FrankTalk.org

I have run into a difficulty which I was not expecting and,to some extent I think it demonstrates the wide and differing professional opinions that abound in this very rough sea of ED.

Let me explain - 3 years ago,almost to the day I had a successful nerver sparing RP. Along with the majority of patients I started to realise ED had settled in (Nobody even gave me an inkling about this problem beforehand)!

Any way over the course of time the same route of CIalis,Levitra,Pump etc has been followed with little success save for the pump which does work and does the job it's meant to do. However I find the ring uncomfortable and I'm not to keen on the preparation required to get to "action stations" it rather kills off the chance of the spontaneity issue.

To be fair I had been offered injections but I'm one of those people who just hates them, indeed can't watch a simulated injection on TV! so I passed on that. But the offer was made by my surgeon who did not forsee any problems.

Having become desparate to attain erections in a quick and easy way I have screwed up my courage to try again.

Here in the UK the National Health Service is very go but you do get handed on to various "experts" from time to time. Indeed on my most recent appt - last week - I was told that the injections would probably not work for me because of the complication of my mild Type 2 Diabetes. Where did this come from all of a sudden.

I have now been told I have to see another "Specialist" in London for injection tests! He, apparently is the man who will discuss an implant with me should injections fail. It will take a minimum of two months before I see this guy!!

Right,to get to the point, as I understand it there are a lot of guys on this site who are very successful with injections despite their diabetes. Please if this applies to you and you do successfully inject would you be kind enough to drop me a short email at marquand29@gmail.com?

I do not intend to put up with this nonsense and cannot see why an injection test cannot be performed at my local uro dept.

As I say I would be most appreciative of any support my fellow members can give me in my crusade to get this sorted.

I also write to demonstrate how tortuous and varied the approach to treatment of ED is in this country..

Thank you in advance for your help.

Cotham - John Paul.

Righ

I am sorry to hear about your difficulties with getting injections. Seems like your doc should be the one to give them a go, since you were already in his office. To tell you he thought they would be complicated by your mild diabetes sounds like he was just passing the buck. In the overburdened medical system, it would make more sense to test the injections in his office since you're already there as opposed to scheduling yet another appt on someone elses calendar. I have DMII and it's not severe, but I do have peripheral neuropathy in my left foot...but my urologist who started me on injections also did my implant. My injections worked really well...I used them for 3 years following my robotic prostatectomy. Good luck in pursuing your injections and if you decide they're not for you, then getting your implant. I hope the system doesn't work against you.

Steve

All I can tell you is that after multiple tests and trial prescriptions of all three pills, my doctors (plural!) all agreed that my ED was caused by my diabetes. Once that was established, and once the oral meds had failed, my Internist (General Practicioner) sent me straight to the urologist who set me up with Trimix immediately.

The idea that Trimix might not work because of diabetes makes no sense at all. The whole rationiale of penile injection therapy is that the drugs "blast open" those tiny capillaries that feed blood into the penis, thus creating a volume of blood flow adequate for an erection. And what is one of the main causes of poor circulation anywhere in your body? Wait for it....DIABETES! In the words of that great philosopher Homer Simpson, "Doh".

If you were in the United States, I'd tell you to fire your urologist and go down the street to a different practice. Since you're in the UK, I have no idea how to make that system work to your advantage. Perhaps yours is a cautionary tale for Americans enamored with National Health Care.

You seem to be on the right track. Hang in there. Keep us posted. At the very least, we'll commiserate with you.

Greg
Baton Rouge

Greg -
Thanks for taking the time to reply to my rant.

You have born out my own feeling on this subject. I shall make sure I get action before the two to nine month wait.
I'm a fighter. What makes me so angry is there are people out there that don't know how to fight the system and get ridden over rough shod all the time.

This is very plain to me when I man our national help line for Prostate cancer here in UK.

Long letter has gone to local authorities which will be followed up with action on my side. It pays to become a pain in the backside... they treat you just to get rid of you!!

Will of course keep you posted.

Regards -

John Paul Cotham 876.

John Paul, I got a message about you from one of the fellow members and I recomended that Greg get in touch with you. Glad you guys made the connection.
By the way Antelope and I call each other friends.. we are neighbors.

Cajun Jeff

Thank you Jeff for doing that.

John Paul.