Suggestions of questions at next Uro follow up

Anything goes when it comes to ED.
clear0cn
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Joined: Fri Jan 26, 2018 10:30 pm

Suggestions of questions at next Uro follow up

Postby clear0cn » Wed Jan 31, 2018 10:29 pm

I'll be seeing my uro for the second time this week end where I'll be passing a penile doppler ultrasound to find the exact root cause of my ED. Last time he gave me a shot of trimix which unfortunately didn't give a good result. I don't have neither cholesterol or diabetes, so I most likely have something physical like a VL.

I have some questions in mind already, but maybe you can point toward some others that I'm missing. If you have some answers to those ones too feel free to share them!

1- Does daily low dose of cialis can reverse a VL overtime?
2- My T level is low for my age (325-350) but could be worse, is it a possible cause and could TRT make a difference?
3- Trimix didn't work to well; Cialis, not sure; Tried VED a few times but never worked; However if I get a good amount of stimulation, it's not impossible for me to get a full erection. Why?
4- Does Penile Vascular Reconstructive Surgery could work for me?
5- At what point should I consider an implant?

thanks!
26, french Canadian, signs of ED started few years back but been consistant for 1.5 Y. Still looking for the root cause, hoping my new Uro will

Greg1956
Posts: 1736
Joined: Sun Aug 06, 2017 8:35 am
Location: Atlanta, GA USA

Re: Suggestions of questions at next Uro follow up

Postby Greg1956 » Thu Feb 01, 2018 10:33 am

I would ask your doctor based on the results of the Penile Doppler test, what does he recommend as the next step for you? If you don’t like his idea, ask why he believes that is the best option.

Good Luck!
Greg
I am 64 and had ED from a VL. Implanted by Dr. Ronald Anglade in Atlanta on 9/18/17. I have an AMS700LGX 21 cm via a Penoscrotal incision. Very happy with results. 6" soft and 6 3/4” x 5 5/8” hard.

clear0cn
Posts: 9
Joined: Fri Jan 26, 2018 10:30 pm

Re: Suggestions of questions at next Uro follow up

Postby clear0cn » Thu Feb 01, 2018 5:29 pm

Thanks Greg :)
26, french Canadian, signs of ED started few years back but been consistant for 1.5 Y. Still looking for the root cause, hoping my new Uro will

antelope
Posts: 1497
Joined: Sun Nov 14, 2010 3:17 am
Location: Baton Rouge

Re: Suggestions of questions at next Uro follow up

Postby antelope » Thu Feb 01, 2018 5:46 pm

Thoughts:

One Trimix injection may not be a valid test. There are too many variables: composition, dosage, environment, sensory stimuli, etc. I wouldn't rule out injections on one unsatisfactory.

When I first got started on this journey, I resolved to do everything I could that was in my control. I joined a gym, lost 60 pounds, went from a 42 waist to a 34 waist and got in pretty good shape. In the process, I raised my T level from 350/375 to over 750.

Let me be clear. Those results were NOT a cure for my ED; I still require my Trimix injections to get it on. But I feel better, look better, and I swear my erections are longer and stronger as a result of being healthy.

I have no idea what kind of physical shape you might be in. I'm just saying that lifestyle was definitely a factor for me.

Not medical advice, just sharing my experience and making an observation.

All the best.
Born 1948, wed 1969. BPH & Type II Diabetes at age 35. TURP-2002; ED even before that--diabetes. Cardiac valve surgery: 2007 & 2019. Poor results with pills. Started trimix injections in Nov, 2010. Great results from the very beginning.

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bldoink
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Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: Suggestions of questions at next Uro follow up

Postby bldoink » Thu Feb 01, 2018 7:45 pm

antelope wrote:One Trimix injection may not be a valid test. There are too many variables: composition, dosage, environment, sensory stimuli, etc. I wouldn't rule out injections on one unsatisfactory.


I fully agree with this!
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.

greyt88
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Joined: Fri Dec 29, 2017 3:31 pm

Re: Suggestions of questions at next Uro follow up

Postby greyt88 » Fri Feb 02, 2018 12:58 pm

The VED will work, but it will take practice. I suggest you request your urologist bring someone from a VED company to demonstrate how it works on you. You don't have to buy their VED, but it will give you confidence that it will work.
Early 40s old diagnosed with severe venous leak by Dr. Irwin Goldstein, Dr. Arnold Mehlman and my local urologist. Using Pos-T-Vac Boss 2000-2 (battery powered Vacuum Erection Device) since 2005.

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bldoink
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Location: Fl.

Re: Suggestions of questions at next Uro follow up

Postby bldoink » Fri Feb 02, 2018 1:23 pm

greyt88 wrote:The VED will work, but it will take practice.

I agree with this also.

It might not work to a level that is satisfactory for the user due to either limited duration or medical time constraints but with patience and practice, it will work .
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.

clear0cn
Posts: 9
Joined: Fri Jan 26, 2018 10:30 pm

Re: Suggestions of questions at next Uro follow up

Postby clear0cn » Fri Feb 02, 2018 6:20 pm

Ok thanks guys for your suggestions. As per my shape, it's not that bad but it could be better. I've been working out very regularly for a good 5 years, however I have to admit I have neglected my trainings a bit during the last year. I'm far from overweight, I'm sure it would be good if I loose a few kilos but I don't believe it would make a huge difference.

As for the injections I guess I will see when I get the penile Doppler this weekend. Do you prefer the injections over an implant?

For the VED, I have a Bathmate. Maybe I should get another model?

Thanks again! :)
26, french Canadian, signs of ED started few years back but been consistant for 1.5 Y. Still looking for the root cause, hoping my new Uro will

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bldoink
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Location: Fl.

Re: Suggestions of questions at next Uro follow up

Postby bldoink » Fri Feb 02, 2018 8:49 pm

I've never used a Bathmate although I'd like to. They seem like they would be very good for therapy and convenient as you use them in the shower. However, they aren't intended for actual sex purposes. For sex I suspect you need a VED that allows for the application of constriction rings.

You said earlier " if I get a good amount of stimulation, it's not impossible for me to get a full erection." If you do get that erection does it last?
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.

guytalk2018
Posts: 21
Joined: Mon Jan 22, 2018 4:37 pm
Location: Nevada

Re: Suggestions of questions at next Uro follow up

Postby guytalk2018 » Fri Feb 16, 2018 10:37 pm

VED BATHMATE brand ($200.!) works for me but it kinda pushes on the area around it real hard and kinda hurts because its hard rubber. At least for me. But my semi that it produces only lasts 5 or 10 f---ing minutes before it shrinks back down. u can throw a ring on. Thats not a problem, and just make sure your partner is ready to go!!! Lol
mid 60s generally healthy, da vinci RP in 2016, psa 0 8-)


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