Postby Cnidium » Fri Jun 10, 2022 5:59 pm
Update after visit with Eid:
Eid said my situation was incredibly rare and he couldnt think of the last time he saw this happen. He believes the most likely scenario is that scarring occurred around the dent on the left cylinder (years after the surgery) and that this is causing the cylinder to not inflate in a straight line. The second most probable scenario is a hernia of the left cylinder, which would cause the same symptoms.
Revision is an option, but he thinks that it may be tricky because he believes there may be fibrosis at the top of the left cylinder since it fills into the glans less than it did before (it still goes into the glans quite a ways, certainly not what people would considered undersized). This didnt make too much sense to me because i can think of a ton of people who had very undersized implants and they were able to get their sizes corrected in the future. Part of me thinks that he was trying to talk me out of the revision because, in his opinion (which may be entirely correct) he thinks that my condition is purely cosmetic. He did admit that it could be a possibility that my right tip would poke my partners, but since it didnt happen with my last one it would unlikely be the case for future ones. The biggest concern is any future worsening of my symptoms, which he wasn't really sure if it was possible or not.
When I asked him what the single biggest risk is of having a revision, his answer was infection, which is very very low. He said i dont have any risk of downsizing or coming out with less than i went in with.
We also talked about other surgeons. He thinks it is smart to get a second opinion from Billy Cordon, who is his favorite alternative to himself. He was hesitant about recommending Hakky or Perito, which I understand. He did, however, recommend Perito if I was interested in UroFill. He said he has actually referred a ton of people to Perito for UroFill because he thinks Perito has the best experience in it.
My plans moving forward: I will likely get the revision because I am not happy with the curvature. I would like the implant to be the way it was for the first 2 years after surgery. I am going to get a second (virtual) opinion from Billy Cordon and talk to Perito about UroFill. Eid said that getting UroFill would not impede or cause any problems if I decided to get the implant revision afterwards. After these 2 meetings I will make a final decision. Eid said to plan for $20k for the revision, but it may be less if he can prove something was defective with the implant. I'm fine with $20k.
Biggest lesson: Eid did admit that my 3-4 month span of not inflating may have caused my tunica wall on the left side to weaken since that is where my scarring was pre-op in years ago. However, he still said that this would be very rare and, during our virtual meeting in January, he didnt think that was even an option then. Therefore, moving forward, I think I am going to keep cycling permanently. This isn't something I will do everyday, but maybe something like 3 days a week. Given my unique situation/anatomy, I feel that this may prevent similar situations in the future. I will also try to speak to Perito about this modeling technique, but I understand he may not tell me since I'm not an actual implant patient of his. If that is the case, then I will discuss the Perito method further with some of his patients on FT.
Let me know what you gents think, I am open to suggestions and opinions.
Titan OTR. Dr. Hakky - successful surgery and very happy with outcome.
My advice: choose a world-class surgeon and make yourself the healthiest you can.
