Currently I was diagonsed with Venous Leak with max EDV of 17 at some point. My PSV in flaccid was 17 on left and 25 on right.
I''m having Cavernosography next Thursday (09.06) which im super afraid of
Fun fact: My reaction to 10mg Alprostadil was weird. I had weaker erection than i had 2 days before USD and i wasnt using even pills as I had break from them. I had normal firm erection that lasted enough to have PiV sex. Also im receiving much better erections from pills than i had from injection.
Introduction about me and my case:
Hello everyone.
Im 26 years old. Im suffering from ED since i remember.
I had 2 surgeries on my penis done. One in 2011 when i was 16 - it was hypospadias, very slight one, namely my urethera was like 0,5cm lower than it should be. Next in 2020 when i was operated for extending my urethea hole (I was informed about need to do it even in 2011, doc told me my penile will be growing including my penile glans so my hole will get smaller).
My bloodworks are good in general especially for person who is not moving at all, have remote IT job, have never attended sport gym class in school etc. Only thing i got often elevated is prolactin, my total T is around 450-500. I think i might have silent hypothyroidism as my TSH is always >3(FT3 and FT4 are okay). Also I got super little semen amount that is not liquid but more like thick sticky jelly lumps + water and its another sign of unhealed hypothyroidism. Also I do have high LH >7.5
Last year I met girl that i spent last 8 months(currently i lifed our relationship as my ED drives me mad and im super anxious about it and not only im generally anxious). I was told by her as she have her kid, she had 20+ partners, was even in threesomes - well she is just experienced.
I didnt told her about my ED problems and we spent like first 5 months having sex 2-3 times per day. In this time i was hiding with popping 10mg tadalafil daily(didnt know at beginning that lower dose will be also ok) + 50mg viagra when needed but rarely maybe 10-12 times. Finally I decieded to tell her about my issues and she accepted that and it wasnt good decision actually. All started with going to Penile USD that came positive... She was like ok lets try without pills, she was very supportive she was interested in my case and wanted to help. We started to lowering my doses, replacing with more natural stuff (Arginine) and my anxiety started to grow as I've seen im happening to fail more often...
The heart of the matter and topic:
Before I go to my cavernosography.... I wanted to ask and make sure, is it truely possible that I might have fake venous leak diagnosis ?
My new doctor who is very smart guy one of the best doctors in my country said - If you are responding to 5-10mg cialis there is no chance this diagnose could be good, especially with such high EDV that came as result from my penile USD.
I'm very nervous about my cavernosography and im super anxious praying to god to get some other issue than venous leak
I'd be grateful if someone could tell me also how cavernosography look like, is it painfull, how long does it last, will i be put in general sleep?
IMAGES FROM MY DOPPLER:
