Shockwave Therapy with Corporal Fibrosis

[Breakthrough]

I haven’t read too many positive testimonies about shockwave for people with severe ED. Moreover, I have heard of people attributing further damage to the shockwave treatment. Just to consolidate opinions, I’d like to hear about the people who have corporal fibrosis and have attempted shockwave. Was it harmful?

Could it have been made better if in combination with something anti inflammatory like PRP, stem cell, or hyperbaric oxygen therapy.

[LGXDownunder]

I haven’t read too many positive testimonies about shockwave for people with severe ED. Moreover, I have heard of people attributing further damage to the shockwave treatment. Just to consolidate opinions, I’d like to hear about the people who have corporal fibrosis and have attempted shockwave. Was it harmful?

Could it have been made better if in combination with something anti inflammatory like PRP, stem cell, or hyperbaric oxygen therapy.

So, I had a degree of corporal fibrosis after a period of injecting Trimix for severe and total ED caused by my radical prostatectomy in 2022. Confirmed by my uro surgeon who did both the prostatectomy and my implant procedure. Eventually I gave up on the injections as they no longer worked due to the build up of scar tissue. Various pills didn't work either. So I opted to try focal shockwave therapy with a well regarded practitioner, who is a great believer in that technology. However for me it didn't work at all, complete waste of time and money. I had floated the idea beforehand with my uro. He was very sceptical about it and said that a manufacturer had previously shown him the equipment. But he was not convinced that it would work, nor could they provide any clinical evidence of successful outcomes. I can't say that it was harmful, or caused further damage, but I think it would be difficult for a patient to make that assessment. After that failure I relied solely on the use of a VED up until my implant operation. Surgeon told me afterwards that he had to clean up some fibrosis/scar tissue during the procedure.

I can't comment on the other therapies as I have never had them or researched them. I'm not sure if all are commonly available in Australia for ED, although it's likely someone is doing them. I have a female friend who did have stem cell treatment for a knee issue some years ago.

[Breakthrough]

I haven’t read too many positive testimonies about shockwave for people with severe ED. Moreover, I have heard of people attributing further damage to the shockwave treatment. Just to consolidate opinions, I’d like to hear about the people who have corporal fibrosis and have attempted shockwave. Was it harmful?

Could it have been made better if in combination with something anti inflammatory like PRP, stem cell, or hyperbaric oxygen therapy.

So, I had a degree of corporal fibrosis after a period of injecting Trimix for severe and total ED caused by my radical prostatectomy in 2022. Confirmed by my uro surgeon who did both the prostatectomy and my implant procedure. Eventually I gave up on the injections as they no longer worked due to the build up of scar tissue. Various pills didn't work either. So I opted to try focal shockwave therapy with a well regarded practitioner, who is a great believer in that technology. However for me it didn't work at all, complete waste of time and money. I had floated the idea beforehand with my uro. He was very sceptical about it and said that a manufacturer had previously shown him the equipment. But he was not convinced that it would work, nor could they provide any clinical evidence of successful outcomes. I can't say that it was harmful, or caused further damage, but I think it would be difficult for a patient to make that assessment. After that failure I relied solely on the use of a VED up until my implant operation. Surgeon told me afterwards that he had to clean up some fibrosis/scar tissue during the procedure.

I can't comment on the other therapies as I have never had them or researched them. I'm not sure if all are commonly available in Australia for ED, although it's likely someone is doing them. I have a female friend who did have stem cell treatment for a knee issue some years ago.

Do you think the fibrosis was caused by the injections more so than the prostate surgery?
I’ve heard that shockwave is best suited for vasculogenic instead of neural causes of ED, but who knows. The unfortunate truth is I don’t hear nearly enough positive reviews to match how much it is promoted. Nonetheless, I have to consider it for lack of viable rehab options

[LGXDownunder]

I haven’t read too many positive testimonies about shockwave for people with severe ED. Moreover, I have heard of people attributing further damage to the shockwave treatment. Just to consolidate opinions, I’d like to hear about the people who have corporal fibrosis and have attempted shockwave. Was it harmful?

Could it have been made better if in combination with something anti inflammatory like PRP, stem cell, or hyperbaric oxygen therapy.

So, I had a degree of corporal fibrosis after a period of injecting Trimix for severe and total ED caused by my radical prostatectomy in 2022. Confirmed by my uro surgeon who did both the prostatectomy and my implant procedure. Eventually I gave up on the injections as they no longer worked due to the build up of scar tissue. Various pills didn't work either. So I opted to try focal shockwave therapy with a well regarded practitioner, who is a great believer in that technology. However for me it didn't work at all, complete waste of time and money. I had floated the idea beforehand with my uro. He was very sceptical about it and said that a manufacturer had previously shown him the equipment. But he was not convinced that it would work, nor could they provide any clinical evidence of successful outcomes. I can't say that it was harmful, or caused further damage, but I think it would be difficult for a patient to make that assessment. After that failure I relied solely on the use of a VED up until my implant operation. Surgeon told me afterwards that he had to clean up some fibrosis/scar tissue during the procedure.

I can't comment on the other therapies as I have never had them or researched them. I'm not sure if all are commonly available in Australia for ED, although it's likely someone is doing them. I have a female friend who did have stem cell treatment for a knee issue some years ago.

Do you think the fibrosis was caused by the injections more so than the prostate surgery?
I’ve heard that shockwave is best suited for vasculogenic instead of neural causes of ED, but who knows. The unfortunate truth is I don’t hear nearly enough positive reviews to match how much it is promoted. Nonetheless, I have to consider it for lack of viable rehab options

Difficult to say for certain but I'm leaning more towards the injections being the cause. I didn't start using the Trimix injections until probably at least 6 months after the prostate surgery. The symptoms of fibrosis started within a couple of months from then. I had a fairly short career of injecting because within a few months they had become completely unreliable then fairly quickly stopped working altogether. During that time I had my urologist physically check my corporal shaft, and he confirmed the existence of the fibrosis. His advice was to inject at a point further up from the base. I tried many locations after that but nothing worked and eventually I just gave up in total frustration. Then I moved on to just using a VED while experimenting with the shockwave therapy. Thinking about the amount of wasted time, money and total disappointment, in hindsight I wish I'd gone for an implant as soon as possible after my RRP.

Another potential treatment I didn't mention as it didn't go ahead - I had signed up for a clinical trial of electro acupuncture for post prostatectomy ED. This work is still underway afaik, being led by a PhD student at a leading local cancer treatment and research hospital. She is a clinical acupuncturist there. Unfortunately it is random selection and I ended up in the blind control group, so I wasn't able to have the actual treatment, only got to submit a few monthly reports so they could track against the treated patients. After the shockwave therapy failed I contacted her to enquire about treatment options. She offered to do the electro acupuncture on me as a private patient at a reasonable cost (though still not cheap). Eventually I decided against it after the disappointing outcome with the shockwave therapy. As a previous participant in the trial I'm assuming that I may receive the results once she finishes her thesis.