Monday is the day I restore what prostate cancer took from me

The final frontier. Deciding when, if and how.
Shueswim
Posts: 6
Joined: Sun Sep 25, 2016 11:08 am

Re: Monday is the day I restore what prostate cancer took from me

Postby Shueswim » Sat Nov 18, 2023 3:27 pm

cth524 wrote:Shueswim let me know how it works out. I am planning for next year with him or Parker. Carrion is the leading one though


Carrion was great as was Tampa General. I've been really surprised by the lack of pain. Still a long way to go...but no complaints so far.

Iwillbeatpd
Posts: 101
Joined: Sun Sep 24, 2023 11:43 am

Re: Monday is the day I restore what prostate cancer took from me

Postby Iwillbeatpd » Sun Nov 19, 2023 11:00 pm

Glad to hear all went well and that pain in manageable, how much Tylenol are you taking? I’m hoping to avoid the hard pain meds as well. Did they advise to take Tylenol over ibuprofen?
Fit/active/37/ Lifetime congenital left curve, which later progressed to Peyronies (2022) and severe hourglass/narrowing. Implanted by Dr Hakky 11/28/23 with Titan Touch 26 cm XXL. Reservoir 130 cc saline. Pre surgery measurement: 8.25 Length 5ish Girth.

FinallyBionic
Posts: 366
Joined: Fri Jul 22, 2022 8:12 am

Re: Monday is the day I restore what prostate cancer took from me

Postby FinallyBionic » Mon Nov 20, 2023 9:52 am

Shueswim,
All the best with your new implant.
I believe testosterone affects sex drive. High testosterone increases desire for sex and frequency, but with the implant you will still enjoy sex, as it is directly related to the reaction of your partner.
My advice is to not get back to exercise activity without the consent of your doctor. You don't want to get herniated, which will be hard to fix.
Finally Bionic
1969. RP Oct. 2017. Pills and Trimix didn't work. Inguinal hernia repair on both sides. AMS CX 21 cm+1 RTE, by Dr. Kai Li at Kaiser, VA, Jan. 2021. FT member since July 2020 as AST2123. See my previous 457 posts.

shrunken_dick
Posts: 225
Joined: Mon Nov 23, 2020 12:50 pm

Re: Monday is the day I restore what prostate cancer took from me

Postby shrunken_dick » Mon Nov 20, 2023 9:58 am

Shueswim wrote:
cth524 wrote:Shueswim let me know how it works out. I am planning for next year with him or Parker. Carrion is the leading one though


Carrion was great as was Tampa General. I've been really surprised by the lack of pain. Still a long way to go...but no complaints so far.

Did you lose any length because of erectile dysfunction?
I ( 29 M) took Spironolactone 400 mg to treat my hair loss. As a result, the penis shrunk from 6” to 4”. with Severe erectile dysfunction. Looking into the penile implant with Sliding Technique.

Old Guy
Posts: 2706
Joined: Tue Mar 31, 2020 4:31 pm
Location: Ohio

Re: Monday is the day I restore what prostate cancer took from me

Postby Old Guy » Mon Nov 20, 2023 3:10 pm

Shueswim wrote:
A couple questions as I enter the post surgery phase:
- I went in expecting a "chubby" and I certainly have one. What percentage of the implant fluid is in the implant at this phase of the process? I've seen some references to 60%, is that accurate?
- Once I go back for my follow up in a month I assume that's when the cycling begins and full capacity of the implant is reached in time. How long does that take and is that an uncomfortable process?


A chubby is what you'll have for a few months. I was left 60% inflated for 5 1/2 weeks. Your new flaccid will be a semi-erection. At your one month follow up if doc allows you to begin cycling (inflate & deflate) that will be the beginning of regaining size and getting used to your new part. Most guys cycle for 6 months or more. Cycle means inflate daily for 30 minutes or longer.
Nov. 8, 2019
4+ years, Coloplast Titan OTR
Married 36 years to my beautiful young bride
Always here to answer questions if you PM me

BelleBite
Posts: 58
Joined: Fri Jun 10, 2022 10:40 pm
Location: New York City

Re: Monday is the day I restore what prostate cancer took from me

Postby BelleBite » Tue Nov 21, 2023 3:48 pm

Iwillbeatpd - My implant was 12 days ago. I took one percoset the night following surgery and since then nothing but perhaps some tylenol if the cycling gets too achey. Pain has not really been an issue.
72 radical prostatectomy surgery at MSKCC. Implanted Nov 2023 w/Dr Eid. Titan Coloplast.

Alex258
Posts: 198
Joined: Thu Feb 02, 2023 8:17 pm

Re: Monday is the day I restore what prostate cancer took from me

Postby Alex258 » Thu Nov 23, 2023 1:34 pm

Shueswim wrote:So…here’s my story in a nutshell. I was diagnosed with aggressive prostate cancer in 2016 and had a prostatectomy later that year. No natural erections since then. Vacuum, bimix, trimix all used with limited success for about three years and then I just gave up. It didn’t help that the cancer has returned twice since then necessitating radiation treatments and worst of all, androgen deprivation therapy - also known as chemical castration. The bad news was that I couldn’t have sex with my wife, the “good” news was that I really didn’t care because I had no testosterone and no libido. But, I know that my wife of 44 years, with whom I always had a great sex life up until 2016, did care. So I decided to finally do something about it.

Monday morning I’ll have the implant procedure with Dr Carrion in Tampa FL. I’ll admit to being a little nervous but this site has helped prepare me for what’s ahead. I am concerned that this is a lot to go through without the desire for sex and with unknown future as a stage 4 cancer patient. But the truth is none of us know our future - worst case it restores some intimacy to the marriage and brings joy to my wife.


My story is pretty close to yours. Out of the blue checkup and rushed to surgery headed towards stage 4. Prostrate removal and 3 very sad years with ED where my turtle head was 1.5 inches at best. Trimix etc was awful and not overly effective. I'm 1 year in and almost back to my 6 inch length and Girth which was my original size. I still have cancer left behind and I take orgovyx which has brought and kept my testosterone levels to almost zero. I was one to always say pre-op that my drive will always be there and this implant is the best thing I've done for myself, it feels completely natural and the only problem is......I want sex all the time. How did your surgery go? Which did you choose? I have Coloplast Titan. I'm finding that the pump is helping as well along with cycling. my recovery was very difficult but it was just a matter of doign rehab and time. GL to ya.

Shueswim
Posts: 6
Joined: Sun Sep 25, 2016 11:08 am

Re: Monday is the day I restore what prostate cancer took from me

Postby Shueswim » Thu Nov 23, 2023 10:50 pm

Alex258 wrote:
Shueswim wrote:So…here’s my story in a nutshell. I was diagnosed with aggressive prostate cancer in 2016 and had a prostatectomy later that year. No natural erections since then. Vacuum, bimix, trimix all used with limited success for about three years and then I just gave up. It didn’t help that the cancer has returned twice since then necessitating radiation treatments and worst of all, androgen deprivation therapy - also known as chemical castration. The bad news was that I couldn’t have sex with my wife, the “good” news was that I really didn’t care because I had no testosterone and no libido. But, I know that my wife of 44 years, with whom I always had a great sex life up until 2016, did care. So I decided to finally do something about it.

Monday morning I’ll have the implant procedure with Dr Carrion in Tampa FL. I’ll admit to being a little nervous but this site has helped prepare me for what’s ahead. I am concerned that this is a lot to go through without the desire for sex and with unknown future as a stage 4 cancer patient. But the truth is none of us know our future - worst case it restores some intimacy to the marriage and brings joy to my wife.


My story is pretty close to yours. Out of the blue checkup and rushed to surgery headed towards stage 4. Prostrate removal and 3 very sad years with ED where my turtle head was 1.5 inches at best. Trimix etc was awful and not overly effective. I'm 1 year in and almost back to my 6 inch length and Girth which was my original size. I still have cancer left behind and I take orgovyx which has brought and kept my testosterone levels to almost zero. I was one to always say pre-op that my drive will always be there and this implant is the best thing I've done for myself, it feels completely natural and the only problem is......I want sex all the time. How did your surgery go? Which did you choose? I have Coloplast Titan. I'm finding that the pump is helping as well along with cycling. my recovery was very difficult but it was just a matter of doign rehab and time. GL to ya.


I have the Coloplast Titan as well. Little to no pain. 3 weeks until I have my follow-up so it'll be a while before cycling begins. It's probably a good thing because I've begun feeling around for the pump and it seems to be resting off to the right rather than in the middle...and very close to the right testicle. I can feel the "bulb" but can't imagine trying to squeeze it anytime soon. Ditto with the release value, its so close to tender areas that I want to think about trying to squeeze it.

Alex258
Posts: 198
Joined: Thu Feb 02, 2023 8:17 pm

Re: Monday is the day I restore what prostate cancer took from me

Postby Alex258 » Fri Nov 24, 2023 1:52 pm

Shueswim wrote:
Alex258 wrote:
Shueswim wrote:So…here’s my story in a nutshell. I was diagnosed with aggressive prostate cancer in 2016 and had a prostatectomy later that year. No natural erections since then. Vacuum, bimix, trimix all used with limited success for about three years and then I just gave up. It didn’t help that the cancer has returned twice since then necessitating radiation treatments and worst of all, androgen deprivation therapy - also known as chemical castration. The bad news was that I couldn’t have sex with my wife, the “good” news was that I really didn’t care because I had no testosterone and no libido. But, I know that my wife of 44 years, with whom I always had a great sex life up until 2016, did care. So I decided to finally do something about it.

Monday morning I’ll have the implant procedure with Dr Carrion in Tampa FL. I’ll admit to being a little nervous but this site has helped prepare me for what’s ahead. I am concerned that this is a lot to go through without the desire for sex and with unknown future as a stage 4 cancer patient. But the truth is none of us know our future - worst case it restores some intimacy to the marriage and brings joy to my wife.


My story is pretty close to yours. Out of the blue checkup and rushed to surgery headed towards stage 4. Prostrate removal and 3 very sad years with ED where my turtle head was 1.5 inches at best. Trimix etc was awful and not overly effective. I'm 1 year in and almost back to my 6 inch length and Girth which was my original size. I still have cancer left behind and I take orgovyx which has brought and kept my testosterone levels to almost zero. I was one to always say pre-op that my drive will always be there and this implant is the best thing I've done for myself, it feels completely natural and the only problem is......I want sex all the time. How did your surgery go? Which did you choose? I have Coloplast Titan. I'm finding that the pump is helping as well along with cycling. my recovery was very difficult but it was just a matter of doign rehab and time. GL to ya.


I have the Coloplast Titan as well. Little to no pain. 3 weeks until I have my follow-up so it'll be a while before cycling begins. It's probably a good thing because I've begun feeling around for the pump and it seems to be resting off to the right rather than in the middle...and very close to the right testicle. I can feel the "bulb" but can't imagine trying to squeeze it anytime soon. Ditto with the release value, its so close to tender areas that I want to think about trying to squeeze it.


Squeezing the bulb will seem impossible. I remember when it as rock hard. In time it will be so easy to use. Sometimes I have to reposition the bulb when I'm looking for the release valves which is no biggy and often, it isn't as "One Touch" as advertised. I suppose its different for everyone. Bit annoying but always get it down.


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