Implant + TEP procedure Journal - 34yr old Australian
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- Posts: 41
- Joined: Mon Sep 30, 2024 4:03 am
Re: Implant + TEP procedure Journal - 34yr old Australian
Love that it’s working out for you so well in the end, mate. Have to say your report had me scared a bit but seems like you’re happy now.
Re: Implant + TEP procedure Journal - 34yr old Australian
aussiePeyronies wrote:Hey guys,
Bout to hit 1 year from my revision surgery (partial revision) and 17 months from my initial surgery.
I do have some good news, here are my dimensions (see pics):
L: Just over 6.5 inches (BPEL)
G: Just about 6inches (5.8 or 5.9? We use cms in Australia, hopefully I have measured correctly).
Just before surgery, I was 6.5 inches length and I never measured girth, however, I have included a pic from before surgery, in the third pic, you can see, the penis was quite narrowed out, especially at the base. I can confidently say, this looks like some significant girth gain. I was 5.3 inches girth and 5.75 inches length 8 weeks post-surgery (see beginning of this journal).
I am pretty happy with these dimensions. Thing is, almost 1.5 years post surgery, I am still getting pain when cycling, and the device seems to still be growing, albeit, very slowly. My completely layman and unprofessional guess, is that there was a lot of scar tissue and narrowing in my penis which is still stretching and/or due to the retracted graft on one side; growth is slower as one side is not stretching/inflating as much as it normally would be. It seems that, if the tissue can grow, and you keep cycling regularly; it will grow.
I have been cycling 1 hour twice a day. Most of my progress came within the last few months when I started this regime. I am thinking of switching to 30m VED and 30m Perito exercises soon. Simply because, 2 hours of cycling per day can really take up a lot of your time, and I am not sure how much more it will grow. Dr Hakky also recommended 30m VED.
These pics are about 85-90% inflation which is just comfortable for sex, it is not too hard or rigid but just mimics are hard natural erection, maybe slightly harder. 80% would probably mimic more of a natural erection, but not as hard, and slightly less girth. I can get the girth to 6 inches on the dot if I pump it up more (95-100%), however, the device would be too rigid and hard for sex, and this level of inflation also results in less blood flow, and some loss of sensitivity. I did measure the girth in the middle when at a comfortable level of inflation for sex, and it is 5.75 inches and at the base is about 5.5 inches. The length is slightly over 6.5 inches, it looks shorter than pre-surgery, and I think that is just because of the thickness. I think a thicker penis just looks shorter. Please view my pre-surgery pics in this journal and you will see what I mean. I think the glans also seems bigger, may just be the pics but it looks that way. Pre-peyronies, I think I would have been around 7.2 or 7.5 inches length. Girth, I never really measured pre-peyronies, but I was told it was above average from women.
I will say that, I think 6 inches girth is really good. I was reading that at above 6 inches girth, some people can leave the penis in the vagina and make a woman orgasm just from slow thrusting. It reaches spots that aren't usually reached. Just what I have read.
I can also use VED pre-sex, and this results in probably 1cm extra in girth and 1cm extra in length. Can maintain this for a few hours after (without a cock ring). This is a good solution for guys that have lost a lot of girth to peyronies; pump up with the VED before sex. I might do this and post a pic just to show it's a viable solution for some.
These are the positives, and I am pretty happy with it tbh. However, there are some issues I have been dealing with which I will explain below.
Flaccid:
The device does stick out at about 4pm, and twists to the left when flaccid. As there is a strong kink/dog ear protruding out of the right, I can't wear anything other than thick jeans in public. If I wore shorts or trackies, it would look like I have an erection. This is an issue as I had a corporate job which required me to wear a suit. This has resulted in some huge lifestyle changes for me. Dr Hakky advised that this does happen, and it is dependent on the penis; each case is different. There is a surgery which may fix it, but it is not without risks. He advised it is a possibility to switch to AMS which would get rid of the dog ear. It just depends how much it is affecting my life. I am about to start a new job which requires me to wear a suit, and I am seriously considering what to do. My job requires me to go to court regularly, and it just would not be a good look if something was protruding out of my pants constantly. It's also a bit of a mental burden, having to worry about looking like you may have an erection.
When getting penile implant surgery, I didn’t think I would be avoiding my niece and nephews beach parties because I can’t wear shorts, or avoiding social gatherings when I can’t wear jeans or stressing about a new corporate job because I could look like I have an erection in a suit.
A user on FT suggested a stretching pump device from Ebay. It seems to stretch the penis from the base. It is supposed to help, it worked for him. I just ordered and will try it out.
Dr Hakky advised some patients have this issue, it just depends on the penis, some stick out, and some don't. He has performed surgery to fix this issue in some patients, and in some, he has switched to AMS.
Please don’t message me advising that there is nothing wrong with a bulge, as I agree with you. It’s not a bulge that is the issue, it’s the device/dog ear protruding out which looks like an erection through clothing (not a bulge).
Frenulum pain:
I do still get some pain by the frenulum. Dr Hakky advised that this was a common issue with the sub-coronal T.E.P with circumcision. He advised that he could perform a frenectomy (I think that's what it was called), or put grafting in the glans. He has come across this issue before and it is one of the reasons why he stopped performing sub-coronal incision; they just had too many complications.
Tubing:
There is some prominent tubing by the base of the penis when inflated, this can be felt when a woman is deep throating or you are deep thrusting. It also feels like some tubing is tangled or twisted in my scrotum – this can be painful and uncomfortable.
Peeing:
Unfortunately, after peeing, I get a mini stream dribble down after about 5m. Dr Hakky advised that this can be due to the large kink/dog ear, the urethra becomes bent. Can also spray in different directions when peeing. When I had peyronies, I would have 2-3 drops post peeing; this was manageable. I have spoken to some people on FT who had this issue after penile implant surgery, they just started sitting down to pee or using liners in their underwear. Bit easier to accept when you’re 60+ and have a less active lifestyle.
I have considered doing kegel exercises, however, they are not recommended if you have tight pelvic floor muscles (I will explain below).
Prostatitis:
This issue is still here, I do have flare ups, they are painful, but can be managed with pain killers. Dr Hakky advised that this does happen, he had a patient that developed prostatitis post-surgery recently. He advised the medication regimen he usually prescribes, but unfortunately, he could not prescribe me anything as I am in another country.
Ability to discreetly pump:
The squeak is still there, it’s a reasonably loud honk. I also must hold my penis straight when pumping otherwise it will pump bent to the left (no idea why?). I read a guy on FT who started holding his dick straight and pumping to avoid the device inflating to the left, and it worked. The fact that I have a loud honk, and have to hold my dick straight to pump it, makes discreet pumping almost impractical. However, it is possible to pump it up in the bathroom, tuck it up, and then go to engage in sex.
I can imagine, the guys who have no squeak, and the device pumps straight, would have no issues discreetly pumping.
Pain after ejaculation:
I still get pain after ejaculation, if I take a lot of NSAIDS pre-sex, the pain can be minimal. This could be prostatitis related, I am really not sure. It was a non-issue with peyronies. Sex is a bit difficult to enjoy when you anticipate pain. Also, having multiple rounds can be painful and cause a lot of discomfort.
Retracted Graft Issue:
The retracted graft issue is still there, albeit, with blood flow, it’s only noticeable if I were to press on one side or hold it. I can press and feel that one side is softer than the other (as it does not inflate as much), and also slightly thinner.
I would be very happy if this issue resolved, as it would result in slightly extra girth, as well as a rounder penis.
Bend to the left:
See the discreet pumping paragraph above. If I don’t hold my penis straight out and just pump, it will inflate completely bent to the left. Not sure why this happens, it’s not a major issue as I can just hold it straight with one hand and pump with the other, but can cause issues if one wanted to discreetly pump.
Orgasm:
I have been having strange, weak orgasms, and I think this is due to a tight pelvic floor. When I orgasm my penis/perinium area seems to kegel. My guess, this could be due to nerve damage from surgery. I was doing some pelvic floor exercises (thanks to Dr Hakky’s advice), and it did seem to help. There were some times where I had a normal relaxed and intense orgasm. I had to stop the pelvic floor exercises as on top of 2 hours cycling a day, I just did not have the time.
I will start the pelvic floor exercises again. Rolling was a good one.
Final thoughts:
I am happy with the device, I have my sex life back. The burden of peyronies is gone. You all know that feeling when you’re out in public, you get attention from women, or you meet a girl and you develop a connection, but you have that burden of peyronies in the back of your mind. That feeling is now gone.
I have been struggling with a lack of a social life, if I can't wear thick jeans somewhere, I won't go. I worry at the gym, if my long top isn't covering my crotch, it could look like I have an erection. These are some issues that can really affect your quality of life.
If I didn't have the issues described, I would probably be on top of the world. After talking to Dr Hakky, he told me two things, that a sub-coronal incision, and leaving the devise inflated after surgery (mine was left inflated for 5 weeks as my Dr went on holiday), are both notorious for causing issues. Some of these issues I have, could be a result of these two things.
My advice for anyone considering this surgery is to really find a trustworthy doctor, if you can't afford one, consider whether it’s in your best interests to wait, save up, and do the surgery overseas. Especially, if you have a complex case. I have had 2 surgeries already, and may have to have a third to fix the frenulum pain and flaccid issue. Had I just chosen to go to Dr Hakky initially, it may have saved me 2 surgeries plus a circumcision. Having multiple surgeries can really cause issues including scar tissue build up, risk of infection, losing bloodflow, nerve damage etc.
There is a story from Jordan Peterson's book and it tells of how his daughter Mikhaila had rheumatoid arthritis in her ankle, she had constant pain and discomfort. The first physician they went to wanted to amputate her ankle. The second physician they went to was able to snap a bone back in place, and this resulted in her pain being diminished and her being able to walk properly again. This just emphasises the importance of choosing the right physician.
Unfortunately, Penile implants are not well understood, even by doctors who do the surgery. Doctors in Australia were not able to tell me what was wrong and tried to blame the issues I had on anxiety etc. It wasn't until I had 2 appointments with Dr Hakky that he advised these issues do happen, and they are common with sub-coronal incisions and leaving the device inflated for long periods post-surgery. The point I am trying to make is, as bad as this sounds, if you don't have one of the top surgeons in the world (find a world class surgeon as Merrix says),I really don't think you should trust your doctor. After having issues with my penile implant, I went to the top doctors in Australia, they all rushed me out of their office, said it was in my mind etc (kind of like when you first get peyronies and that urologist gives you cialis and rushes you out of his office. I also did my MRI here, I emailed it to Dr Hakky and he was disappointed, he said that the doctors here were looking for all the wrong things.
I really don't advocate anyone undertake the Tunica Expansion Surgery. I just don't think it's worth the risks. Dr Hakky also is against it, says its outdated and dangerous. He has his own auxetic technique and I think it's the scratching technique as well that he believes is a bit better and safer than TEP. I trust him, he just seems very ethical and knowledgeable. Only doctor who could tell me everything that was going on and reassured me that these things happen.
Finally, I would just like to say, don’t take my post as being negative. I am actually quite happy with the implant. It has resulted in quite a few lifestyle changes, but that burden of peyronies which can leave a man depressed and suicidal is now gone. Sex is possible, and arguably, better sex, as I have a rock hard erection on demand, complicated acrobatic positions are even possible (lol), performance anxiety is a non-issue.
I just have some questions for anyone out there who has had to switch from titan to AMS. This may be my only way to get a flaccid that is able to be easily tucked in without a dog ear so I can wear suits and resume my corporate job:
1. Did you lose much girth going from titan to AMS? I am quite happy with my almost 6inch girth atm.
2. Did your penis become less round and more oval with AMS? I have heard this can happen.
3. Did you have a dog ear? If so, how prominent was it? Please consider, if I did not have a dog ear, I could easily just tuck my penis to the left and wear a suit and resume my job. It’s the dog ear that protrudes out and looks like an erection.
4. My next revision will probably be the 24cm Titan, I heard the equivalent is 21cm AMS +3 cm RTE’s, has the RTE’s been an issue?
The community we have here has been more helpful than ever, thank you to everyone who supported me.
Damn bro Im at 5.5 L and 4.75 girth 2 weeks out from surgery.
that's good to hear I def want to get more of my length back. Pre surgery was at 6 inches with my soft boner.
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