Why is an implant not recommended for incurable pelvic floor /hf issues?

[Seeking]

13 years HF sufferer here.

What's comical about the HF debate is you hear obscenely optimistic statements like "all you need to do is xyz and normal function will return" and there hasn't been a single recorded case of severe HF being definitely cured. The closest I've seen is an academic journal article which got it to a place where it was 'manageable' under a range of ongoing interventions.

There are countless threads on Reddit of people "conquering" HF who then ghost into oblivion - they could easily sell their program for $5K - $10K a pop if they could prove it was effective, so I don't think they'd be making themselves scarce if they'd really overcome the condition.

After 13 years of trying everything, including even the infamous sclerotherapy, I'm getting an implant before I end up killing myself and regardless of the outcome, at least I'll know it was truly a last resort.

So much fluff in the debates around HF it's literally unreal, I've never seen anything like it. Show me someone who has been cured of HF doing meditation and PT and I'll pay them $20,000. Where are these mysterious strangers? They are professional ghosters.

[fucked0ne]

I had HF and the implant was a magic bullet. That said, I had tight, unremitting corporeal constriction—which according to Goldstein is the defining symptom of HF—without PF issues, so HF could have different etiologies. From the perspective of corporeal constriction, it makes perfect sense that the implant would work as the corpora is removed and replaced with inorganic cylinders. No corpora no HF.

[dashriprock24]

Paul - I am 38 years old and have had HF/ED for 22 years and CPPS with a pudendal neuralgia diagnosis for 10 years. I have worked with 4 or 5 pelvic floor therapists (2 who claimed they helped men with HF), did the DCT program for 3 years very passionately, completed the Overcome Pelvic Pain program, have done class 4 laser therapy on my penis, PEMF therapy, PRP injections into my pelvic floor and penis, meditation, acupuncture, and years and years of sex therapy. I have been to 3 urologists to have penile dopplers done including Dr. Levine in Chicago who all said my penile blood flow was great, but that they couldn't help me with the numbness. Mayo Clinic in Minnesota cleared me for a penile implant in 2022. I decided against it and flew to Belgium for a laproscopic decompression of the pudendal nerve which helped my pain and blood flow, but the HF/numbness remained. I have been on TRT for 4 years. I still struggle with ED. I am considering getting a neuromodulation device installed by Dr. Kenneth Peters in Michigan. I am currently meeting with Dr. Beau Saul's virtually and in person in Dallas Texas for the next 6 months to try and fix this through pelvic floor exercises and breath work one last time. I have put thousands of hours and have spent 60K+ on this in the past 22 years. If Mayo Clinic is saying implant why shouldn't I consider it? I have literally tried everything else. If you know of anyone in the US who you think could actually help me regain erectile function due to penile numbness through pelvic floor exercises and breath work or other exercises please send them my way because I will meet with them. I have traveled the whole US though and haven't been able to find anything that helps. I'd the meetings with Dr. Beau in Texas don't help, then I'll be getting the neuromodulation device implanted. If that doesn't work, then I'll be getting the implant when I'm 40.