Postrate surgery

[superb_h]

Have anyone had postrate surgery. Can you share your experiences. Did you have any incontinence isues? If so, how did you deal with it? Thanks

[bldoink]

Yes
Yes, but I'm watching my grandbaby at the moment and wouldnt have concentration.
Yes
Again, I can address this later when I can concentrate on it.

[bldoink]

OK, I'll do a partial here:

I had an RP with all nerves taken. This gave me instant profound ED, nothing. I did not have Ed prior to the surgery.

Like pretty much everyone I also had incontinence after the surgery. I dutifully did my kegals after the surgery as instructed. I wish I'd started doing them before surgery. The kegals helped and my incontinence slowly diminished but was still pretty bad and requiring pads.

I then started a walking program in my neighborhood. It's a neighborhood with big lots so somewhat rural. My program was to go for walks with no protection, no pad. The reason was to give me incentive to hold it in. My first walks were very short and resulted in frequent wet spots along with episodes of emergency relief behind bushes. Progress was slow but I eventually worked up to 4 mile walks without leaks.

Now I no longer wear pads and can go all day without leaks. Am I at 100%? No! I will sometimes have a small leak if I suddenly bend over to pick up something weighty without clamping first. Also if I'm working outside in the woods and get fatiqued and continue working, well then all bets are off. Generally I'm so sweaty by that point that no one would notice. But like I said I don't have enough leaks to matter and they're so small they don't spot.

I also had climaturia but I'll have to get to that later I'm falling asleep.

OK, I'm back.

The climaturia goes with the incontinence but in the sexual intimacy side of things. It has to do with leakage during sexual arousal, foreplay and especially during climax. It's fairly common after an RP. Some guys with saved nerves may recover from it, and other RP side effects, rather quickly. Others with more severe nerve damage or loss have longer lasting issues.

For the ED pills had little, nearly zero effect on me as far as erections. They did make VED use easier. However mono-mix alprostadil (PGE1) injections were and are effective. After experimenting with the injections solo (highly recomended) I discovered a significant problem. The problem was that even with a great chemicaly induced erection, even after I'd otherwise recained urinary continence, upon climax I ejaculated significant amounts of urine. That's not something I wanted to bring to the bed with my wife. She's pretty understanding but isn't into water works.

So solo practice continued. I initially learned that I could stop an orgasm from happening by strongly clamping the kegals at the last moment, and thus the water works. I eventually learned that I could clamp enough to stop the water works while still allowing a slightly less enjoyable orgasm. It took a fair amount of solo practice. It takes practice but it can be learned. Then it was time to take it to bed with the wife. I suggest telling the wife or S.O. up front what has to be done. There may be a few light hearted women that are fine with water works and will want to be part of the learning process. But I doubt there's a lot of them. It seems obvious but it's always good to restrict fluid intake before hand and to void your bladder immediately before sexual activity.

[Lawnman]

I’m in my late 60’s. I had RRP two years ago. Nerves taken on one side. I started kegals months before surgery. I experienced some minor incontinence, and still occasionally do. It is not, and never has been, significant. My understanding is that a very small percentage of RPP patients will experience more significant in continuance.
I do have ED, as a result of the surgery, but I manage it with Bimix, Furthermore, I’m still alive, and right now, healthy.
I’m confident I made the correct decision.

[ftwabeck3533]

Have anyone had postrate surgery. Can you share your experiences. Did you have any incontinence isues? If so, how did you deal with it? Thanks

I PM'ed you....

[superb_h]

What type of underwear is the best to wear after postrate surgery? I'm having surgery done on 12-12-2024. Thanks guys!

[bldoink]

I don't think underwear is much of an issue. It should be roomy enough for pads as you'll need them for awhile. You'll start out with a catheter until your doctor figures your tubing has healed enough to handle it's normal duties. They used to pressure test your tubing before releasing you from catheter usage but I think they may have quit doing that.

[RJ_in_Pa]

Hi superb_h,

As my signature notes, I had a Robotic Radical Prostatectomy (RRP) in late August of 2023.

I wish I had known of this site prior to doing it.

My father had PC, had an RP and died 3 years later after the C returned and got in his bones.

Since his passing, I watched my PSA very closely and when went it jumped above 4.0 in 2019, I had a biopsy that showed that I had PC. Since my Gleason score was rather low, I chose Active Surveillance and watched it for 4 years. During that time, I had 6 biopsies, 2 of which were performed by a renowned Dr in Pittsburgh that specialized in that area. I assumed he’d do my surgery if/when it came time to do that. On a regular basis, I saw a local Uro here in podunk Pa, which I am still seeing.

We (my wife and I) thought my Uro was great and trusted his judgement and advice. When my Gleason score broke 7, he told us it was time to do something about it and we chose surgery. Much to my surprise, he said he would perform the surgery using robotic assistance. Me being overwhelmed by the whole thing (and rather naive and stupid), I agreed because I thought that surgery would be performed by an AI based computerized tool. Dahhh! When they wheeled me into the OR, I saw my Uro playing with a joystick like a kid getting ready to play his first Nintendo game. I thought, Oh S#!t!

I was in surgery for 9 hours. They invert you with your head down, feet up to move your organs away from your prostate. This pushes fluids to your head. They almost stopped the surgery because my face got so swollen.

In hind sight, I wish I would have asked my Uro how many times he had performed the RRP surgery. I may have been his first. Post op, I did the kegels, but still, 15 months later, I have some incontinence issues. I still have leakage if I do a lot of yard work or when I have a couple adult beverages.

A friend of mine had his RRP surgery by the renowned Pittsburgh Dr and his leaking stopped after 10 days. Another guy I know, had his surgery in Cleveland. He was out of surgery in 45 minutes.

Don’t I feel stupid. That’s saying something for someone who graduated Suma Cum Lade, second in his class at college.

As for my ED, I asked my Uro if he was able to save my nerves that will allow me to get an erection. He replied “The nerves are not like a TV cable that you can see, you will know if you can get an erection in 6 months to a year“. Ugh!

So, please! Do your research. Ask questions. Don’t be afraid to switch Drs and find the MOST experienced Dr available.

Sorry so long and venting my frustration, but I don’t want anyone to go through what I went through.

Good luck and stay on this site. These guys on this site are the experts when it comes to managing ED. They/we have lived it. I know my Uro hasn’t a clue what it is like to stick a needle in his dick.

Enough said.

Take care,
RJ

[superb_h]

Thanks! My Dr's name is Dr. Sotelo at usc keck. He has done over 2000 robotic postrate surgeries. Has anyone had any surgeries with this doctor?