FrankTalk.org

Posted: **Tue Sep 06, 2022 3:30 am**

Hello everyone. Started to experience VL symptoms 7 months ago after a COVID (it was mild tho), when I noticed that my glans looks soft when I lay at my back, though it's ok when I sit or stand. At the same time I started to feel some pelvic pain, irritating to different parts of body. 3 urologists said it's psychological, but they haven't even done any examinations. Recently I did a Doppler ultrasound test and it showed my dorsal vein is leaking, but I think big fear and anxiety could affect the results.

Anyway, I started to take Tadalafil 2.5 mg every day, my erection became better when I sit or stand, but when I lay, it seems like pills don't help enough to make my glans as good as it was before COVID. Honestly I'm frightened because I'm afraid that pills won't work at all with my VL so I ask you guys, especially who has a VL, how much time I have before my ED become severe? How fast VL progresses?

Btw it seems like raising the dose to 5 mg doesn't change a lot, but my nocturnal and spontaneous erections are getting even annoying

Posted: **Tue Sep 06, 2022 8:52 am**

Everybody is different but for most of us venous leaks get worse at a pretty steady rate. There are a few men who've used the same prescription for oral medication or injections for years... but that is rare. Unfortunately, you will have to keep increasing your oral medication until you find what works. You may get by for several years with it or only a couple of months.

Posted: **Tue Sep 06, 2022 9:42 am**

68CatFan wrote:Everybody is different but for most of us venous leaks get worse at a pretty steady rate. There are a few men who've used the same prescription for oral medication or injections for years... but that is rare. Unfortunately, you will have to keep increasing your oral medication until you find what works. You may get by for several years with it or only a couple of months.

Oh god, that is damn quick. I thought it might be like ten years or so for me to not even increasing a dosage. I'm only 21, god... So should I prepare myself mentally for an implant surgery in a couple of years? Like 2-4 years or so?.. That is very depressing. I can't believe that I have to experience such a misfortune - disease that develops so fast and cannot be cured...

Posted: **Tue Sep 06, 2022 9:45 am**

68CatFan wrote:Everybody is different but for most of us venous leaks get worse at a pretty steady rate. There are a few men who've used the same prescription for oral medication or injections for years... but that is rare. Unfortunately, you will have to keep increasing your oral medication until you find what works. You may get by for several years with it or only a couple of months.

Can I ask you, is your ED connected to venous leakage? For me it looks like VL is not very common case cuz I see more discussions about other reasons of ED

Posted: **Tue Sep 06, 2022 2:19 pm**

Just my opinion formed from years of reading men's histories here on FT, but I think that veinous leaks are one of the major reasons for ED. Sure was in my case (along with other complications) and the implant changed my life.

Posted: **Tue Sep 06, 2022 2:30 pm**

SteveSW wrote:Just my opinion formed from years of reading men's histories here on FT, but I think that veinous leaks are one of the major reasons for ED. Sure was in my case (along with other complications) and the implant changed my life.

It's important to remember that VL also has different ethiology. I think VL after traumas will progress faster that if it is from vascular problems. I haven't totally digged into my case yet but I think it's because of varicose changes in my pelvic veins. I even put up with this need of implant in future but I hope that my condition won't deteriorate too fast. I hope pills will work for at least 2 years maybe.

Btw, I'm shocked how many advantages implants have. It seems like it's better to have an implant rather than your natural penis. Is it really so good? Pity that in Russia I'll have to pay a lot of money for that cuz we don't have any insurance for that and politic situation also affects

Posted: **Tue Sep 06, 2022 4:08 pm**

PSSDorAmINormal wrote:You're 21 and caught the disease. Let yourself recover from covids a long time before pre-planning a penile implant.
Besides you are capable of getting erect. The evidence is in your nocturnal and spontaneous erections.
Don't ever think implant is better than the natural physiological erections you currently have in the penis. You can't beat the original equipment.

As far as your erection looking firmer while you sit could be related to the fact that when you sit, you could be putting pressure on your perineum and the root area of the penis. When you do that, it pushes more blood into the chambers. Thus the glans could look more inflated. When on your back the pressure is totally different, and I don't think it means VL doom!

Hi, good to see you! Yeah, of course, serious thoughts and planning a implantation are not appropriate at the moment, but I dig into that information just to calm myself down a little. With that research I know that at least I have a terminal solution.

I haven't finish my medical examination with my urologist yet, but still I don't think that these symptoms are just reversible consequences. Also, I heard from a couple of people here, that nocturnal erections are not 100% sign that I have no VL. It may be just mild now and affect only my glans, btw without pills my morning erections go away pretty fast, which also seems like early stage of VL.

As for the natural equipment, yeah, it is always better to have it, but if it is getting broken, sometimes it's better to put into yourself giga cyberpunk robotic organ and not worry about your functioning ever again

Yeah actually I thought about perineum pressure today and it has always made my erections harder but what about standing position? I just think that when I get my penis lower than my pelvic vein system, gravity doesn't do its' sneaky job. Also my pain still concernes me and it is still moving from one part of my pelvis to another, which may be a sign of pelvic phlebopathy, unfortunately.
Btw I started to feel pain in my upper thighs near the scrotum which is weird and concerning :roll:

Thank you for your answer! I hope I don't sound annoying with all my reasoning

Posted: **Tue Sep 06, 2022 4:23 pm**

snowerhood wrote:
SteveSW wrote:Just my opinion formed from years of reading men's histories here on FT, but I think that veinous leaks are one of the major reasons for ED. Sure was in my case (along with other complications) and the implant changed my life.

It's important to remember that VL also has different ethiology. I think VL after traumas will progress faster that if it is from vascular problems. I haven't totally digged into my case yet but I think it's because of varicose changes in my pelvic veins. I even put up with this need of implant in future but I hope that my condition won't deteriorate too fast. I hope pills will work for at least 2 years maybe.

Btw, I'm shocked how many advantages implants have. It seems like it's better to have an implant rather than your natural penis. Is it really so good? Pity that in Russia I'll have to pay a lot of money for that cuz we don't have any insurance for that and politic situation also affects

My urologist said there was the possibility that the Peyronie's disease caused, or most likely worsened my VL. It was a gradual progression, but I got several years ability from pills and then injections, all of which eventually lost their efficacy. Use the pills and then possibly injections before going for an implant. As much as I love my bionic dick, would I rather have a fully functional natural dick, yes, I would.

Posted: **Wed Sep 07, 2022 2:05 am**

PSSDorAmINormal wrote:
snowerhood wrote:
Hi, good to see you! Yeah, of course, serious thoughts and planning a implantation are not appropriate at the moment, but I dig into that information just to calm myself down a little. With that research I know that at least I have a terminal solution.

I haven't finish my medical examination with my urologist yet

As for the natural equipment, yeah, it is always better to have it, but if it is getting broken, sometimes it's better to put into yourself giga cyberpunk robotic organ and not worry about your functioning ever again

Yeah actually I thought about perineum pressure today and it has always made my erections harder but what about standing position?

Hi and no it is not annoying at all. You have to make the final decision on the surgical option, but lets hope it is a last resort. Your original equipment should work just fine for many years to come! It's good that you do research and I would encourage that. Also be sure to finish your medical exams and then be willing to accept their professional opinion if they say you are fine. You can always seek a second or third opinion if you need to.

I wouldn't consider yourself broken just yet, and I don't know if it is accurate to say that with an implant you never have to worry about impotence ever again. At 21 years of age, the lifespan of your first implant will likely not last you your whole lifetime. So there would likely be revisions and then as with anything surgical there would be risk and possible failures. Some people are okay with that.

Regarding perineum pressure; this must be a thing that guys learn themselves. It certainly wasn't discussed in any health class that I ever had, and doctors don't seem to educate their patients on the subject. What is your body composition like? Are you a heavy overweight man? Maybe that could make a difference? Another thing to consider is that depending on body position your erection quality could vary some degree. I bet if you tried different positions with your body you would see what I mean. For instance standing on your head or while doing the splits your erection could change, and I would think that would be somewhat expected. On our backs for whatever reason must not be ideal for erections. Is it possible yes, but maybe nature didn't intend it that way.

As for revisions and implant lifespan, I checked an info about our good Russian surgeon who is almost the one who does penis implantation, and there I read that Coloplast has a lifetime warranty for their implants, so it's supposed to be that good that you don't have to worry about its' quality or condition. And so I think if any issues appear, they will make a revision or fixing for free. The money issue is the most concerning thing for me, actually. I'm okay with rehabilitation if it's necessary and all risks connected with that, considering that there is not a big chance of some serious complications.

My body composition is fine I would say, I'm tall and pretty skinny 191 cm / 69 kg guy, so I don't have an overweight as a risk factor, neither diabetes or hypertension, so it's even more surprising that now I caught some veins problems. I'm not even sure that my parents or other relatives had/have varicose diseases or smth like that, so yeah it's weird. Still gotta dig into that, but now my university exams kinda disturb me from that. Medical education spares no one

Posted: **Fri Sep 09, 2022 3:59 pm**

PSSDorAmINormal wrote:
snowerhood wrote:My body composition is fine I would say, I'm tall and pretty skinny 191 cm / 69 kg guy, so I don't have an overweight as a risk factor, neither diabetes or hypertension, so it's even more surprising that now I caught some veins problems. I'm not even sure that my parents or other relatives had/have varicose diseases or smth like that, so yeah it's weird. Still gotta dig into that, but now my university exams kinda disturb me from that. Medical education spares no one

With a body like that I can't imagine that you have serious vein disease. In fact I can't even see you, but knowing your age and body size I am very doubtful that you have a physical defect. You probably heard me say that before, but I am very confident. If you're local we could always meet IRL

Hello, I have an update, seems like my situation worsens, but I have a very very strange positivity about that. Just like I put up with my faith and now just let it be, this thing isn't something I can control, so if I will have a need for implant, I'll have to get it. I just noticed that even on my 5mg Tadalafil therapy my erection is becoming more weak and I've got a new feeling of discomfort even if I'm on my max arousal like when your D isn't hard enough to make you feel 100% of feelings. Also rigidity is more unstable even in my sitting position now and it is unbelievable, I should say, that VL can worsen that fast. Now I just think about how soon I should look for an implant. Probably now I should do more research about it and one of my questions is will your glans get hard when you have an implant or will it be flaccid forever after that. If the second, then I don't understand how people can get satisfaction or ejaculate with their glans being soft...

Unfortunately, I'm not local, I'm from Siberian city Novosibirsk in Russia xd and trying my best in using my English skills, I guess it's a pretty good practice to write here xd

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