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Marfans Syndrome and Venous Leak
Posted: Thu Aug 18, 2022 11:10 pm
by walnut99
I have a congenital venous leak and Dr Eid speculated that the cause might be a weak/loose tunica albuginea. I have a family history of Marfan's Syndrome, although I was not diagnosed with it. Dr Eid thinks there is a connection between marfan's and a weak tunica albuginea.
Anyone heard of this or come across any info on it?
Re: Marfans Syndrome and Venous Leak
Posted: Fri Aug 19, 2022 12:32 am
by bldoink
Welcome to the forum.
I'm sorry but I know nothing on that topic.
Re: Marfans Syndrome and Venous Leak
Posted: Mon Aug 22, 2022 3:24 pm
by walnut99
hi, i am 48. lifelong issues with ED, VED. no real issues with marfan's but it is in my family and doctor thinks it might be ultimate cause of leak by weakening the tunica. the doctors dont know everything. please let me know how i can help.
Re: Marfans Syndrome and Venous Leak
Posted: Mon Aug 22, 2022 4:07 pm
by Old Guy
walnut99 wrote:hi, i am 48. lifelong issues with ED, VED. no real issues with marfan's but it is in my family and doctor thinks it might be ultimate cause of leak by weakening the tunica. the doctors dont know everything. please let me know how i can help.
Welcome to the forum. Pretty much everyone here is friendly, and a lot of knowledgeable guys. Hopefully reading some of the posts here will help you determine the direction you want to go.
I wish I had found Frank Talk when my ED began. I didn't find it until 5 months after my surgery.