Hello everyone,
I've been suffering for four years now with erectile dysfunction due to Hard Flaccid Syndrome, all the hallmark symptoms, which, until recently, I believed was an anomalous occurrence exclusive to myself. It came on during a period of intense, protracted stress due to "idiopathic" symptoms, later identified with a hard-to-diagnose bacterial infection that had become systemic. Infection is now cleared up, but nothing seems to work to relieve the condition (pulsed radial waves; stretches to loosen pelvic floor; nitric oxide boosters; even TRT). I turn forty this month, and so I'm now giving serious consideration to an implant, even though I know many in the HF community are opposed to such an intervention. I just don't know what to do at this point; after four years my symptoms are worse, not better.
Any suggestions anyone could give me to help with this condition would be greatly appreciated. I would especially appreciate it if someone could direct me to anyone who currently has an implant who also had hard flaccid.
Thanks.
P.S. Testosterone replacement, which I tried out of desperation, only exacerbates the symptoms of hard flaccid (creates even greater tightness at base, tighter erections). At least it did for me; I would personally advise against if anyone is considering.
Implant for Hard Flaccid
Implant for Hard Flaccid
40. Implanted July 5, 2024, by Dr. Andrew Kramer, Urology Associates of Cape Cod. AMS LGX, 21cm cylinders + 2cm RTEs. Idiopathic erectile dysfunction following bacterial infection. Tried pulse waves, Cialis, even spinal injections. Nada.
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- Posts: 176
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Re: Implant for Hard Flaccid
Out of interest what are these stories about implants and hf and why are people opposed to them?
Have cpps and occasionally the odd hf symptom... But haven't read these stories.
Thanks.
Have cpps and occasionally the odd hf symptom... But haven't read these stories.
Thanks.
38 m UK
Psychogenic ED since forever fewer problems being fully erect alone.
2 kids, 3rd on the way. Long term partner.
Chronic pelvic pain pudendal neuralgia and muscle tightness in late 2023 onwards making ED worse.
Cialis 5 mg daily and 15 mg as prn
Psychogenic ED since forever fewer problems being fully erect alone.
2 kids, 3rd on the way. Long term partner.
Chronic pelvic pain pudendal neuralgia and muscle tightness in late 2023 onwards making ED worse.
Cialis 5 mg daily and 15 mg as prn
Re: Implant for Hard Flaccid
Never_Enough wrote:Out of interest what are these stories about implants and hf and why are people opposed to them?
Have cpps and occasionally the odd hf symptom... But haven't read these stories.
Thanks.
Hi Never_Enough:
Opposition seems to stem from the contractile nature of hard flaccid, contraction possibly acting as an obstacle to surgical stretching-for-length, hence appropriate sizing.
However, this is speculated to be incorrect on two accounts: 1) that the neuromuscular/skeletal muscle relaxing effect of general anesthesia should temporarily resolve the hard flaccid for implantation; and 2) that the destruction of the corpora via surgical corporotomy eliminates the contraction caused by the bulb of the corpora (the proposed etiology of hard flaccid).
There aren't too many people who have gone this route for hard flaccid. Hard flaccid itself is highly amorphous, with some experiencing contraction and others not so much. There is one person on this board who did receive a penile implant for HF, is happy with the outcome, but as to his previous symptoms I have no clue (whether he had stretch-inhibiting contraction or not). You might try reaching out to him; he goes by the handle "endoftheline." Nice guy; he should respond.
Take care,
F1
40. Implanted July 5, 2024, by Dr. Andrew Kramer, Urology Associates of Cape Cod. AMS LGX, 21cm cylinders + 2cm RTEs. Idiopathic erectile dysfunction following bacterial infection. Tried pulse waves, Cialis, even spinal injections. Nada.
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Re: Implant for Hard Flaccid
Guys,
I don't very often step in, but implants are not at all a treatment for hard flaccid. HF is caused by tight, inflamed, and spasmed pelvic floor muscles. The treatment is a good physical therapist, plus learning coping skills for stress and holding your tension in your abs/pelvis. Get to a therapist to learn to manage stress. If needed, valium suppositories are helpful. Botox injections sometimes help. It is all about releasing the tight pelvic floor. Once that is cleared up, normal sexual function will return.
There is no easy fix. But the answer is definitely NOT surgery of any kind.
Please read the sticky post at the top of this forum on educational materials.
Paul
I don't very often step in, but implants are not at all a treatment for hard flaccid. HF is caused by tight, inflamed, and spasmed pelvic floor muscles. The treatment is a good physical therapist, plus learning coping skills for stress and holding your tension in your abs/pelvis. Get to a therapist to learn to manage stress. If needed, valium suppositories are helpful. Botox injections sometimes help. It is all about releasing the tight pelvic floor. Once that is cleared up, normal sexual function will return.
There is no easy fix. But the answer is definitely NOT surgery of any kind.
Please read the sticky post at the top of this forum on educational materials.
Paul
Re: Implant for Hard Flaccid
Hi maybe you mean to get better go to pt but i hear is only recover a little but, the pt dont heal it, i will do it everything, leave the masturbation inclusive but a implant is the best solution i think, you dont worry to make a erection, you dont worry for the tense o retract ic muscle, you dont worry of pain or nerves fr low back, you dont worry of ejaculation or lost the erection before erection, i have 28 but if in 10 years maximum im not recovery, i do it the implant first i go to recolect money, sorry but feeling better and later bad dont look for that and feeling bad with my size and all the girls say she wants a big cock so inclusive i leave talk with girls for this condition and all people think like i dont like, i like girls only have this shit for years
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