Hello everyone!
I came to this board a couple of years ago looking for advice on getting a penile implant. I am 37 years old and have suffered from hard flaccid, pudendal neuralgia, ED, and penile numbness for 20+ years now.
In 2022 I was dead set on getting a penile implant with Dr. Helo at Mayo Clinic on Rochester, MN - was approved and everything. I ended up pushing pause on the implant and decided to have laparoscopic pudendal nerve decompression surgery instead to see if it would alleviate my ED and pudendal neuralgia symptoms and bring back sensation. This was almost 2.5 years ago in December of 2022. The surgery actually did help with sensation on the right side of my penis, but the left side of my penis is still completely dead. The surgery helped with blood flow too because they released the pudendal artery, but over time that has gone back to what it was pre-surgery.
So here I am 2 years later revisiting the implant. Looking for advice from those who have a similar background of penile numbness and or pelvic floor issues who ended up getting an implant which I know is few and far from. Like other individuals on this board, I can achieve an erection with Cialis or Viagra, but since I have no sensation on half my penis it is very difficult to maintain an erection. I cannot keep an erection in most positions and it is also unstable/wobbly even when I'm at my most erect. I know the implant will not help with sensation and could potentially make my numbness worse, but it's been 20 years of dealing with ED issues and I just can't let this consume my life anymore.
Any advice/feedback/success stories or warnings from those who have had any of my symptoms that followed through on getting an implant would be appreciated. If I move forward with one it likely won't be until the end of the year.
Thank you!
Hardflaccid/Numbness for 20+ years - looking for implant advice
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- Posts: 7
- Joined: Wed Mar 17, 2021 3:30 pm
Hardflaccid/Numbness for 20+ years - looking for implant advice
37 yrs old, HF/Numbness from injury in 2004
ED and Pelvic Floor Dysfunction for 20 years
Pudendal Nerve Decompression surgery 2022
On pills now, Trimix soon, implant in the future
ED and Pelvic Floor Dysfunction for 20 years
Pudendal Nerve Decompression surgery 2022
On pills now, Trimix soon, implant in the future
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- Posts: 81
- Joined: Tue Mar 15, 2022 9:24 pm
Re: Hardflaccid/Numbness for 20+ years - looking for implant advice
Im in the same boat. 10 years and with HF. Nothing works. Cialis is hit or miss. Considering a malleable implant or may try out injections first
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