NHS revision surgery

The final frontier. Deciding when, if and how.



splitpeach
Posts: 141
Joined: Fri Nov 22, 2024 7:43 pm

Re: NHS revision surgery

Postby splitpeach » Sun Mar 02, 2025 8:36 pm

niall4473 wrote:It was indeed, and the surgery, etc was beyond reproach, it is the implant itself which seems to be the problem.


I'm fascinated by that.... I asked for the Rigicon in my UCLH appointment on the NHS and they said the NHS doesn't offer Rigicon at the moment. Only AMS or Titan.

May I ask who your surgeon was and who offered you the Rigicon?

Do you know if it was part of any clinical trial or if you were involved in one?

What trust does the Royal Infirmary operate under?

Sorry for many questions but this has made me really curious.

Are you planning to go with another Rigicon or a different model?
Mid 30s. UK. ED since mid teens. Done the pills, injections, P Shot, Gainswave, ESWT shockwave.

Now preparing to take the plunge under care of Professor Ralph at UCLH. Planning on a Rigicon Infla10 AX with Pulse pump.

niall4473
Posts: 65
Joined: Sun Apr 24, 2022 4:33 am
Location: Northern England

Re: NHS revision surgery

Postby niall4473 » Mon Mar 03, 2025 6:08 am

Hi,
Manchester Royal Infirmary operates under the Central Manchester University Hospitals NHS Foundation Trust.
I am not going name names on the Internet, especially not since I might be going to be asking the gentleman to cut my privates open again at some point in the near future, if you Google the above trust website regarding Urology, you will soon find him identified by his speciality.
It was that surgeon who offered the Rigicon, it was described as 'fairly new', but very good and that department 'no longer implant anything else'. MRI is the regional centre for PPI and as far as I know, is the only NHS facility doing them in the North-West.
If there was any trial going on then I wasn't informed, but I doubt it, as there would surely have been more follow-up.
When I told the Urology Department that I was having difficulty with it, the registrar I was talking to immediately asked me if I was having problems with the pump being solid, make what you will of that.
Onset of ED at age 46, no erection since, pills, VED , Injections, no luck, not even once.
Implanted 19.04.2023 in UK, with Rigicon Infla 10 AX, not functioning so far, still hopeful.

splitpeach
Posts: 141
Joined: Fri Nov 22, 2024 7:43 pm

Re: NHS revision surgery

Postby splitpeach » Mon Mar 03, 2025 4:34 pm

niall4473 wrote:Hi,
Manchester Royal Infirmary operates under the Central Manchester University Hospitals NHS Foundation Trust.
I am not going name names on the Internet, especially not since I might be going to be asking the gentleman to cut my privates open again at some point in the near future, if you Google the above trust website regarding Urology, you will soon find him identified by his speciality.
It was that surgeon who offered the Rigicon, it was described as 'fairly new', but very good and that department 'no longer implant anything else'. MRI is the regional centre for PPI and as far as I know, is the only NHS facility doing them in the North-West.
If there was any trial going on then I wasn't informed, but I doubt it, as there would surely have been more follow-up.
When I told the Urology Department that I was having difficulty with it, the registrar I was talking to immediately asked me if I was having problems with the pump being solid, make what you will of that.


That's very very interesting. What's actually wrong with your implant?

What is the "hard pump" issue they seem to have suggested?

So you will be getting the same make and model or a different Rigicon?
Mid 30s. UK. ED since mid teens. Done the pills, injections, P Shot, Gainswave, ESWT shockwave.

Now preparing to take the plunge under care of Professor Ralph at UCLH. Planning on a Rigicon Infla10 AX with Pulse pump.

niall4473
Posts: 65
Joined: Sun Apr 24, 2022 4:33 am
Location: Northern England

Re: NHS revision surgery

Postby niall4473 » Tue Mar 04, 2025 1:04 am

The 'Hard Pump Issue' as you call it , is that the compressive globe which delivers the hydraulic medium from the reservoir to the inflatable cylinders in my penis becomes absolutely solid after only about 3 or 4 compressions, I mean I cannot get any further than that even with both hands and at that point, I have nothing like a usable erection. Immediately post-op I was told that this was normal and that it would 'break in' with practice, but this has not been the case. Knowing a little bit about hydraulics, I would guess that the problem is in the valve block.
I have no idea what course of action would be taken as I said the sample unit which I handled during consultation was nothing like that, I could easily cycle it with finger and thumb.
Onset of ED at age 46, no erection since, pills, VED , Injections, no luck, not even once.
Implanted 19.04.2023 in UK, with Rigicon Infla 10 AX, not functioning so far, still hopeful.

splitpeach
Posts: 141
Joined: Fri Nov 22, 2024 7:43 pm

Re: NHS revision surgery

Postby splitpeach » Tue Mar 04, 2025 11:33 am

niall4473 wrote:The 'Hard Pump Issue' as you call it , is that the compressive globe which delivers the hydraulic medium from the reservoir to the inflatable cylinders in my penis becomes absolutely solid after only about 3 or 4 compressions, I mean I cannot get any further than that even with both hands and at that point, I have nothing like a usable erection. Immediately post-op I was told that this was normal and that it would 'break in' with practice, but this has not been the case. Knowing a little bit about hydraulics, I would guess that the problem is in the valve block.
I have no idea what course of action would be taken as I said the sample unit which I handled during consultation was nothing like that, I could easily cycle it with finger and thumb.


Ah, so frustrated for you. Wish you could get into revision sooner. Please keep us updated with how it goes.
Mid 30s. UK. ED since mid teens. Done the pills, injections, P Shot, Gainswave, ESWT shockwave.

Now preparing to take the plunge under care of Professor Ralph at UCLH. Planning on a Rigicon Infla10 AX with Pulse pump.

splitpeach
Posts: 141
Joined: Fri Nov 22, 2024 7:43 pm

Re: NHS revision surgery

Postby splitpeach » Tue Mar 04, 2025 9:17 pm

Interestingly I just found another post on here of someone having a hard pump issue with the Rigicon Infla10 AX

viewtopic.php?f=6&t=25336&hilit=Rigicon
Mid 30s. UK. ED since mid teens. Done the pills, injections, P Shot, Gainswave, ESWT shockwave.

Now preparing to take the plunge under care of Professor Ralph at UCLH. Planning on a Rigicon Infla10 AX with Pulse pump.

sonnyjim
Posts: 125
Joined: Fri Sep 25, 2020 2:12 pm

Re: NHS revision surgery

Postby sonnyjim » Wed Mar 12, 2025 6:28 pm

So my fear is that, when I do have any issues with the implant it would take so long to get an appointment and then the revision surgery.

If you waited two years was that your choice or was that the fastest possible time the NHS could do it?

niall4473
Posts: 65
Joined: Sun Apr 24, 2022 4:33 am
Location: Northern England

Re: NHS revision surgery

Postby niall4473 » Thu Mar 13, 2025 6:01 am

The two years was mainly due to other things going on, I was also waiting until I had accrued enough paid sick time, but I have been written to now for a consultation in May, so when I have been in will be able to tell you exactly how tong it takes
Onset of ED at age 46, no erection since, pills, VED , Injections, no luck, not even once.
Implanted 19.04.2023 in UK, with Rigicon Infla 10 AX, not functioning so far, still hopeful.

lornezm
Posts: 2
Joined: Sun May 21, 2023 4:29 pm

Re: NHS revision surgery

Postby lornezm » Tue Mar 18, 2025 7:19 am

sonnyjim wrote:Has anybody here had revision surgery done by the NHS in the UK?

If so, how long was the wait?

I’m becoming more and more anxious about implant failure and then having to wait months and potentially years to get the revision surgery so I just wondered what sort of time it would take.

Thanks.



Hi sonnyjim,
I understood from your old posts that you were not very happy with your implant. How is it going lately??
32 years old
ED since sex injury when 23 years old
Dopplers finds mild fibrotic tissue on the distal part


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