Starting to get cold feet a bit what do you guys think?

The final frontier. Deciding when, if and how.
Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Tue Mar 14, 2023 11:21 pm

aussiePeyronies wrote:
Hillywilly wrote:Thank you Everyone. After some thought I think I will keep my surgery date on the books for now and maybe cancel last minute if I think it is a bad call. I think it is worth losing the $300 deposit. My plan is to get a 2nd opinion doppler on the 28th, based on that I may cancel or keep my surgery on the 4th but regardless I think I'll go see hakky for another doppler and perhaps an experimental stem cell treatment he offers. I think the problem is as leading urologist doctor Trost puts it is this:

"only a few therapies have been studied as it relates to hourglass. In my experience, here are ones which make some difference:

1 - Penile prosthesis. This definitely fixes the underlying issue. The only problem is that it will replace the person's underlying ability to achieve a spontaneous erection. Because of that, it's a great therapy for someone in their 70's, but a poor choice (in my opinion) for someone in their 40-50's who otherwise have good erectile function.

2 - Traction. In our first randomized trial where we looked at the efficacy of Restorex (https://pubmed.ncbi.nlm.nih.gov/30916626/) we found (Table 4) that 54% of men who had indentation or hourglass deformities reported that they felt that traction had improved the condition. That number broke down into 27% who felt that it was a minimal improvement, 20% moderate improvement, and 7% significant improvement. These men had done treatment for 3 months, and in the study we only recommended counterbending against the primary curve. But since then, I have been recommending that patients use the device straight + every direction except for the direction of their curves. In other words, if someone had an up curve, they would do 10 min straight, 10 down, 10 right, 10 left. My thinking is that we want to try to stretch it out in all directions if possible. To date, and to my knowledge, there aren't any studies evaluating hourglass among the 1st generation traction devices (otherwise, I would include it here too).

3 - Extratunical grafting. This is a newer procedure which has shown benefits. We just finished a video which goes into this and shows how it is done with a digital animation (https://malefertilityandpeyroniesclinic ... ia/videos/) or https://www.youtube.com/watch?v=dmdi2s_L9Uw. I only recommend this in cases where the hourglass is moderate to severe though and never recommend it for mild cases since it's very difficult to get the aesthetics exactly right. "

I only have mild hour glass so the only therapies open to me (that are not experimental ) are 1 &2. Hopefully I will soon find some answers.


Hilly, just to add, and this is anecdotal, in the PD forum, many members found the 3 cylinder VED to help a lot with hourglass. You could try it out for 3 months as an alternative if you aren't ready for surgery.

We are similar ages, I am implanted now, and although I am in recovery, I am liking it. However, I could not have sex or masturbation at all pre-implant.

Hope this helps.
J


Yeah it is helpful. I think all my erectile tissue Is good except below the top just below the glans and left side. Calcified plaque there and narrowing. Extraordinarily depressed and anxious about the whole situation which I think could be contributing? But wouldn’t I still get good erections by myself? Got a “sec therapist” but they seem more interested in treating me for sex addiction which makes me feel worse wish I could be getting hard enough erections to have a sex addiction.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

misterecz
Posts: 113
Joined: Thu Dec 15, 2022 1:42 am
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Re: Starting to get cold feet a bit what do you guys think?

Postby misterecz » Wed Mar 15, 2023 12:59 am

VED for 10 minutes is nothing. What pressure are you reaching?
I personally pump for 30min every day and reach 10hg. It took me a few months to get up to that but it has helped a lot with my girth.
Why are you scared of injections? They're amazing. I use injections and even as a single guy using injections is awesome. Just keep them in the freezer most of the time and put them in the fridge when i think i'm gonna get lucky.
If i go out or go to a girl's place i put them in an ice pouch for the car ride and have a syringe container and put one in my pocket. Works great.

It's a small prick and also over time it will help increase girth. Also for traction studies find that the most effective is when done for several hours a day. I def would suggest a vacuum cup device because they are more comfortable and don't constrict blood.
Peyronie's From Rough Sex in 2020.
Developed Erectile Dysfunction, Dorsal, & Lateral Curvature.
Treated With Traction, VED, DMSO, & PGE1.
YouTube Channel: https://www.youtube.com/@mrecz

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Wed Mar 15, 2023 11:15 am

misterecz wrote:VED for 10 minutes is nothing. What pressure are you reaching?
I personally pump for 30min every day and reach 10hg. It took me a few months to get up to that but it has helped a lot with my girth.
Why are you scared of injections? They're amazing. I use injections and even as a single guy using injections is awesome. Just keep them in the freezer most of the time and put them in the fridge when i think i'm gonna get lucky.
If i go out or go to a girl's place i put them in an ice pouch for the car ride and have a syringe container and put one in my pocket. Works great.

It's a small prick and also over time it will help increase girth. Also for traction studies find that the most effective is when done for several hours a day. I def would suggest a vacuum cup device because they are more comfortable and don't constrict blood.



I spent $300 for a nice device and was really disappointed because it doesn't have a pressure gauge. 10 mins daily is just what Hakky told me to do go up to full hard hold 2 mins release 5 cycles so probably more like 20 mins of cycling.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

ThailandBound
Posts: 966
Joined: Fri Dec 16, 2022 5:32 pm

Re: Starting to get cold feet a bit what do you guys think?

Postby ThailandBound » Wed Mar 15, 2023 11:40 am

Hillywilly wrote:
misterecz wrote:VED for 10 minutes is nothing. What pressure are you reaching?
I personally pump for 30min every day and reach 10hg. It took me a few months to get up to that but it has helped a lot with my girth.
Why are you scared of injections? They're amazing. I use injections and even as a single guy using injections is awesome. Just keep them in the freezer most of the time and put them in the fridge when i think i'm gonna get lucky.
If i go out or go to a girl's place i put them in an ice pouch for the car ride and have a syringe container and put one in my pocket. Works great.

It's a small prick and also over time it will help increase girth. Also for traction studies find that the most effective is when done for several hours a day. I def would suggest a vacuum cup device because they are more comfortable and don't constrict blood.


HB, do you pump after inflated or while flaccid? I am concerned about pumping flaccid because i wonder if the vacuum pressure on my uninflated cylinders might not be good for them, since they’re designed to stretch from within, hydraulically. I don’t know.
I spent $300 for a nice device and was really disappointed because it doesn't have a pressure gauge. 10 mins daily is just what Hakky told me to do go up to full hard hold 2 mins release 5 cycles so probably more like 20 mins of cycling.
Active, athletic 63 years old. Sexually, still 33 in my mind and spirit. Pills and injections all worked, until they didn’t. Diagnosed with veinous leakage in 2022. Coloplast Titan. 22 CM. No RTE. Peno-scrotal. Implanted 1/4/23. Dr. Clavell.

FinallyBionic
Posts: 366
Joined: Fri Jul 22, 2022 8:12 am

Re: Starting to get cold feet a bit what do you guys think?

Postby FinallyBionic » Wed Mar 15, 2023 12:03 pm

Hillywilly wrote:Thank you Everyone. After some thought I think I will keep my surgery date on the books for now and maybe cancel last minute if I think it is a bad call. I think it is worth losing the $300 deposit. My plan is to get a 2nd opinion doppler on the 28th, based on that I may cancel or keep my surgery on the 4th but regardless I think I'll go see hakky for another doppler and perhaps an experimental stem cell treatment he offers. I think the problem is as leading urologist doctor Trost puts it is this:

"only a few therapies have been studied as it relates to hourglass. In my experience, here are ones which make some difference:

1 - Penile prosthesis. This definitely fixes the underlying issue. The only problem is that it will replace the person's underlying ability to achieve a spontaneous erection. Because of that, it's a great therapy for someone in their 70's, but a poor choice (in my opinion) for someone in their 40-50's who otherwise have good erectile function.

2 - Traction. In our first randomized trial where we looked at the efficacy of Restorex (https://pubmed.ncbi.nlm.nih.gov/30916626/) we found (Table 4) that 54% of men who had indentation or hourglass deformities reported that they felt that traction had improved the condition. That number broke down into 27% who felt that it was a minimal improvement, 20% moderate improvement, and 7% significant improvement. These men had done treatment for 3 months, and in the study we only recommended counterbending against the primary curve. But since then, I have been recommending that patients use the device straight + every direction except for the direction of their curves. In other words, if someone had an up curve, they would do 10 min straight, 10 down, 10 right, 10 left. My thinking is that we want to try to stretch it out in all directions if possible. To date, and to my knowledge, there aren't any studies evaluating hourglass among the 1st generation traction devices (otherwise, I would include it here too).

3 - Extratunical grafting. This is a newer procedure which has shown benefits. We just finished a video which goes into this and shows how it is done with a digital animation (https://malefertilityandpeyroniesclinic ... ia/videos/) or https://www.youtube.com/watch?v=dmdi2s_L9Uw. I only recommend this in cases where the hourglass is moderate to severe though and never recommend it for mild cases since it's very difficult to get the aesthetics exactly right. "

I only have mild hour glass so the only therapies open to me (that are not experimental ) are 1 &2. Hopefully I will soon find some answers.

I agree with GT1956. Work it out with your surgeon. Tell him about your doubt on the surgery and about your hopes that you can recover without the implant.
Cancelling 3 or 4 days before your surgery date will result in $300 loss from your side but the surgeon will lose around $20k, as they can not fill your place in less than a week. You will not leave a good impression.
The other option suggested by GT is also excellent. You can request it from your surgeon and let him work on a plan with you during the period before your revised date.
Finally Bionic
1969. RP Oct. 2017. Pills and Trimix didn't work. Inguinal hernia repair on both sides. AMS CX 21 cm+1 RTE, by Dr. Kai Li at Kaiser, VA, Jan. 2021. FT member since July 2020 as AST2123. See my previous 457 posts.

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Wed Mar 15, 2023 5:26 pm

FinallyBionic wrote:
Hillywilly wrote:Thank you Everyone. After some thought I think I will keep my surgery date on the books for now and maybe cancel last minute if I think it is a bad call. I think it is worth losing the $300 deposit. My plan is to get a 2nd opinion doppler on the 28th, based on that I may cancel or keep my surgery on the 4th but regardless I think I'll go see hakky for another doppler and perhaps an experimental stem cell treatment he offers. I think the problem is as leading urologist doctor Trost puts it is this:

"only a few therapies have been studied as it relates to hourglass. In my experience, here are ones which make some difference:

1 - Penile prosthesis. This definitely fixes the underlying issue. The only problem is that it will replace the person's underlying ability to achieve a spontaneous erection. Because of that, it's a great therapy for someone in their 70's, but a poor choice (in my opinion) for someone in their 40-50's who otherwise have good erectile function.

2 - Traction. In our first randomized trial where we looked at the efficacy of Restorex (https://pubmed.ncbi.nlm.nih.gov/30916626/) we found (Table 4) that 54% of men who had indentation or hourglass deformities reported that they felt that traction had improved the condition. That number broke down into 27% who felt that it was a minimal improvement, 20% moderate improvement, and 7% significant improvement. These men had done treatment for 3 months, and in the study we only recommended counterbending against the primary curve. But since then, I have been recommending that patients use the device straight + every direction except for the direction of their curves. In other words, if someone had an up curve, they would do 10 min straight, 10 down, 10 right, 10 left. My thinking is that we want to try to stretch it out in all directions if possible. To date, and to my knowledge, there aren't any studies evaluating hourglass among the 1st generation traction devices (otherwise, I would include it here too).

3 - Extratunical grafting. This is a newer procedure which has shown benefits. We just finished a video which goes into this and shows how it is done with a digital animation (https://malefertilityandpeyroniesclinic ... ia/videos/) or https://www.youtube.com/watch?v=dmdi2s_L9Uw. I only recommend this in cases where the hourglass is moderate to severe though and never recommend it for mild cases since it's very difficult to get the aesthetics exactly right. "

I only have mild hour glass so the only therapies open to me (that are not experimental ) are 1 &2. Hopefully I will soon find some answers.

I agree with GT1956. Work it out with your surgeon. Tell him about your doubt on the surgery and about your hopes that you can recover without the implant.
Cancelling 3 or 4 days before your surgery date will result in $300 loss from your side but the surgeon will lose around $20k, as they can not fill your place in less than a week. You will not leave a good impression.
The other option suggested by GT is also excellent. You can request it from your surgeon and let him work on a plan with you during the period before your revised date.


Well deadline for my deposit was yesterday. I guess i'll think it over a little more and maybe email his office tomorrow and see if I can keep my diagnostic (ultrasound) appointment and tell them I just need to know if they think improvement is unlikely or not and I think I have to physically be in Atlanta for them to make that call. Just hate the idea of having to wait another month for surgery.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

misterecz
Posts: 113
Joined: Thu Dec 15, 2022 1:42 am
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Re: Starting to get cold feet a bit what do you guys think?

Postby misterecz » Wed Mar 15, 2023 7:19 pm

I highly suggest you first try out injections. They were a game changer for me. I really thought I was going to get an implant. Went to Dr. Eid and he prescribed me injections.
It has also rehabilitated my penis and made it bigger. And now I can have sex even with just Cialis. Not saying this WILL happen to you, but wouldn't hurt to try at least.
In the meantime you can use a VED and traction to make the penis longer to get the longest possible cylinders.
Peyronie's From Rough Sex in 2020.
Developed Erectile Dysfunction, Dorsal, & Lateral Curvature.
Treated With Traction, VED, DMSO, & PGE1.
YouTube Channel: https://www.youtube.com/@mrecz

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Fri Mar 17, 2023 9:21 am

PSSDorAmINormal wrote:
Hillywilly wrote:
PSSDorAmINormal wrote:


Okay so help me figure this out. How can a person jerk all day, or have prolonged sex all the while on a vasoconstrictor. Wouldn't that be like flaccid and contricted.

I thought it was vasodilators that people want for bloodflow


You got it. Wasn't hard the whole time but I would go through various states or arousal flaccid, semi, fully erect usually in order and I would slow the strokes and repeat until the eventually epic orgasm which would be the best feeling imaginable 1000x more intense than a normal orgasm.

but point is rubbing semi and flaccid was putting pressure and injuring the tunica.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Sat Mar 18, 2023 9:13 pm

WatNext wrote:I'm just going to put this out there, having gone through a fair bit of shit and seeing others going through the same. Be very careful of self diagnosis. Your mind can do very funny things when stressed and worried and the last thing you want to do is jump into something if you don't have to.

Its way too easy to convince yourself there is something wrong just because you have done something you believe contributed to it. "Correlation doesn't imply causation".

Make sure you try every avenue possible before the implant. Try more cardio. Test for testosterone. Get bloods done to check vitamin deficiencies. Are you depressed (do you need medication for this). Eat healthy. Fuck alcohol right off and any drugs.

All of these can contribute to ED. If after all of this you still have problems, an implant is a very good last resort....many argue better than pills of which i happen to agree with.


Solid advise. My dick looks good and actually gets quite hard in the standing position. Laying down and masterbating though.. things are abnormal it is not getting firm enough. Test levels checked last week and are good. Still have the surgery set and two doppler’s. Been pretty depressed last 6 months though hard to imagine it could effect me to this degree. Two dopplers set soon hopefully I can get this situation behind me.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

Eharrison
Posts: 29
Joined: Thu Apr 21, 2022 4:33 pm

Re: Starting to get cold feet a bit what do you guys think?

Postby Eharrison » Sun Mar 19, 2023 9:13 am

Dr Hakky did mine in December 2022 and the first 5 weeks were rough, but I'm so happy I got it done. I have no regrets and I'm having the best sex of my life. All performance anxiety is gone and my wife is happy. I had my prostate removed Feb of 2022 and the only way I could get an erection was with Trimix and it was unpredictable. The implant is so much better and we can have sex anytime, anywhere, for as long as she wants. I'm one happy customer. Hakky is the best!
Age 63 Robotic PR 2/2022, struggling with ED before RP, pills don't work, trimix not consistent.
Titan XL 24cm Dr Hakky Atlanta. Married 43 years to a beautiful sexy wife.


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