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Hi, Saw the urologist today for first visit and it left me pretty depressed. He focused on my Peyronie's Disease. Did an ultrasound and found two areas of calcification or something like that. He's put me on Trental which she either stop continuing calcification or maybe improve it a bit. He said there's a new enzyme drug before the FDA in Sept which will actually clear away all the plaque and whatever there is.

But I've had ED problems for years that have worsened. I asked about a shot and he emphasized how painful it is and that with my Peyronie's Disease it wouldn't help me more than an ED drug.

I asked about the cock ring I've been using and he said it might have made the whole problem worse. Might have. But without it and and ED drug I can't even jerk off to porn, forget about with a partner.

He said I could try the shot during that visit but kept emphasizing how painful it would be and how it probably wouldn't do more than an ED drug.

Right now I'm feeling kind of hopeless about it all. There's an anti depressant, cymbalta, which will improve my mood some but it kills whatever libido I have left.

I suffer from Chronic Fatigue Syndrome, which is much worse than the name sounds and it makes meeting people hard enough, but with a limp dick it makes it all that much harder. I know there are lots of understanding women out there but I'm GAY so

Nick

Raven,

Find another Uro. This guy doesn't know what he's talking about. The shots ARE NOT painful. When I mentioned it in my Uro's office, my Uro left the room and came back with a script. Even the nurse was positive on trimix, she gave me information on the local compounding pharmacies in my area. Good luck and let us know how things work out for you.

Yeah, the worse thing about the shots is the apprehension the first few times of sticking a needle into the side of your dick. Actually doing it is not a big deal.

Although you didn't really say this, was the doc against shots because you already have Peyronie's?

I origionally went to the Uro because I suspected a venous leak. However, before going through the Doppler test procedure he suggested I first try Trimix. When it actually worked, I asked him if tht ment I did not have a venous leak. He advised that the Trimix erections did not rule out a leak but may be generating enough additional blood flow to off-set the leak.

Accordingly, Trimix may be enough to overcome your plaque issue. I have to admit that the injections do involve a bit of a brief sting, but not what I would call painful.

Try a new Uro.

Guys,

Thanks for the support and encouragement. I rechecked my uro’s profile page at UCSF Med Center and it says he was one of the first uro’s to use penile infections for ED. So very puzzled why he emphasized the pain aspect so much. I got his email address and will write to ask him if that’s because there’s more pain if one has Peyronie’s Disease.

Still, I think I need to see another uro who’s got a better bedside manner in dealing with ED. Because if I let the doc give me a shot to see what it’s like I need someone gentle and reassuring or I’ll freak out.

I became used to giving myself shots for various CFS treatments, such as B-12. I was terrified at the idea back then but my CFS doc at the time was so good at giving me shots that he demonstrated how it can be painless. Once I began to give myself shots I’d occasionally do it not quite right and experience a small prick of pain. But by that point I knew how minor the pain was so I lost my fear. That’s what I’m hoping for with Trimex.

Does anyone here know a uro in the SF Bay Area? I’m not sure how to look other than via YELP which can be confusing.

Btw, the Peyronie’s drug he said would be approved by Sept is called “Xiaflex”. It’s already approved for another rare condition. I thought it would be a pill such as Trental which I just started but it’s shot and a series of shots in the area of the penis where the scarring or calcification occurs. So not something to look forward to at the moment.

Also, if anyone’s interested I found a great website/blog by a guy in Europe about all things Peyronie’s and treatments he’s tried:

http://www.mypeyronies.com/recommended- ... -plan.html

A very helpful conversation:

I saw my new allergist today and we got to talking about needles and shots. For some reason I told him I’d been diagnosed with Peyronie’s Disease and there was a new medication that may be available later this year but it involves a series of injections to penis directly into the placque buildup. And that sounded painful.

He says, Oh, it isn’t painful. I have ED and have been giving myself shots for years. I could have hugged him at that point. He’s in I dunno early 60s to early 70s and said he’s had ED for a very long time. I asked the name of his urologist but he doesn’t have one. just Rx’ed it for himself and gives himself shots. And he’d tried seeing a sex therapists, etc. and he finally realized it wasn’t really a psychological problem. Said he uses prostaglandin (sp?) and it’s never lost effectiveness.

So that clarifies a lot for me and I do have to find another ED friendly urologist asap.

http://www.elcaminourology.com/edwardkarpman.html
You will love Dr. Karpman. Tell him I sent you.
Paul

Sorry about your not so good visit with the uro. Maybe there is an understanding woman for you regardless of your perception of yourself. I posted to you in a different category about the possibility of your maybe having a leaky gut and that is the source of some of your problems. One "cure" is to take a good probiotic until your gut has a chance to heal. Google "leaky gut" and you can probably find some good info. As the French say "Bon courage" and stay hopeful.

I'm gay so an understanding woman is not quite what I need