FrankTalk.org

by prematuredysfunction » Mon Mar 19, 2012 7:48 pm

I am 32 and have been reeling for the past few months from the realization that I caused nerve damage and gave myself ED four years ago using a traction device. I've been so focused on my career for too long and putting myself in a position to live an uncomplicated and loving life and now that I'm ready to find someone and ultimately build a life together... man I feel completely defeated.

How do you go about telling someone in her mid to late 20s or early 30s that you were born with a perfectly functioning penis and then messed it up before you even turned 30 b/c of your perfectionist and hard-on-yourself tendencies?

I know there are worse things in the world than having oral medication-controlled ED (at least for the time being, who knows how my penis will decline as I age), but one can only live their life through their own eyes.

Would appreciate any words of wisdom from those who have been there at my age or any other.

Kevin.

Kevin,
I'm also 32 and have been dealing with ED issues my while life. I have tried all of the oral meds with no success, and about a yr ago I started using edex, and eventually switched to Trimix due to the pain. Everyone here at FT does a really great job at explain ing things. Such a good resource to have, because there is always somebody to talk to about a wide range of issues. Good luck.

Dave

It sounds like the Oral pills are doing the job for now. The best advice I can give you is to take action as soon as the pills stop performing for you. I am a 23 year old college student and am now faced with a single lifestyle with an implant. Being sneaky with ED is a skill that can be built with experience. Until you really get to know a girl in their 20's & 30's, is there any reason to tell her? I have gone through sexual encounters (even taking a shower!) with a girl and she did not know I had an Implant. Afterwards I decided to ask "did you even realize what I had down there?" She was clueless to it.

Also what ever the timeline/reason of your ED should not be something that is weighing you down, especially when it comes to a female. Work with what ya got my man. Your situation will make you a better man in all other categories, and ED cures will complete the package (pun intended).

-Colin

Hello premature

I injured my penis about a month ago in an attempt to jelq. I only did it once. I can get a some response with PDE5 inhibitors but it builds up from the base so I suspect I damaged the cavernosal nerve, preventing the signal from reaching the distal 2/3 of my penis.
How do you conclude that you have nerve damage? Is it self-diagnosed? I'm doing an EMG today which allegedly can test for smooth muscle reaction to the cavernosal signal, although I'm not sure things are as clear-cut as the urologists tell me. You wrote in your other post that there's nothing you can do about nerve damage after the first year. Do you have any information as to what can be done during the first year? Nerve growth factors or the likes?
Is your flaccid penis more compact than before? And have you noticed a loss of erect size sice the injury?

Hey. I received a doppler which showed adequate arterial and venous flow. The mechanism of injury (prolonged stretch) is consistent with nerve damage and so are my symptoms. I actually started having some bowel problems at the same time, and the nerves that serve your distal bowel arise at the same location on the spinal cord as do the cavernous nerves. I haven't noticed a change in flaccid or erect penis but who knows, there may have been one.

I would get a doppler from someone familiar with those studies as a first step if I were you. Your mechanism of injury sounds more suspicious for venous injury than nerve injury. It's hard to imagine serious nerve damage resulting from a single maneuver of the hand. I'm not aware of EMG being diagnostic for neurogenic impotence. From what I've read, diagnosing neurogenic impotence is far from clear cut. I would see an ED specialist urologist if I were you. They are mostly in the major US cities.

Most nerve injury will recover within a few months to a couple of years, depending on the severity of injury. The best time to augment your body's natural healing is immediately after injury, which is the period you are in. There are many things on the 10-20 year horizon such as nerve growth factors and gene therapy but those are not available now (experimental rat studies only so far). One treatment that has been shown to help nerve damage is stem cell injections, you can get those at places in the US and also in China for about 10K. Stem cells are all experimental, though, and come with zero guarantees.

I would make sure it's nerves first though. I would have trouble trusting your urologist if he is proposing an EMG before an ultrasound.

My underlying problem seems to be neurogenic as diagnosed by CC-EMG. Here is a description of its use:

http://www.europeanurology.com/article/S0302-2838(03)00011-3/pdf/The+Value+of+Corpus+Cavernosum+Electromyography+in+Erectile+Dysfunction%3A+Current+Status+and+Future+Prospect

Although it is not widely used it is apparently the only way of diagnosing ED from nerve damage. I would be interested to hear your results if you were to do the same test. I had amplitude slightly on the low side and the signal was not syncronised, similar to post-prostatectomy.

Do you mind if I ask who and where did you find to do EMG for you? You can PM me if you don't want to publicly reveal your urologist.

I think there are very few people doing this nationwide. I would be willing to give it a shot and see what my results are, but I'm pretty sure most ED specialists would view it still as an unproven modality.

.