Where to Obtain Unbiased Medical Advice

Anything goes when it comes to ED.
Ray Johnson
Posts: 16
Joined: Wed Jun 07, 2023 5:27 pm

Where to Obtain Unbiased Medical Advice

Postby Ray Johnson » Thu Sep 05, 2024 3:12 pm

Does anybody know a specialist in London who can do tests on my ED, a suspected case of VL (blithely dismissed by NHS after doppler on my penis in its flaccid state), and also give impartial advice about the next steps in terms of injections and implant options best suited to my situation?

I guess what I’m after is a doctor to go, ‘Well, we’ve done some tests/scans on your ERECT penis; we reckon you’re issue is X, and, given you’re a grower not a show-er, we recommend you go with a malleable/hydraulic implant that will set you back around this much money. Here are the pros and cons; any questions?’

Any Harley Street wallahs able to do this or will their decisions be governed more by profits rather than patient’s best interest? (fear I know the answers to some of these questions already- but some of you blokes have a wealth of knowledge/experience that may challenge my assumptions…)

ANY constructive suggestions massively appreciated. Oh, yeah, and if such private medical consultations are available, what’s the going rate for a suite of tests and advice?

Cheers,

RJ
44 years old. Shingles seems to have brought on VL 10 years back. NHS and Private healthcare say ‘keep taking the blue-pills, champ!’ Never managed to obtain a definitive medical explanation for my ED, which gets on my tits more than I can say.

splitpeach
Posts: 140
Joined: Fri Nov 22, 2024 7:43 pm

Re: Where to Obtain Unbiased Medical Advice

Postby splitpeach » Tue Feb 18, 2025 1:41 pm

A Doppler on your dick should be when erect.

The NHS can be great but you need to work it for yourself.

I would say that the Andrology departments at both Guys and UCLH are probably the best.

I did a Doppler at guys with artificial (caverject) erection. The guy that did it was a total prick but fuck him. Just give me your medical knowledge.

I also did two NPT tests at Guys. One was an overnight stay actually.

Loads of blood tests.

Ive done loads privately too, but they're really just interested in money. If you can handle the wait times and no frills you're best going NHS
Mid 30s. UK. ED since mid teens. Done the pills, injections, P Shot, Gainswave, ESWT shockwave.

Now preparing to take the plunge under care of Professor Ralph at UCLH. Planning on a Rigicon Infla10 AX with Pulse pump.

wolfpacker
Posts: 1250
Joined: Thu Dec 12, 2013 10:16 pm

Re: Where to Obtain Unbiased Medical Advice

Postby wolfpacker » Tue Feb 18, 2025 2:22 pm

The problem with the Doppler test is that it really doesn't matter. Regardless of the results of the Doppler test, your treatment options are the same.
Early 30s with ED from jelqing. Implant by Dr Eid on 24 June 2021 with a Titan 24cm with +1cm RTE on one side and -1cm cut off on the other side

Aug 2024 revision to AMS CX 24cm + 2rte

My journal: viewtopic.php?t=17202

GoodWood
Posts: 969
Joined: Sun Jun 16, 2019 1:07 pm

Re: Where to Obtain Unbiased Medical Advice

Postby GoodWood » Tue Feb 18, 2025 2:34 pm

I’ve been dealing with ED for over 15 years. First with pills for about 5 years. Then shots for the last 10.

Now I’m getting worked up for an implant. Will likely happen this spring.

I just got my very first doppler scan last week. Why not sooner? Because my first urologist (very good doc) explained to me that the Doppler scan was largely an academic exercise. And the one I got last week was really for justification for the insurance company so they will cover implant. They won’t cover an implant without it. (Private insurance here in the USA).

That doc explained that it doesn’t matter what the Doppler study shows. It doesn’t matter if the cause of the ED is arterial insufficiency (not enough flow going in) or venous leak (blood not staying trapped in the penis) the treatment is exactly the same.

The treatment choices, regardless of the cause is pills, shots, VED with a constriction ring, and implant. None of the treatments are ruled out or ruled in based on the Doppler study.


I’m not discouraging you from getting one. I’m just saying that you already know your treatment options. You just need to start working through the ones you are willing to do.

If you haven’t already:
Try all the available pills. Try them at different doses. If any seem promising try them with a decent sex shop cockring (which will slow venous leak).
Try shots. Try whichever formulations are available in the UK: Caverject? BiMix (Papaverine and Phentolomine), Trimix (same as BiMix with Prostaglandin-PGE), QuadMix (TriMix with Atropine).
If you are interested in a VED with a constriction ring (very tight cock ring applied from the device) try it. I wasn’t interested in that one.
Then the last stop is implant. Most guys seem to prefer inflatable ones. More discreet when you aren’t using it. Malleable are usually suggested for guys with dexterity and strength issues who would struggle with the bulb. But some other guys opt for a malleable anyway.

No testing is going to say do this, don’t do that. Just work your way through the options.
56yo, NYC. ED started at 40. Pills first, then shots for nearly 10 years. 24cm Coloplast Titan w/classic pump implanted by Dr Eid 3/25/2025.

Ray Johnson
Posts: 16
Joined: Wed Jun 07, 2023 5:27 pm

Re: Where to Obtain Unbiased Medical Advice

Postby Ray Johnson » Sat Mar 01, 2025 5:29 am

Gents, a massive thank-you for taking the time to give me your sage insights. You have crystallised and clarified for me some vague ideas I had whirling round my head. Without sounding too mawkish, bless your hearts.
R.J.
44 years old. Shingles seems to have brought on VL 10 years back. NHS and Private healthcare say ‘keep taking the blue-pills, champ!’ Never managed to obtain a definitive medical explanation for my ED, which gets on my tits more than I can say.

timduncan
Posts: 77
Joined: Wed Apr 06, 2022 12:31 pm

Re: Where to Obtain Unbiased Medical Advice

Postby timduncan » Fri Mar 07, 2025 11:49 am

GoodWood wrote:I’ve been dealing with ED for over 15 years. First with pills for about 5 years. Then shots for the last 10.

Now I’m getting worked up for an implant. Will likely happen this spring.

I just got my very first doppler scan last week. Why not sooner? Because my first urologist (very good doc) explained to me that the Doppler scan was largely an academic exercise. And the one I got last week was really for justification for the insurance company so they will cover implant. They won’t cover an implant without it. (Private insurance here in the USA).

That doc explained that it doesn’t matter what the Doppler study shows. It doesn’t matter if the cause of the ED is arterial insufficiency (not enough flow going in) or venous leak (blood not staying trapped in the penis) the treatment is exactly the same.

The treatment choices, regardless of the cause is pills, shots, VED with a constriction ring, and implant. None of the treatments are ruled out or ruled in based on the Doppler study.


I’m not discouraging you from getting one. I’m just saying that you already know your treatment options. You just need to start working through the ones you are willing to do.

If you haven’t already:
Try all the available pills. Try them at different doses. If any seem promising try them with a decent sex shop cockring (which will slow venous leak).
Try shots. Try whichever formulations are available in the UK: Caverject? BiMix (Papaverine and Phentolomine), Trimix (same as BiMix with Prostaglandin-PGE), QuadMix (TriMix with Atropine).
If you are interested in a VED with a constriction ring (very tight cock ring applied from the device) try it. I wasn’t interested in that one.
Then the last stop is implant. Most guys seem to prefer inflatable ones. More discreet when you aren’t using it. Malleable are usually suggested for guys with dexterity and strength issues who would struggle with the bulb. But some other guys opt for a malleable anyway.

No testing is going to say do this, don’t do that. Just work your way through the options.

this should be read to all the young sufferers thru the world.


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