worst day of my life

The final frontier. Deciding when, if and how.
Jamie7891
Posts: 40
Joined: Sat Jun 09, 2018 6:43 pm

worst day of my life

Postby Jamie7891 » Thu Feb 20, 2020 12:00 am

IM IN FULL FREAK OUT MODE AND HEARTBROKEN


So this morning i pumped up my ams700 to full then next time i touch my penis 30 seconds later it was very soft

i thought maybe i bumped the deflate button but no the device has failed pump bulb staying depressed i can still click the valve and hear the popping sound
so i must have a massive leak and my ball sack looks completely full

i called the doc explained what happened and have an appointment tomorrow morning so obviously a revision is needed this was only put in as of August of 2018 less than 2 years and already failed very disappointed!!!!

this implant was a marriage saver for me and cant live without it on top on basic insurance which doesn't cover the device

my head it about to explode and don't know how to break the bad news to my wife as it was also expensive
31 year old :D tried pills for 5years
Trimix too painful and not spontaneous

Was implanted by dr katelaris on 13/8/18 in Sydney Adventist Hospital
With AMS 700 LGX 21cm & 3cm RTE
Revision failed pump
Dr katelaris on 23/3/2020

Waynetho
Posts: 1768
Joined: Wed Nov 27, 2019 11:22 pm
Location: Dallas, TX

Re: worst day of my life

Postby Waynetho » Thu Feb 20, 2020 12:12 am

Sorry, re-read your message again and understand better what you're saying - yes, it sounds like a leak if your scrotum filled up with saline. Hopefully the doctor can salvage the implant and fix the leak. Good luck!


Original response:
Common issue. You apparently pressed the deflate button while squeezing the bulb at some point which jams the valve.

Squeeze the block "End-to-End" and the bulb should refill. Then press the DEFLATE button. Then squeeze the bulb and it should inflate.
62yo, married 41 yrs. Urolift (x4) 8/12/19. AMS 700CX 15cm (no RTE) penoscrotal 10/28/19, Frisco, TX. PD 1995/ED 2011. Cialis helped but hinged. (1995)L:6/G:5.5+, (2019)Pre-op L:5/G:4.5, (2/2020)L:6.0/G:5.0

oneperson
Posts: 238
Joined: Tue Oct 22, 2019 10:54 am

Re: worst day of my life

Postby oneperson » Thu Feb 20, 2020 2:00 am

If is a device failure, the guarantee should cover it.

It's been only two years, and guarantee is 20 years.
Implanted September 12nd 2019. Coloplast Titan OTR 20 cm + 1 cm RTE. Dr Cruz (Spain). Liver transplanted. Born in 1967. ED since 24 in different degrees. Pills stopped working in March 2019. Injections caused much pain.

Pamen116
Posts: 280
Joined: Tue Dec 03, 2019 7:33 pm

Re: worst day of my life

Postby Pamen116 » Thu Feb 20, 2020 2:18 am

Jamie,

My thoughts and prayers are with you. Stay focused on the next step to get this resolved, whether that be gathering the funds somehow or just brainstorming how you’re going to get this fixed. Please stay focused, I’d say positive but I completely understand the feeling you would be feeling at the moment. That’s why I encourage you to just make a plan and start moving in that direction.

The world isn’t over, you’re still alive and there is still hope.

Cheers
30 yrs old. Current IPP failed in 2022. Waiting revision. No insurance. I’ve had both Titan & AMS.

oldbeek
Posts: 2547
Joined: Sun Sep 10, 2017 1:46 pm
Location: Los Angeles area

Re: worst day of my life

Postby oldbeek » Thu Feb 20, 2020 2:52 am

Sorry to hear this. The implant is still under warranty I think. Was your installed unit preassembled or did the doc do the connections? If you don't know, get hold of the AMS rep and find out. AMS has the serial# of every implant installed. May be a bad job of connecting the tubes by the doc. In that case you have a case for him doing a do over free. Let us know after dr visit.
82, good health, RP 7-2017, all nerves taken , PSA 0.05, 4-18,, .07 1/19,.05 4/19, .03 11-21, .04 11-23, implanted 4-1-18, Infra-pubic, AMS lgx 15 cm with 5cm rte. Implant at USC Keck. Dr Boyd and Dr Loh Doyle 6.5 x 5, 800 AUS 7-21-20

Greg1956
Posts: 1736
Joined: Sun Aug 06, 2017 8:35 am
Location: Atlanta, GA USA

Re: worst day of my life

Postby Greg1956 » Thu Feb 20, 2020 8:56 am

Sorry to hear this. I would like to tell you to calm down, but doubt I would be calm under those circumstances. My prayers are with you that it can be easily resolved. Keep us informed after you see your doctor. If you get any sense he is trying not to take ownership of something that could have been his fault, get a second opinion from a doctor with nothing at stake. Best wishes.
I am 64 and had ED from a VL. Implanted by Dr. Ronald Anglade in Atlanta on 9/18/17. I have an AMS700LGX 21 cm via a Penoscrotal incision. Very happy with results. 6" soft and 6 3/4” x 5 5/8” hard.

tomas1
Posts: 2003
Joined: Tue Jul 23, 2013 5:12 pm
Location: Tempe, AZ

Re: worst day of my life

Postby tomas1 » Thu Feb 20, 2020 1:35 pm

What a pain in the ass.
I've always worried about connections that aren't pre-assembled at the factory.
I'd guess the pump to reservoir tube probably needs to be connected by the doc?
There needs to be at least connection made post-implant to fill the system with saline.

Is it just my impression or does it seem surgeons like to work very fast, sometimes too fast?
86 years
Inject testosterone weekly.
Implant on 1/22/19 by Dr Avila.
Scrotal, hor. incision just over 1"
18cm AMS 700 CX, 3.5cm RTE 100cc res
Gleason 6 prostate cancer. Monitoring it for now.
Update: On my last biopsies the cancer wasn't found.

Lost Sheep
Posts: 6162
Joined: Mon Jul 04, 2016 11:16 pm

Re: worst day of my life

Postby Lost Sheep » Thu Feb 20, 2020 3:01 pm

tomas1 wrote:What a pain in the ass.
I've always worried about connections that aren't pre-assembled at the factory.
I'd guess the pump to reservoir tube probably needs to be connected by the doc?
There needs to be at least connection made post-implant to fill the system with saline.

Is it just my impression or does it seem surgeons like to work very fast, sometimes too fast?

My understanding is that AMS devices are pre-assembled at the factory.

The good news is that, the leak is very very likely in the scrotum, thus pulling the reservoir or implant may not be necessary, and even if it is, revisions are very commonly a lot easier on the patient than the first implant.

Best case scenario is that a connection failed, is easily identified and remediated. Second best is that the pump or pump bulb developed leak and the pump can be disconnected and replaced. Worst case scenario is that the entire implant needs to be replaced. But that will not be as bad as the virgin implant was.

Ask your surgeon how confident he(she) is in finding and fixing the (obviously it is a leak) the leak.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Waynetho
Posts: 1768
Joined: Wed Nov 27, 2019 11:22 pm
Location: Dallas, TX

Re: worst day of my life

Postby Waynetho » Thu Feb 20, 2020 3:20 pm

Lost Sheep wrote:]My understanding is that AMS devices are pre-assembled at the factory.


Actually they can come preassembled or as separate pieces as mine did. If you review my surgical notes you can see where the reservoir was placed in my body while they were prepping the cylinders for implantation elsewhere in the OR.

Also, I can feel all three quick connects under the skin, which I believe were also mentioned in the notes.
62yo, married 41 yrs. Urolift (x4) 8/12/19. AMS 700CX 15cm (no RTE) penoscrotal 10/28/19, Frisco, TX. PD 1995/ED 2011. Cialis helped but hinged. (1995)L:6/G:5.5+, (2019)Pre-op L:5/G:4.5, (2/2020)L:6.0/G:5.0

tomas1
Posts: 2003
Joined: Tue Jul 23, 2013 5:12 pm
Location: Tempe, AZ

Re: worst day of my life

Postby tomas1 » Thu Feb 20, 2020 5:29 pm

LS, would that mean the fluid would already be in the unit?
I really don't think it is since getting a reservoir in place would seem to be a problem.
I'll see if I find anything about this.
86 years
Inject testosterone weekly.
Implant on 1/22/19 by Dr Avila.
Scrotal, hor. incision just over 1"
18cm AMS 700 CX, 3.5cm RTE 100cc res
Gleason 6 prostate cancer. Monitoring it for now.
Update: On my last biopsies the cancer wasn't found.


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