FrankTalk.org

Hello everyone.

This is my first post, my introduction (eh), and a request for help in identifying the source of my ED. I'm 31 and impotent since adolescence hormone kicks ended (age 24)
After 4 years of visiting 7 sexual health experts, doing the whole set of standard tests- cavernosography, cavernosometry, color duplex doppler ultrasound, evoked potentials , mri's , - the current diagnostic is absolutely contradictory: i've been diagnosed with neurological, venous leak, psychogenic, pure psychogenic, depending on which specialist you ask

Then it occurred to me: I did all sorts of tests to try to find the cause, but here's what I didn't do : ask around "how does it feel when it's cause A as opposed to when it's cause B".

As I can imagine many of you went through much of the same experience as me, I would like to ask you , particularly the ones with well identified problems what the symptoms and responses are exactly, to see which are more similar to what I feel.

- I have responded to doppler ultrasound (after 20 ug of prostaglandin) with >35 cm/s PSV so arteriogenic is excluded. Bloodwork is shows hormones are fine. Those are excluded thus.

- A venous leak was suspected when i didn't respond to 2 rigiscan tests (20 ug prostaglandin injected). A major leak has been excluded from having responded with 2 hour-long erections to other two tests where prostaglandin was injected (these were when I did a color doppler ultrasound and a cavernosometry).
So, it's definetly not a strong venous leak but maybe a small one.

- Neurogenic - no trauma and no other lesions. Doctors tell me "it's impossible that you have neurological lesions that affect solely the erection nerves and have no complaints whatsoever of other symptoms.". They also tell me that neuropatic patients respond extremely well to even 5 ug of prostaglandin. So ironically my failures with injections would exclude neuropaty.

- Psychogenic ... possibly. I feel pretty well and happy now, but it's true that i've been anxious and depressed in the past (due to work stuff, not sex stuff). Why would a past psychological problem affect masturbation while sitting or standing but not while lying down, that, I don't know.

So I thought of asking: for those of you with neurogenic causes: how does it feel ? Is it somehow position-dependent ? Do you get it up a bit but lose it ?

And for those with venous leak: is it that you get hard easily but lose it quickly ? What would I feel like if it wrtr a venous leak?

Could it be something related with my prostate and I wouldn't have any other symptoms?

Could it be from cycling? How does pudendal nerve entrapment feel like?

Finally, it sounds incredible that I can't masturbate because of psychogenic ED. Also no morning erections since I was 25! (I'm 31 now and otherwise in excelent shape).

If you could help me out a bit, I'd appreciate it. As of right now, some docs says that I just need to relax and maybe get some sex therapy and others say "you're nerve dead, get a protesis ...".

So right, ED, since age 24, now I'm 31. I'm on Yohimbine 20 mg daily + 10 mg cialis + l-argine-based-stuff (5 g arginine) before going to bed. Works about 50% of the times

Hi so with your supplements your getting half way, I have some posts on site that may help you get the rest of the way. but first.
Have your had your T's checked out to see just what your level is, that would be a good start.
Getting your hormones checked out as well will also help, progesterone is the key one
Have a read of these for help.
DRUG VERSUS HERBS, HERBS MY CHOICE
NOHARDS HERB LIST WITH LINKS
HOHARDS HERBS FOR ED, PART TWO
Jus google each one it gets you there quicker.
For good erections you need good blood, so that's a good place to start.
See how you get on.

Good Luck

NOWHARD

Something you might want to consider is being tested for Lyme disease. I have a mid level anosmia (inability to smell) which I have for a while linked to either migraine or a variant of Kallmann's syndrome. But I was on a forum last night for low libido and a fellow on there had tried everything that he could to make things work and just had no success so the docs wrote him off. He wasn't happy with that diagnosis and found a doc that could really test for Lyme...come to find out he was positive (even though several tests by other docs had indicated he wasn't). So he's on treatment to rid himself of lyme. The lyme was causing his testosterone level to bottom out but it also causes a massive adrenal fatigue so nothing else works either.

I myself am going to go down that route to and see if I have a lurking Lyme infection - things went bad for me in my mid to late teens. We lived in the country and I was always out and about (sometimes without clothing...fun times) on the farm and I have often wondered if that's not when it all went bad.

We'll see if I can find someone literate in diagnosing and treating lyme.

There is no sense looking for lyme disease which is extremely rare. You should get the hormone panel to check that they are in normal values. If your T is good, you would eliminate as probable causes much more entities than Lyme (including it).

As you say, hyposmia or Anosmia are symptoms related to Kallman´s syndrome, a genetic disorder, but only if you had it all your life, you are born with it you do not adquire it. Kallman is a cause of Hypogonadotrophic Hypogonadism so is a must to check the hormones levels in this case.

for what you say, i think it could be hipogonadism.
do an análisis of your total testosterone / free testosterone / estradiol / prolactin / levels.