aussiePeyronies wrote:Hillywilly wrote:Thank you Everyone. After some thought I think I will keep my surgery date on the books for now and maybe cancel last minute if I think it is a bad call. I think it is worth losing the $300 deposit. My plan is to get a 2nd opinion doppler on the 28th, based on that I may cancel or keep my surgery on the 4th but regardless I think I'll go see hakky for another doppler and perhaps an experimental stem cell treatment he offers. I think the problem is as leading urologist doctor Trost puts it is this:
"only a few therapies have been studied as it relates to hourglass. In my experience, here are ones which make some difference:
1 - Penile prosthesis. This definitely fixes the underlying issue. The only problem is that it will replace the person's underlying ability to achieve a spontaneous erection. Because of that, it's a great therapy for someone in their 70's, but a poor choice (in my opinion) for someone in their 40-50's who otherwise have good erectile function.
2 - Traction. In our first randomized trial where we looked at the efficacy of Restorex (https://pubmed.ncbi.nlm.nih.gov/30916626/) we found (Table 4) that 54% of men who had indentation or hourglass deformities reported that they felt that traction had improved the condition. That number broke down into 27% who felt that it was a minimal improvement, 20% moderate improvement, and 7% significant improvement. These men had done treatment for 3 months, and in the study we only recommended counterbending against the primary curve. But since then, I have been recommending that patients use the device straight + every direction except for the direction of their curves. In other words, if someone had an up curve, they would do 10 min straight, 10 down, 10 right, 10 left. My thinking is that we want to try to stretch it out in all directions if possible. To date, and to my knowledge, there aren't any studies evaluating hourglass among the 1st generation traction devices (otherwise, I would include it here too).
3 - Extratunical grafting. This is a newer procedure which has shown benefits. We just finished a video which goes into this and shows how it is done with a digital animation (https://malefertilityandpeyroniesclinic ... ia/videos/) or https://www.youtube.com/watch?v=dmdi2s_L9Uw. I only recommend this in cases where the hourglass is moderate to severe though and never recommend it for mild cases since it's very difficult to get the aesthetics exactly right. "
I only have mild hour glass so the only therapies open to me (that are not experimental ) are 1 &2. Hopefully I will soon find some answers.
Hilly, just to add, and this is anecdotal, in the PD forum, many members found the 3 cylinder VED to help a lot with hourglass. You could try it out for 3 months as an alternative if you aren't ready for surgery.
We are similar ages, I am implanted now, and although I am in recovery, I am liking it. However, I could not have sex or masturbation at all pre-implant.
Hope this helps.
J
Yeah it is helpful. I think all my erectile tissue Is good except below the top just below the glans and left side. Calcified plaque there and narrowing. Extraordinarily depressed and anxious about the whole situation which I think could be contributing? But wouldn’t I still get good erections by myself? Got a “sec therapist” but they seem more interested in treating me for sex addiction which makes me feel worse wish I could be getting hard enough erections to have a sex addiction.