my story of ED post priapism. Please young guys share your experiences

The final frontier. Deciding when, if and how.
Lost Sheep
Posts: 6162
Joined: Mon Jul 04, 2016 11:16 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby Lost Sheep » Tue Sep 01, 2020 3:11 pm

23yopriapism wrote:so, the results of my mri showed '' a 7,5 cm hipointense signal in T1 and T2 in the right corpus cavernosum, wich can be a area of perfusional alteration". In other words, there is a area of 7,5 cm in my penis where the contrast of the mri( and the blood) cant reach.

I sure need a gun.

I don't think a gun would cure the E.D. Probably make it worse.

Read this article. I think it might show a direction to go.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3746402/
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Lost Sheep
Posts: 6162
Joined: Mon Jul 04, 2016 11:16 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby Lost Sheep » Tue Sep 01, 2020 5:05 pm

23yopriapism wrote:suicide is probably a good choise. Here in Brazil an inflatable prosthesis plus the surgery will cost me like 25.000 USD. Also, im gonna need like what 7 prosthesis in life? thats insane.
The public health service in brazil gives us the malleable prosthesis for free, and the surgery also if someone has a recommendation for it.
I could have the malleable prosthesis and choose the surgeon.
Anyone knows if the malleable prosthesis maintain the lenght and girth?

I would DEFINITELY take the malleable before suicide. A properly implanted malleable will maintain length for sure, and girth up to a point.

On the spectrum of future happiness with life, here is a scoresheet to help you decide. These are my estimates. You can read men's reports of their experiences here and form your own scoresheet.

Natural Erection: 100
Inflatable: 90
Malleable: 80
No implant, but pursue sex by other means (of which there are many options): 50
Suicide: 0
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Waynetho
Posts: 1768
Joined: Wed Nov 27, 2019 11:22 pm
Location: Dallas, TX

Re: my story of ED post priapism. Please young guys share your experiences

Postby Waynetho » Tue Sep 01, 2020 7:57 pm

I'm right at 15cm on a good day. Typically 14cm and I can fuck like a rabbit with my implant.

You're sweating the easy stuff. The doctor will do a stretch test before implantation and will put in what is right for your internal size. If *YOU* can stretch 15cm, you should be given 15 after the implant is inserted. Even if you're 14 though, or even 13, is that really so bad when you'll be able to fuck anytime you want, for as long as you want.

Get some perspective and realize that this isn't the end of life (nor does it warrant ending of your life). This is a speedbump and you *CAN* get over it and lead a happy productive sex life. Let it happen.
62yo, married 41 yrs. Urolift (x4) 8/12/19. AMS 700CX 15cm (no RTE) penoscrotal 10/28/19, Frisco, TX. PD 1995/ED 2011. Cialis helped but hinged. (1995)L:6/G:5.5+, (2019)Pre-op L:5/G:4.5, (2/2020)L:6.0/G:5.0

LuisFernandez
Posts: 408
Joined: Tue Jun 16, 2020 8:45 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby LuisFernandez » Tue Sep 01, 2020 9:28 pm

How good are your erections now? Where is the part of the penis that’s not able to get blood on the top, the base, or alongside the penis? Do you have any curves or dents?

Depending on these things I think you should only take cialis and add pentoxyfilline. Pentox has been shown the help reduce scarring from priapism. Additionally you can try to expand your chambers using VED.

You have to condition your penis and veins a bit but you can use cialis to get a good erection and use a VED to help expand your chambers. Do this after taking Pentox to help the medication get to where the scarring is.

Good luck.
Born 1986. ED. Peyronie's.
Considering an Implant. Consulting with Dr. Eid.
Using Cialis 10mg/day + 20mg for sex. Injections of PGE-1.
See my story: viewtopic.php?t=15016

Lost Sheep
Posts: 6162
Joined: Mon Jul 04, 2016 11:16 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby Lost Sheep » Wed Sep 02, 2020 1:52 am

23yopriapism wrote:my fear is the fibrotic tissue getting worse, since i dont have any morning erections for over a year
One function of the vacuum erection device is to give the same benefits that nocturnal erections (used to) give.

I believe it helps pull blood through your penile tissues, maintain elasticity and maintain size.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

LuisFernandez
Posts: 408
Joined: Tue Jun 16, 2020 8:45 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby LuisFernandez » Wed Sep 02, 2020 5:43 am

Ok so i still think you should be using the VED device nightly. No more than 20 minutes total. Pump up and hold an erection for like 5 seconds then release the vacuum and do it again. A total of 20 minutes 1-2 times a day. Probably just once a day at night to start.

This will break down fibrotic tissue, keep your penis healthy and give you time to save if you do get an implant. In order to keep size you can also start doing traction with a rod device with a suction cup for the glands. That's more optional i'd say.

I also would still recommend using Pentoxifylline, you can look up the studies and results when used to treat priapism. It's also relatively unexpensive, at least compared to Cialis.

Good luck.
Born 1986. ED. Peyronie's.
Considering an Implant. Consulting with Dr. Eid.
Using Cialis 10mg/day + 20mg for sex. Injections of PGE-1.
See my story: viewtopic.php?t=15016

sonnyjim
Posts: 117
Joined: Fri Sep 25, 2020 2:12 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby sonnyjim » Sun Sep 27, 2020 8:17 am

Your story sounds very similar to mine. I always knew I had some sort of scarring but when they did the MRI and the ultrasound nothing was found and they told me it was all in my head.

To cut a long story short I have went through every imaginable test in the last four years, some were so degrading that I already felt like I was fed up with life. I made the decision to have a penile implant and get it over and done with as pills stopped doing anything and injections didn't work well enough for me to want to put a needle in my dick.

I am recovering now so I don't know yet whether I'm happy with the implant or not but I hope it goes OK. If it makes you feel any better I am quite young too. I sometimes feel sorry for myself but it is what it is. What can you do?

robertm
Posts: 151
Joined: Mon Mar 11, 2013 11:53 am

Re: my story of ED post priapism. Please young guys share your experiences

Postby robertm » Fri Oct 02, 2020 12:41 pm

Doctors who don't have an answer often fall back to the "it's psychological" explanation. In the distant past, that was the standard diagnosis for ED. Now I think that most cases of ED have a physiological component. I think (good) urologists can do a test to determine if you have, for example, venous leakage. Find a good urologist who knows what he's doing.
60 yrs old. Gradually worsening ED for 10 years. Pills and trimix not working well anymore. Will need an implant in the near future.

confused95
Posts: 220
Joined: Tue Mar 23, 2021 4:25 am

Re: my story of ED post priapism. Please young guys share your experiences

Postby confused95 » Wed Jan 05, 2022 3:02 pm

23yopriapism wrote:hello guys. just some news here

my family got extremely poor during the pandemic of covid, i had to sell my car(wich is something far more expensive in brazil than in the united states) to deal with debts of my father and medical debts about this shitty ED. i was and am unenployed, brazil got real messy during the pandemic, inflation, unenployment, fascist goverment.
So i started to drink more and more, and well, things got out of control. my gf lost her admiration in me and broke up with me 3 months ago. now she is with another guy.
im felling guilty of all this shit, alcoholism is a shitty thing.


No way bro.
Try to stop drinking and save money for an implant
26yo from Italy. Psychogenic ed since dec 2019, got worse in Jan 2021. On Cialis 5mg every 24hrs, it works! But masturbation and sex bring me a lot of anxiety. On talk-therapy.
Update: diagnosed with slight Peyronie’s, investigating more on that

ScrewedbyDoctors
Posts: 201
Joined: Fri Dec 31, 2021 7:59 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby ScrewedbyDoctors » Sat Feb 05, 2022 2:27 pm

I have a dent/narrowing on the left side of my penis due to a trauma from Trimix injections, I went to Dr Trost ( world renown Peroynes specialist) and I asked him about using the VED for my fibrosis, he told me not to use it, he said to me that VED can make fibrosis worse.
For the young guy from Brazil, I completely feel your pain. I have a deformed penis due to a Trimix injection and my erections are bad, and also I don't want to have an implant, I couldn't mentally handle having an implant in my body.
I had a trauma 2 years ago, caused me narrowing, dent and shortening. PRP injections three months ago=worse narrowing, and worse ED. Now I only have two choices: impotent or implant. Born in 1975, in a relationship with girlfriend fir 4 years


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