Maybe get new doc who is more concerned about his patients instead of himself.
Thats the problem working with doctors in a small community, they start to get to big for thier own good.
neobladder without prostate
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jisherwood
- Posts: 51
- Joined: Fri May 04, 2018 11:41 am
Re: neobladder without prostate
If my mixture is on the low end, what should be asking for to be boosted up to?
Maybe get new doc who is more concerned about his patients instead of himself.
Thats the problem working with doctors in a small community, they start to get to big for thier own good.
Maybe get new doc who is more concerned about his patients instead of himself.
Thats the problem working with doctors in a small community, they start to get to big for thier own good.
64yrs, nerve sparring surgery Dec'17, neobladder with prostate removal because of bladder cancer, gave up on trimix, became bionic with AMS 700 CX June 2019. 
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bldoink
- Posts: 4057
- Joined: Mon Apr 03, 2017 12:58 am
- Location: Fl.
Re: neobladder without prostate
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Last edited by bldoink on Mon Jul 21, 2025 4:41 pm, edited 1 time in total.
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jisherwood
- Posts: 51
- Joined: Fri May 04, 2018 11:41 am
Re: neobladder without prostate
Well had my 3 month check up and all is looking really great 
Spoke to doc about low dosage Alprostadil-papaverneine-phentolamin
E MES. 8.33 MCG/ 22.5MG / 0.83 MG PER and mentioned that at last injection I did .6 ml and got a little better but nothing outstanding ... he mention I could go all the way up tp 1ml and this doesn’t produce anything then there is to do but wait another 6 month and maybe go with implants. I mentioned what about going to a stronger dose like 40/30/2 and his response was won’t do you any good! Does everyone think it time for a new doc?
I’m even thinking about contacting my surgeon @ UW and asking for his advise. Any ideas would be nice. With only 4urologist in town and they are all in the same practice and I have already gone through one of his associates I feel like I’m stuck between a rock and a hard spot. So the speak.
Spoke to doc about low dosage Alprostadil-papaverneine-phentolamin
E MES. 8.33 MCG/ 22.5MG / 0.83 MG PER and mentioned that at last injection I did .6 ml and got a little better but nothing outstanding
... he mention I could go all the way up tp 1ml and this doesn’t produce anything then there is to do but wait another 6 month and maybe go with implants. I mentioned what about going to a stronger dose like 40/30/2 and his response was won’t do you any good! Does everyone think it time for a new doc?I’m even thinking about contacting my surgeon @ UW and asking for his advise. Any ideas would be nice. With only 4urologist in town and they are all in the same practice and I have already gone through one of his associates I feel like I’m stuck between a rock and a hard spot. So the speak.
64yrs, nerve sparring surgery Dec'17, neobladder with prostate removal because of bladder cancer, gave up on trimix, became bionic with AMS 700 CX June 2019.
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bldoink
- Posts: 4057
- Joined: Mon Apr 03, 2017 12:58 am
- Location: Fl.
Re: neobladder without prostate
...
Last edited by bldoink on Mon Jul 21, 2025 4:42 pm, edited 1 time in total.
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jisherwood
- Posts: 51
- Joined: Fri May 04, 2018 11:41 am
Re: neobladder without prostate
You are absolutely correct as I have already spent the money and it would be good practice on injecting. Will post my results in the next several days 
64yrs, nerve sparring surgery Dec'17, neobladder with prostate removal because of bladder cancer, gave up on trimix, became bionic with AMS 700 CX June 2019.
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jisherwood
- Posts: 51
- Joined: Fri May 04, 2018 11:41 am
Re: neobladder without prostate
Well I had my last appointment on 6/21 and the results were not very good. I have moved up to 60 units and no nothing but a good feeling 
I spoke to doc at appointment and he mentioned if I goto 100 units and still nothing, then there is noting more to do but to maybe look at implants. I mentioned that maybe the mix needs to be increase to a stronger dosage but got no response from him. 
Currently going to be contacting my surgeon from UW Seattle and ask his opinion on my mix and see if he feels it can be increased. I really want my own personal towel rack back. I feel it would bring my mental status back up to normal.
I spoke to doc at appointment and he mentioned if I goto 100 units and still nothing, then there is noting more to do but to maybe look at implants. I mentioned that maybe the mix needs to be increase to a stronger dosage but got no response from him. Currently going to be contacting my surgeon from UW Seattle and ask his opinion on my mix and see if he feels it can be increased. I really want my own personal towel rack back. I feel it would bring my mental status back up to normal.
64yrs, nerve sparring surgery Dec'17, neobladder with prostate removal because of bladder cancer, gave up on trimix, became bionic with AMS 700 CX June 2019.
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