not expensive. I used one in the beginning of my rehab and highly recommend it. If you get one they come in 2 sizes depending on your girth not length. The company is easy to work with and very understanding of our journey.

If you doc has not discussed a penile rehab plan with you please consider bring the subject up at your next appointment. There is a new rehab protocol recently released by the Baylor Medical Center. It is very inclusive and comprehensive. If you and your doc are not aware of it I would be happy to email you a copy for your work. Oh, I not a doc or medical- just another guy on the same journey. I have learned a lot here- this place is a good place!!

Again welcome and as Keith suggests, join the chat room as you can. There are a wonderful supportive, encouraging and funny (bawdy at times) group of men in this clan. Enjoy.


Regards,

Dick
"Regain-is-the-Aim"
Dick
PCa-surgery 10/06

isnip2000
Posts: 13
Joined: Sat Jan 07, 2012 11:36 pm
Location: San Angelo, Texas
Contact:

Re: Hello from newbie at FrankTalk

Postby isnip2000 » Sat Feb 25, 2012 11:31 pm

Hi Pax-
i had PC surgery 2 yr ago (Feb 17, 2010). As Dick said i urge you to start a penile rehab program. They all vary. My Doctor started me on Cialis 20 mg every 0ther day to help increase the blood supply. He gave me an erecaid with the instructions to use it twice daily for 15 to 20 min each session. I did not realize the importance of the pump until i read an article talking about nocturnal erections that keep the penis from atrophy.

I am not a doctor either but I strongly suggest you get a good vacuum device and use it regularly. Talk to your doctor and ask him about penile rehab theraphy.

you will find this site very helpful and most any of the guys will be glad for you to contact us with a private message to help you with any problems you have. In the chat room feel free to ask any personal questions you have. You will get straight answers.
God bles you during this journey,
Darrell
74 years old-married to high school sweetheart for 56 years- 4 children-4 grand children-2 great-grands-
Prostate CA Feb 2010- so far still 0 psa-

Cajun Jeff
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Joined: Sat Aug 01, 2009 11:44 pm
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Re: Hello from newbie at FrankTalk

Postby Cajun Jeff » Sun Feb 26, 2012 12:15 am

Pax: I may well have been one of the guys on healing well that advised that you check out this site. Lots of info. Join us in the chat room. There are lots of threads about the different options to get Jr up for the dance. :lol:

Cajun Jeff
68 years old, Married 48 years. Prostate Cancer surgery 11 years ago. Tried Pills, VED, moved to injections (EdEx) for past 6 years. Implanted with AMS 700 LGX by Dr Hellstrom in New Orleans at Tulane Medical. 1/13/20

bob1138
Posts: 449
Joined: Wed Sep 28, 2011 6:41 pm

Re: Hello from newbie at FrankTalk

Postby bob1138 » Sun Feb 26, 2012 1:18 am

Welcome to Frank Talk Pax.
I am also a Prostate Cancer Survivor --- Open Radical Prostatectomy in February 2004 (today is my eight year anniversary).
There is a wealth of information in this Group about all the treatment options available for your ED and many men who are willing to share their experiences with you. Do not hesitate to ask questions. You are among friends here.
Like Keith, I was implanted with an IPP (Inflatable Penile Prosthesis) in December 2007 after not responding satisfactorily to the "standard" ED Treatments (Pills, VED, MUSE, Injections).
4+ years later, my wife and I are still enjoying my implant.
Also, many men in the FT Group have had success with the other modalities. I urge you to read their posts and talk with them in the Chat Room or via PM.
Best of luck,

Bob
----------------------------------------------------------------------------------------------------------------------------------------------
Age: 73; Developed ED Post Prostatectomy in February 2004; Pre-op PSA 2.2 with positive DRE; Gleason 3+3= 6;
Post-op PSA undetectable as of 12/13/2011; Implanted December 13, 2007 (Coloplast Titan); Completely corrected my ED.


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