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FMLFML85 wrote:Ulcerative colitis flare up hit me hard. It’s only been 2 weeks since the start of the flare but the doctors are talking about removing my colon. I’m scared about what kinda complications could come from this surgery. Maybe they nick the saline bag and render my implant useless. Maybe the surgeon fucks up so bad that my implant gets infected and they have to removal the implant which would cause extreme shrinking of my penis. The removal of the colon would be done over the course of several surgeries over the course of a year and there could be a chance of infection at any of the stages. If I had to have removal of the implant it my take a year later before I could have another implant and I believe this would severely affect the health and size of my penis. I just don’t know what to do. I feel a lot of pain and pressure around my resivour.

There is risk, but I believe you are borrowing trouble before it arrives and overestimating the risk.

Standard procedure for an infected implant is to remove the implant and place a malleable (to preserve size) until the infection is gone. The likelihood of an infection from your colon getting over to your penis is small, though. Even in an infection got to the reservoir, the implant is likely to be uninfected and possibly could be left partly inflated until the infection clears and a new reservoir placed (even if that were necessary).

Make your surgeon and urologist aware of your concerns. Take their reassurances to heart. If you cannot, perhaps a surgeon in whom you have more trust would be in order.

I understand that fear and caution over infection is VERY important to our survival. Knowledge is power. Educate yourself as fully as you can and I believe strongly that your confidence will be enhanced.

I'm really sorry for that..
I suffer from Crohn's disease.
So l 'm very sympathetic to your pain
Good luck my mate..

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Lost Sheep wrote:

FMLFML85 wrote:Ulcerative colitis flare up hit me hard. It’s only been 2 weeks since the start of the flare but the doctors are talking about removing my colon. I’m scared about what kinda complications could come from this surgery. Maybe they nick the saline bag and render my implant useless. Maybe the surgeon fucks up so bad that my implant gets infected and they have to removal the implant which would cause extreme shrinking of my penis. The removal of the colon would be done over the course of several surgeries over the course of a year and there could be a chance of infection at any of the stages. If I had to have removal of the implant it my take a year later before I could have another implant and I believe this would severely affect the health and size of my penis. I just don’t know what to do. I feel a lot of pain and pressure around my resivour.

There is risk, but I believe you are borrowing trouble before it arrives and overestimating the risk.

Standard procedure for an infected implant is to remove the implant and place a malleable (to preserve size) until the infection is gone. The likelihood of an infection from your colon getting over to your penis is small, though. Even in an infection got to the reservoir, the implant is likely to be uninfected and possibly could be left partly inflated until the infection clears and a new reservoir placed (even if that were necessary).

Make your surgeon and urologist aware of your concerns. Take their reassurances to heart. If you cannot, perhaps a surgeon in whom you have more trust would be in order.

I understand that fear and caution over infection is VERY important to our survival. Knowledge is power. Educate yourself as fully as you can and I believe strongly that your confidence will be enhanced.

That is NOT the standard practice. When I lost mine due to septic shock, my doctor did not put anything in there to preserve the space. When I spoke to both doctors Eid and Kramer, they both agreed and said "why would he introduce any other forign object to an area that contained a lot of deadly infection... that is just asking for more infection". I definitely see their point. Some doctors might do that but they are just rolling the dice with your health and welfare.

Charlie2019 wrote:

Lost Sheep wrote:[(edited for focus)
Standard procedure for an infected implant is to remove the implant and place a malleable (to preserve size) until the infection is gone. The likelihood of an infection from your colon getting over to your penis is small, though. Even in an infection got to the reservoir, the implant is likely to be uninfected and possibly could be left partly inflated until the infection clears and a new reservoir placed (even if that were necessary).

That is NOT the standard practice. When I lost mine due to septic shock, my doctor did not put anything in there to preserve the space. When I spoke to both doctors Eid and Kramer, they both agreed and said "why would he introduce any other forign object to an area that contained a lot of deadly infection... that is just asking for more infection". I definitely see their point. Some doctors might do that but they are just rolling the dice with your health and welfare.

Thanks for the correction. I had a lapse. Standard practice (as I understand it) for replacing a failed implant (without infection complicating the matter) if an immediate IPP (inflatable penile prosthesis) replacement is not possible, is to introduce a malleable. Since I am not any sort of medical professional, I do make mistakes/misunderstandings occasionally and appreciate someone backing me up when I mis-speak.

Had most of my colon removed due to colon cancer... That was many years ago but how my surgeon explained the surgery to was that all major organs are pulled out and examined before anything is cut. I would assume that the reservoir might be visible and probably easy to avoid. The pain you are feeling in probably from swelling pressing on everything. I'm pretty sure that if the surgeon is aware of the implant they will make sure to preserve it, hopefully they are not just going in with a hack saw and just chopping things out.
Good luck.

my understanding is that they can do this laparoscopically now,
which is much less invasive.
Btw I lost all my colon and rectum due to UC back in 1974 at the age of 18. I've had an ileostomy since then.
When I went for my implant consultation, I told the surgeon that my biggest concern was
implanting the reservoir in an abdominal cavity that is filled with scar tissue from
multiple surgeries. He said that he was not concerned at all about that. He was right, in my case.
I do not feel the presence of the reservoir at all.

I would ask a lot of questions. I cant imagine that he/she would not take extra care to avoid disturbing
your implant equipment.

Lost Sheep wrote:

Charlie2019 wrote:

Lost Sheep wrote:[(edited for focus)
Standard procedure for an infected implant is to remove the implant and place a malleable (to preserve size) until the infection is gone. The likelihood of an infection from your colon getting over to your penis is small, though. Even in an infection got to the reservoir, the implant is likely to be uninfected and possibly could be left partly inflated until the infection clears and a new reservoir placed (even if that were necessary).

That is NOT the standard practice. When I lost mine due to septic shock, my doctor did not put anything in there to preserve the space. When I spoke to both doctors Eid and Kramer, they both agreed and said "why would he introduce any other forign object to an area that contained a lot of deadly infection... that is just asking for more infection". I definitely see their point. Some doctors might do that but they are just rolling the dice with your health and welfare.

Thanks for the correction. I had a lapse. Standard practice (as I understand it) for replacing a failed implant (without infection complicating the matter) if an immediate IPP (inflatable penile prosthesis) replacement is not possible, is to introduce a malleable. Since I am not any sort of medical professional, I do make mistakes/misunderstandings occasionally and appreciate someone backing me up when I mis-speak.

Don't need to apologize. Working in Healthcare many medical professionals do make mistakes. In addition to misunderstanding as well. Medical malpractice is a lucrative legal field...