Floppy head

The final frontier. Deciding when, if and how.
Ruktitan
Posts: 212
Joined: Thu Nov 16, 2017 2:51 pm
Location: Uk

Re: Floppy head

Postby Ruktitan » Sun Dec 16, 2018 3:06 am

This appears to be what other surgeons are not doing. This video shows just how much work is put in to getting cylinders to the tip. Ive not seen one before marked on the outside where the tip should be.

https://youtu.be/5D_bjTGg5IY
29 years old. Suffered with ED since 17. No known cause. First Implanted date 23/3/2018. Cylinders way too short and revised by different surgeon 2019. 22cm titan.
Cylinders still short and now pump is upside down and protruding. Awaiting 3rd revision

Spikepork
Posts: 290
Joined: Sat Oct 21, 2017 10:49 am

Re: Floppy head

Postby Spikepork » Sun Dec 16, 2018 3:55 am

I did and do hold a direct line and email into the surgeons offic. Albeit direct contact is always firstly via his team but when insistent he is available. I cannot imagine how frustrating the monster of the nhs is when there are concerns. Nonetheless your surgeon can’t be hard to track down as they generally only practice in one main place. You MUST make a nuisance of yourself or you won’t be heard. At your age 3 invasive surgeries on your penis cannot be a good thing. As I’ve said before I would be parked on his lawn. Until a suitable resolution is arranged. You have to be strong here or you will be fobbed off.
Now Implanted 9/12/17. 52 years old with ED for over 20 years. Tried all the pills and injections. Update. Implanted with Titan 22 + 1. by DR Ralph Dec 9th London. Now in recovery and at 3 months feeling the journey was worth the pain.

defiant
Posts: 525
Joined: Mon Apr 25, 2016 9:35 am

Re: Floppy head

Postby defiant » Sun Dec 16, 2018 6:17 am

Ruktitan wrote:
Spikepork wrote:Make sure you are clear what you have and haven’t been told. It appears your revision was on 10/12 or 11/12 so only 4 days out and it appears you had already “used it two days after surgery. I’m fairly sure. You would not be healed enough but I’m no expert on revisions. I know in the USA it seems they are more aggressive in starting to cycle etc but to my knowledge that’s not the U.K. guidance. I could be wrong butbas defiant states if you do decide to take any form of legal action you will Need to be sure you followed guidance at all times. Or it will be a struggle to make any claim. You need to get hold of your surgeon for the revision ASAP. I mean like right now and have an honest and frank discussion on your concerns, insist on a meeting and for him to look at the result. Take his guidance and thoughts and then decide what you do next. I would be parked on his lawn!!!


I am positive that the doctor instructed me that I could use it once the swelling had gone down. I believe the resoviour and pump may be the original ones so maybe it was not as invasive..
I will have a follow up appointment where I will show them and make it fully clear I am unhappy.
Did you have direct contact details for Mr Ralph as i never got any for both surgeries.



How do you not know this information? (What was actually done exactly)

Every stay in hospital should result in a discharge summary, NHS or private, that summarises why you went in, what was done and what the plan is going forward (future appointments etc).
37, mild to moderate ED since age 21, 3 Dopplers - 1 result VL & 3 later results 'no physical problem', dependent on cialis (efficacy now waning), overcame Lymophoma at age 26, ED causing immense/profound psychological distress. Considering implant.

Larry10625

Re: Floppy head

Postby Larry10625 » Sun Dec 16, 2018 7:03 am

Ruktitan wrote:This appears to be what other surgeons are not doing. This video shows just how much work is put in to getting cylinders to the tip. Ive not seen one before marked on the outside where the tip should be.

https://youtu.be/5D_bjTGg5IY



He normally does not either.. he just wanted to show how bad the other implant was. :)

Larry

LeRoastBeef
Posts: 681
Joined: Mon Sep 17, 2018 11:09 am

Re: Floppy head

Postby LeRoastBeef » Sun Dec 16, 2018 10:23 am

6cm difference seems quite a bit, to the point that it's difficult to understand how the original surgeon managed to be so far off. :/
Implanted with AMS 700 lgx, 2021.
30's
UK

Larry10625

Re: Floppy head

Postby Larry10625 » Sun Dec 16, 2018 11:35 am

LeRoastBeef wrote:6cm difference seems quite a bit, to the point that it's difficult to understand how the original surgeon managed to be so far off. :/



Yea, that's what I thought too. This doctors name is what we need to be seeing on here every day, not one of the MANY good, competent surgeons... there are a LOT more good guys than bad guys. :)

Larry

Ruktitan
Posts: 212
Joined: Thu Nov 16, 2017 2:51 pm
Location: Uk

Re: Floppy head

Postby Ruktitan » Sun Dec 16, 2018 11:58 am

defiant wrote:
Ruktitan wrote:
Spikepork wrote:Make sure you are clear what you have and haven’t been told. It appears your revision was on 10/12 or 11/12 so only 4 days out and it appears you had already “used it two days after surgery. I’m fairly sure. You would not be healed enough but I’m no expert on revisions. I know in the USA it seems they are more aggressive in starting to cycle etc but to my knowledge that’s not the U.K. guidance. I could be wrong butbas defiant states if you do decide to take any form of legal action you will Need to be sure you followed guidance at all times. Or it will be a struggle to make any claim. You need to get hold of your surgeon for the revision ASAP. I mean like right now and have an honest and frank discussion on your concerns, insist on a meeting and for him to look at the result. Take his guidance and thoughts and then decide what you do next. I would be parked on his lawn!!!


I am positive that the doctor instructed me that I could use it once the swelling had gone down. I believe the resoviour and pump may be the original ones so maybe it was not as invasive..
I will have a follow up appointment where I will show them and make it fully clear I am unhappy.
Did you have direct contact details for Mr Ralph as i never got any for both surgeries.



How do you not know this information? (What was actually done exactly)

Every stay in hospital should result in a discharge summary, NHS or private, that summarises why you went in, what was done and what the plan is going forward (future appointments etc).


I have attached discharge summary. This is all I recieved and from a nurse and was told I am okay to go. When in hospital believing all had gone well I didnt feel the need to dig further. I just wanted to get home.
Attachments
20181216_165625.jpg
20181216_165625.jpg (96.29 KiB) Viewed 1742 times
29 years old. Suffered with ED since 17. No known cause. First Implanted date 23/3/2018. Cylinders way too short and revised by different surgeon 2019. 22cm titan.
Cylinders still short and now pump is upside down and protruding. Awaiting 3rd revision

Spikepork
Posts: 290
Joined: Sat Oct 21, 2017 10:49 am

Re: Floppy head

Postby Spikepork » Sun Dec 16, 2018 1:49 pm

Mmmm. Where are your pain control instructions and those you were discharged with should be noted. Where is the subject matter other than ED? The surgeons sign off. Etc etc. This can’t be correct procedure surely. I may be wrong as I don’t profess to know the workings of the nhs but there is scant info on this form. What has been sent to your GP? Do you know. Where are the implant model serial numbers etc. Maybe this is normal but it just reinforces the view that you are not being treated correctly and with care.
Now Implanted 9/12/17. 52 years old with ED for over 20 years. Tried all the pills and injections. Update. Implanted with Titan 22 + 1. by DR Ralph Dec 9th London. Now in recovery and at 3 months feeling the journey was worth the pain.

defiant
Posts: 525
Joined: Mon Apr 25, 2016 9:35 am

Re: Floppy head

Postby defiant » Sun Dec 16, 2018 1:57 pm

Was it all verbally discussed with you as is written there?

As an NHS healthcare professional on the frontline, for such a procedure, this is an absolute disgrace of a discharge summary.

Probably written by an on-call who never even met you.

Complain.
37, mild to moderate ED since age 21, 3 Dopplers - 1 result VL & 3 later results 'no physical problem', dependent on cialis (efficacy now waning), overcame Lymophoma at age 26, ED causing immense/profound psychological distress. Considering implant.

Spikepork
Posts: 290
Joined: Sat Oct 21, 2017 10:49 am

Re: Floppy head

Postby Spikepork » Sun Dec 16, 2018 2:49 pm

I agree. With such major surgery your discharge is vitally important and list all requirements both in terms of contacts, who did what, when, pain control etc. This is beyond shoddy. I agree. Complain very very loudly.
Now Implanted 9/12/17. 52 years old with ED for over 20 years. Tried all the pills and injections. Update. Implanted with Titan 22 + 1. by DR Ralph Dec 9th London. Now in recovery and at 3 months feeling the journey was worth the pain.


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