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I have suffered from left sided pelvic pain for many years: CPPS or PFD. My suspicion was that it was somehow linked with my ongoing ED, or even caused by it. Since the operation 2 weeks ago, my pain has been non-existent. Perhaps it’s masked by the pain of the surgery, and by the pain meds I’m taking from time to time.

Can anyone share their own experience? TIA

Update 2024-10-30: About 7.5 weeks post-op, and I am virtually pain free. So it seems to have resolved my CPPS. A couple of theories come to mind: 1) pelvic floor muscles are more relaxed since none are required for an erection, or 2) pain could have been caused by fibrosis in the proximal portion of the corpus cavernosum, which has since been hollowed out.

"Perhaps it’s masked by the pain of the surgery, and by the pain meds I’m taking from time to time." <-Probably this.

You also ever had hard flaccid and retracted penis by any chance?

Thisworld wrote:"Perhaps it’s masked by the pain of the surgery, and by the pain meds I’m taking from time to time." <-Probably this.

You also ever had hard flaccid and retracted penis by any chance?

No I haven't had that. You're still waiting on your implant?

lionsmane wrote:I have suffered from left sided pelvic pain for many years: CPPS or PFD. My suspicion was that it was somehow linked with my ongoing ED, or even caused by it. Since the operation 2 weeks ago, my pain has been non-existent. Perhaps it’s masked by the pain of the surgery, and by the pain meds I’m taking from time to time.

Can anyone share their own experience? TIA

I suffer from pudendal neuralgia which has caused my CPPS/PFD. Docs think my pudendal nerve injury has led to my ED issues and issues related to sporadic orgasm difficulties. I have had two pudendal nerve block treatments in the last 5 years. For about a year after each injection I was relatively pain free after which my symptoms slowly started creeping back up. My guess is that the nerve block that Dr. Clavell uses has calmed down your pudendal nerve and that's why you're probably feeling less pain. But I'm not a doc, so this is just my guess. I hope you remain pain free for the long term.

Good to run into someone who is also suffering from CPPS/PFD. I'm on injections right now but seriously considering an implant with Dr. Clavell. All the best in your recovery. Do you also have issues with orgasm? One thing I have noticed is that whenever I can't orgasm my pain becomes much worse but with orgasm things become a lot calmer. Are you open towards sharing your experience about your journey over PM?

No I haven’t had any issues with orgasm. Just a persistent pain in the left perineum, exacerbated by sex and exercise.

See the original post for an update. Seems my CPPS symptoms have resolved since implant (10+ years of pain).

lionsmane wrote:See the original post for an update. Seems my CPPS symptoms have resolved since implant (10+ years of pain).

I also had pelvic pain for 4 years, which started simultaneously with my ED (10 years ago). I eventually resolved the pelvic pain with a drug called Elmiron (in my very specifica case, it seems it was caused by an issue with my bladder, but everyone is different), but after 4 years of pelvic pain, even if the pain itself went away, the ED remained forever. So i do think there is a link between pelvic pain and ED, as there are so many muscles in that area, if you are tense and constantly in pain, i assume some muscles tense up and do not allow for an erection. After many years with the same thing its possibel that the ED does not come back.

My Pelvic pain was resovled way before my ED though, so i am not sure if an implant would fix it