Trouble inflating right cylinder

[newbie443]

You need to communicate your situation to Dr Kramer. Have you done that?

Yes. I have 25 e-mails saved of messages to and from him. And there was a phone call.

[oldbeek]

This is why I picked a surgeon that has a practice near me 90 miles away. He also has other surgeons in the same teaching hospital group to fall back on. Cant believe AMS does not have someone to help you trouble shoot the pump problem in Kansas City , Wichita or Salina area. Sounds like a new Chevrolet with a bad transmission and GM has no one to diagnose the problem for you. It may be a hardware problem and not Kramers fault. They should at least help you figure it out.

Really feeling bad for you. I am not activated yet so I am no help.

[newbie443]

This is why I picked a surgeon that has a practice near me 90 miles away. He also has other surgeons in the same teaching hospital group to fall back on. Cant believe AMS does not have someone to help you trouble shoot the pump problem in Kansas City , Wichita or Salina area. Sounds like a new Chevrolet with a bad transmission and GM has no one to diagnose the problem for you. It may be a hardware problem and not Kramers fault. They should at least help you figure it out.

Really feeling bad for you. I am not activated yet so I am no help.

Thank you for those kind words and I wish you the best going forward with yours.

I am glad you were able to find a very good surgeon close to you. When I went to my local uro today he seemed to have no knowledge about trouble shooting and only squeezed the pump bulb a few times. His opinion was the bulb was just stiff and would soften with use. He did not check the deflate button, or reset the pump. Several pumps till the bulb was hard enough that it jumped from between his fingers and he was done. I feel I made the right choice to leave my covered area.

I called the number alilbaba posted and was given another number. That number just hangs up when I select 3. Guess I'll start over with the first number again tomorrow.

Take care.

[alibaba]

I will look up the old phone number in my notebook that I called AMS back before Boston Scientific bought them. Maybe there is a better number. B/S took down a lot of stuff that used to be on the old AMS website and a lot of it became invalid also. Typical turn customer service into greasy stinking shit when a company buys out another company. AMS did have very helpful customer service, something Coloplast has lacked big time from my experience.

[alibaba]

The number I posted before is from the web site. These are the numbers I talked to real people. I note dates such as 11-13-15 and similar through late 2016.
1-952-930-6026
888-545-5205
800-307-7820
1-800-328-3881 extension 8 for patient problems
I corresponded for authorization assistance with rischelle.o'reilly@BSCI.com
Providing she is still there, maybe she can direct you to someone directly.
Best of luck to you.

[newbie443]

Thank you so much for taking the time to get that information. I will follow up with it tomorrow.

[newbie443]

The number I posted before is from the web site. These are the numbers I talked to real people. I note dates such as 11-13-15 and similar through late 2016.
1-952-930-6026
888-545-5205
800-307-7820
1-800-328-3881 extension 8 for patient problems
I corresponded for authorization assistance with rischelle.o'reilly@BSCI.com
Providing she is still there, maybe she can direct you to someone directly.
Best of luck to you.

Success! Many thanks and may nothing but good things cross your path.

I called the 1-800-328-3881 first. There is no extension 8 anymore but I spoke to someone and was transferred to number. I left a message. My call was returned and I was given another protocol to try. I will try that tonight.

[ED2013]

I’m curious. If you don’t mind sharing what is the protocol?

[newbie443]

Well I hate to say in case someone uses it with out talking to them first. It might cause trouble and make things worse. But I wanted to update with the info on the phone number so others would know how to get help if they have trouble. For folks with AMS implants you might want to write it down on your card or paper work for who to call to get help.

Take care all.

[newbie443]

Update. The fix from the AMS rep seemed to have made a great deal of improvement. I can now feel the raised deflate button and had consistent results last night and this morning. I will give it the weekend and the first part of next week. Received a reply from my last e-mail to my surgeon today and a phone call. Discussed it a bit more and if thing go south again he says he can fix it with an office visit (unlike my local guy). So things look really good to resolve this at the latest in a week or so.

All is right with my world again. Woooo hooooo. Happy dance.

Take care all and best wishes to all in your journey.