Hardflaccid/Numbness for 20+ years - looking for implant advice

[dashriprock24]

Hello everyone!

I came to this board a couple of years ago looking for advice on getting a penile implant. I am 37 years old and have suffered from hard flaccid, pudendal neuralgia, ED, and penile numbness for 20+ years now.

In 2022 I was dead set on getting a penile implant with Dr. Helo at Mayo Clinic on Rochester, MN - was approved and everything. I ended up pushing pause on the implant and decided to have laparoscopic pudendal nerve decompression surgery instead to see if it would alleviate my ED and pudendal neuralgia symptoms and bring back sensation. This was almost 2.5 years ago in December of 2022. The surgery actually did help with sensation on the right side of my penis, but the left side of my penis is still completely dead. The surgery helped with blood flow too because they released the pudendal artery, but over time that has gone back to what it was pre-surgery.

So here I am 2 years later revisiting the implant. Looking for advice from those who have a similar background of penile numbness and or pelvic floor issues who ended up getting an implant which I know is few and far from. Like other individuals on this board, I can achieve an erection with Cialis or Viagra, but since I have no sensation on half my penis it is very difficult to maintain an erection. I cannot keep an erection in most positions and it is also unstable/wobbly even when I'm at my most erect. I know the implant will not help with sensation and could potentially make my numbness worse, but it's been 20 years of dealing with ED issues and I just can't let this consume my life anymore.

Any advice/feedback/success stories or warnings from those who have had any of my symptoms that followed through on getting an implant would be appreciated. If I move forward with one it likely won't be until the end of the year.

Thank you!

[newbiehere23]

Im in the same boat. 10 years and with HF. Nothing works. Cialis is hit or miss. Considering a malleable implant or may try out injections first

[October26]

Hello everyone!

I came to this board a couple of years ago looking for advice on getting a penile implant. I am 37 years old and have suffered from hard flaccid, pudendal neuralgia, ED, and penile numbness for 20+ years now.

In 2022 I was dead set on getting a penile implant with Dr. Helo at Mayo Clinic on Rochester, MN - was approved and everything. I ended up pushing pause on the implant and decided to have laparoscopic pudendal nerve decompression surgery instead to see if it would alleviate my ED and pudendal neuralgia symptoms and bring back sensation. This was almost 2.5 years ago in December of 2022. The surgery actually did help with sensation on the right side of my penis, but the left side of my penis is still completely dead. The surgery helped with blood flow too because they released the pudendal artery, but over time that has gone back to what it was pre-surgery.

So here I am 2 years later revisiting the implant. Looking for advice from those who have a similar background of penile numbness and or pelvic floor issues who ended up getting an implant which I know is few and far from. Like other individuals on this board, I can achieve an erection with Cialis or Viagra, but since I have no sensation on half my penis it is very difficult to maintain an erection. I cannot keep an erection in most positions and it is also unstable/wobbly even when I'm at my most erect. I know the implant will not help with sensation and could potentially make my numbness worse, but it's been 20 years of dealing with ED issues and I just can't let this consume my life anymore.

Any advice/feedback/success stories or warnings from those who have had any of my symptoms that followed through on getting an implant would be appreciated. If I move forward with one it likely won't be until the end of the year.

Thank you!

I am five years out and can weigh in on this for what it is worth. This caught my eye because you are seeing Dr. Helo who I think is wonderful. I didn't have the loss of sensation but did have the problem with losing my erection once I achieved penetration making it difficult to either ejaculate or sometimes I would quickly ejaculate and it was all over. Then one night I badly injured my penis because of this weakening of the erection and had a Peyronies issue. That leads me to my advice. If I were in my late 30s, I would not hesitate to get the implant before there was a Peyronies injury. In that way, you can avoid the scar tissue/loss of size and all of that. I was not interested in size particularly but Dr. Helo clearly made an effort to maximize size and even suggested a scrotoplasty for appearance sake. My experience with the surgery and aftermath was extremely good. It was not all that painful, I did not have all of this swelling and after about three months I began getting an amazing increase in size to my pre-ED size. I would be happy to expand on this advice and my experience but I urge you to 'just do it.' (And have full confidence in Dr. Helo.)