FrankTalk.org

Hello everyone. I am in Texas, but don't hold that against me. I am curious about this new problem I have and I am considering a short trial of IPP.
I have enjoyed your posts so much so I registered and I would like to join in your discussions. I am a physician and a surgeon and I lost my mojo with
prostate cancer surgery. I would really like to meet someone who would talk to me in person about this but I am so happy to have found a group of
men like this to open this matter up to....so hello!.

Hello cockringok,

I don't know about the rest of the guys but I for one am humbled that we have caught your attention these matters. We sure do represent a very broad spectrum of human talents, interests and concern. I have found my fellow members to be honest, direct and sometimes courageous without being crude.

Let's make sure we are all talking from the same page first. Does IPP mean "Inflatable Penile Prosthesis"? If not, then what does it mean to you? The fact that you say a "short trial" leads me to believe I am in error.

P.S. If you know other professionals, please broadcast our existance as we wish to grow.

Jim

Hello Cockringok, Welcome to FT. You will find this is a great group of guys that are willing help. I am a PCa guy as well but at this point the injections are working fine. Im sure you will get a responce from a TX cowboy that has gone Bionic.

Join us in the chat room from time to time.

Cajun Jeff

Cockringok
South Texas native here and bionic. Prostate ca in 2000 had rp and psa less than .o2. Had ipp in 2008 and me and my Mrs. could not be happier with my appliance. Would be happy to talk to you. Texas Johnny

Hello. Thanks for responding. My job has kept me off the board for awhile, but that is common in my profession. I am so appreciative of your willingness to talk to a stranger. 3mtrship, I do mean IPP and of course I know it will be permanent. It just seems like right now I am being tossed around quite abit with this health issue so I sometimes use humor to offset the gloom. Until I had the prostate cancer I never really had any issues, but now I am getting to launch into the strange new world of penile implant surgery. Sorry if I threw you a curve, but thanks again for writing.

Corvetteman3, I haven't tried the injections yet, kind of unsure. I am two years out from surgery and any spontaneous tumescence is very rare. My urologist recommended going directly to the implant due to the satisfaction level of those who have gone before...

Johnny, looking forward to talking with you. I am not in South Texas but I love to travel. I see you went a long time before going to IPP. Any comment on that?

Thanks fellas, I am feeling kind of emotional all the sudden.

Cockringok
you asked why did I wait so long after my rp in 2000 to have ipp in 2008. Well I guess I will get right to it. Blue Cross BS did wonderful on the ca and surgery no problem but the sorry bastards insert an exclusion clause on erectile dysfunction. They cover zero. I fought them for 6 years and all I got was they kept raising my premium until I was paying $1200 a month for a 80/20. I did injections until I was on Medicare. I mow have AARP for supp policy. I wouldnt have BCBS for supp if they gave it to me for nothing. My BCBS was through Texas Cattle Feeders and they take the small groups and gouge the shit out of them to make up on the large groups. I dont know how these folks sleep at night.
Now that I got that over with lets move on to your ipp. I have a AMS700 that works perfect and I could not be happier with it.
Go to UsToo web and look up Alamo Chapter my phone # 24/7 is there and give me a call if you so desire.
Texas Johnny

Cockringok,

While I'm a big believer in following the advice of a medical professional that I trust, I would also want to ask your urologist why he recommends not trying the less invasive therapies (pills, pumps, shots) and moving right to the implant. Granted, none of them may be effective, but it seems to me that less invasive is always better than more invasive and worthy of consideration. And if any medical professional is offended by a "why" question, then that person should be replaced. Just my thoughts.

In my case, after finding that the pills didn't work for me, I've been a satisfied pricksticker for almost 18 months. As long as the shots work, I'll postpone any thoughts of an implant. Besides, I'm kind of waiting for the technology to develop so that the implant will respond to voice commands. Just think about it! The possibilities are endless.

Greg
Baton Rouge

Cockringok,
I also would preach the benefits of Trimix injections ( my pick over the pills that ceased to be a reliable solution).

Trimix is also a very inexpensive treatment for me. $75 from a compounding pharmacy for 2.5 ml.
I have worked my dose down to only 3 units.
Limitations are few: Do not inject more than 3 times a week. Alternate injection site from right side to left side.

I never challenged anyone, but i would bet i could beat the speed from limp to sex-ready boner to any treatment (other than an IPP i guess).

Pills had become 'hit or miss' for me... and the misses became a frustration.

I have had only 2 misses since my initial injection 15 months ago... and those were very early in my 'learning time'.

Whatever your choice of solution, I wish you the very best ...

Bill

Cockringok,

I want to add my musings. You are at around 2 years post surgery. Have you been doing any penal health and rehab work? Have you been doing Kegels? If so, might I ask where are you at on those issues? Have you found any sexual satisfaction in the past 2 years?

Your comment about finding yourself very emotional on these issues is understandable. When everything is working normal we just don't think about these things. We think about sex in any flavor that suits our taste. We are selfish that way and until our penis’ won't act "Normal" we don't even care about the other issues your surgery brought up.

It is my opinion that the sexual side issues you are now confronting are an area where much professional work remains to be done. This site exists and feeds a need for more information on this very subject. I mean let's be realistic here. You found enough of interest here to speak up frankly and yet you of all people probably have at least decent access to others in this business. Yet, you see it is NOT any easier for you to access the information you need to restore some semblance of sexual health then it is for us.

I think post surgical sexual health assessment and treatment should be a component of the education of all Urologists. Further, the subject should be added to the curriculum of any “license renewal training” for those Dr’s that are already out and working in the field but are updating their education.

Feedback is always welcome,

Jim

Jim
When I had my rp in 2000 and was feeling better 6 or 8 weeks later and felt like getting back in the game I spoke to my urologist about it, the answer was take your time, give your body a chance,dont rush, youve got time. I am so glad penile rehab finally came into mix after radical pros. What a bunch of Bullshit WAIT IT WILL COME BACK. I waited and guess what? It did not come back. After I had my surgery and old guy in the support group told me to get a pump and pump up every day after your surgery. Guess what I did? I asked my surgeon what he thought about that idea and his answer was" Wait it will come back". If I had pumped up I think I would not have had all the grief with ED that I went through. I did not have ED before my RP (age57). I am a firm believer now, keep the blood flowing, use it or loose it.
Texas Johnny