27, peyronies, erectile dysfunction, implant?

[geophd]

First post:
So I'm 27 years old in the last year of my phd and I never felt better or happier in my life. Everything was going well, working hard, in great shape, and healthy. Until I had sex with a girl who did some weird shit and bent my dick. A month later peyronies started and I have developed fibrosis in the septum of my or is, no curve, small indents all over my erect penis, and ED. The ED can be mitigated with cialis. 5 mg daily works alright but not my old self and not reliable. 10 mg is the sweet spot and gives good erections for a reliable period of time if taken daily. But I do not want to take 10 mg daily forever, it sucks and doesn't inspire confidence. I also have no interest in trying injections or the pump, all of you that did that for years, you guys are way more mentally strong than me. Peyronies and ED specialists here in CA, Rafjer, Lue, Gelbard, have said my ED could get better, give it 3-6 more months, they didn't like the idea of an implant and said I won't need one. Well the fibrosis has continued to grow and Ive gained more indents. Since researching this whole thing, PD and ED, the only light at the end of the tunnel has been the implant, fairly low risk and high satisfaction rates, plus a bunch of anecdotal stuff here that seems to suggest that people get their lives back with the implant. Like many of you this has destroyed my outlook, self esteem, motivation, etc and I've become anxious and honestly depressed, I've never felt this way. I've told my girlfriend but she's having a great time because I'm hopped up on 10 mg cialis everyday. She loves me and tells me not to worry. I can't not worry. I've always had the attitude of, if it's broken fix it or get a new one, if you don't like something about yourself improve it to the best you can like exercise education etc. I'm proactive and I don't do well with problems that can't be solved. Is the implant a solution to my problem? I know the last resort deal, but let's have some frank talk... 10 mg daily cialis forever seems like a bandaid, I feel like I'd prefer stitches. Besides its more than the daily recommended dose. I just want to put this all behind me and maintain my size and have an erection on demand, like before! Thoughts on this being a reasonable solution?

Maybe someone like merrix who seems to have experience and be honest could comment on whether in hindsight earlier implantation, much earlier, would have given him a better sex life over the years.

[jmaqQK]

Geophd...big decision at your age...given that 10mg cialis daily working for you, have you tried a combination of enriched plasma injections coupled with low shock-wave treatment or venous correction surgery....need to tick off options available to you in a reasonably expeditious fashion, as if you have to finally get an implant and make that decision, leaving the decision too long with fibrosis advancing / peyronies the final implanted length of your penis could be adversely impacted (I know I did and I lost probably 1.5cm because of that delay)...

Just my untrained views of course and I would in the first instance seek professional assessment and advice from the best Urologist & Andrologist in the country ASAP...

Cheers

[geophd]

I am nervous of progression, my fibrosis is definitely still forming and my penis girth is definitely decreasing. It seems that if it's still requiring 10 mg cialis at 12 months post injury then it's probably time to make a decision to either implant or deal with cialis long term and deformities. I have not tried those and would probably avoid them due to the low success rate. If I'm getting cut open its by a high volume surgeon and he's putting in the biggest cylinders he can! I guess the question really comes down to whether any of you guys knowing what you do now would rather a lifetime of pills (anything more than 10 mg cialis gives me headaches, unbearable) or an implant. Some men have different sex lives and are different ages, I'm young and sexual, often enjoying sex multiple times a day and pretty much everyday. Pills have been a burden and I'm often not fully confident in them. Many of you guys have signatures saying ED for years tried everything etc. my question phrased another way is... Knowing what you know now would you have been happier with an implant during the years you were fighting ED by other means? I don't mean do you regret it, or any other negative thing, you made the best decisions you could! But now that hindsight is 20/20, what decision would you have made about when to get the implant?

[Larry10625]

First post:
So I'm 27 years old in the last year of my phd and I never felt better or happier in my life. Everything was going well, working hard, in great shape, and healthy. Until I had sex with a girl who did some weird shit and bent my dick. A month later peyronies started and I have developed fibrosis in the septum of my or is, no curve, small indents all over my erect penis, and ED. The ED can be mitigated with cialis. 5 mg daily works alright but not my old self and not reliable. 10 mg is the sweet spot and gives good erections for a reliable period of time if taken daily. But I do not want to take 10 mg daily forever, it sucks and doesn't inspire confidence. I also have no interest in trying injections or the pump, all of you that did that for years, you guys are way more mentally strong than me. Peyronies and ED specialists here in CA, Rafjer, Lue, Gelbard, have said my ED could get better, give it 3-6 more months, they didn't like the idea of an implant and said I won't need one. Well the fibrosis has continued to grow and Ive gained more indents. Since researching this whole thing, PD and ED, the only light at the end of the tunnel has been the implant, fairly low risk and high satisfaction rates, plus a bunch of anecdotal stuff here that seems to suggest that people get their lives back with the implant. Like many of you this has destroyed my outlook, self esteem, motivation, etc and I've become anxious and honestly depressed, I've never felt this way. I've told my girlfriend but she's having a great time because I'm hopped up on 10 mg cialis everyday. She loves me and tells me not to worry. I can't not worry. I've always had the attitude of, if it's broken fix it or get a new one, if you don't like something about yourself improve it to the best you can like exercise education etc. I'm proactive and I don't do well with problems that can't be solved. Is the implant a solution to my problem? I know the last resort deal, but let's have some frank talk... 10 mg daily cialis forever seems like a bandaid, I feel like I'd prefer stitches. Besides its more than the daily recommended dose. I just want to put this all behind me and maintain my size and have an erection on demand, like before! Thoughts on this being a reasonable solution?

Maybe someone like merrix who seems to have experience and be honest could comment on whether in hindsight earlier implantation, much earlier, would have given him a better sex life over the years.

First of all, any of the members on here will be "honest" with you. Like you, the one thing everyone here has in common is ED. Second, please create a signature. It makes things much easier to answer your questions without asking a lot of questions. Here's how you do it
Click on your name in the top right corner and select "user control panel"

Then under the big letters "User Control Panel" there is a row of words... select "Profile"

Then down the left had side of the "User Control Panel" select "Edit Signature" (You might have Create Signature or something. I don't know exactly what you'll get because I already have a signature to edit)

Most guys put something like what I have, but you can put whatever you want. Here is mine -
"AMS 700 (18 + 2 rte's). Implanted March 30, 2017 by Dr. Brock of London, Ont, CANADA. Great surgeon. Went in to septic shock and had to have implant removed April 29, 2017. I'm from Belleville, Ontario, CANADA. Appt. for consult for second attempt is on November 6, 2017... I can't wait."

Don't get too carried away with the doctor like his name, address, phone number, etc (anything that looks like advertising for him).. you can certainly say Dr. Jones (great Dr.)

If you need further help, please ask, that's what I'm here for.

Larry
Moderator

[cincinnatus1951]

Geo:
You've got a tough call. You have visited the West Coast Gurus and they advise against an implant.-at least now. Following is a paper I wrote on the subject. If I were you, I would try all reasonable therapies short of an implant. If they don;t work, then go for it. If you'd like to talk about it, PM me with a number.
Cincinnatus
April 1, 2017

Guys: I’ve been doing a lot of thinking about the “right” time to decide on an implant. A lot of discussion about pumps and injections as well as pills indicates that a lot of men get some initial positive results, but, after time, the effectiveness declines. With injections, many report scarring and penile distortion. What’s not nearly as clear is what percentage of injection and pill users continue to have erection difficulties. Human nature teaches that the satisfied folks rarely complain. There are plenty of examples of marginal effectiveness of pills and injections, what I can’t tell is how large the percentage is.
In my own case, I went for about six months with pumps and pills with marginal results. My prostate surgeon recommended injections, which I used for about a year with inconsistent results. ( I had a Robotic assisted nerve sparing prostatectomy in July, 2013.) Sometimes, very little, sometimes too long, and never knowing how long the erection would last. I did have good firmness and longitudinal stability when it worked. At my two year surgical follow up visit, the surgeon suggested we consider an implant. My initial reaction was “They are not doing that to me!!!” We continued to bumble along. If the injection did not work (rarely) or did not last long enough, we would resort to toys and tongue. We were both able to climax; but, it was certainly not as satisfying as traditional penetrative sex. We were also getting tired of the hassle with injections. We visited one urologist (sexual medicine) specialist and he recommended “combination therapy” of pills and injections. He also recommended we consider an implant, showed us the prosthesis, gave us web sites where we could watch the surgery. We also learned of FrankTalk through a prostate cancer support group.
As we learned more about the surgery, risks, aftercare, healing, etc. the thought of surgery became less scary. My wife initially discouraged it saying we can do OK with toys and tongue, is it worth the risk? We agonized and went to see another sexual medicine specialist. He did not try to sell us on an implant, however, said none of the other therapies were working for us. At that stage 21/2 years out of prostate surgery, the likelihood of spontaneous erections returning were essentially nil. After one particularly frustrating love making session, I said to the wife, “Heck with it “I’m signing up for the implant. She agreed. I had the implant in January 2016. We had a text book recovery and we both wish we had not wrung our hands for so long. The implant removes all the hassle and uncertainty of the lesser methods.
That brings me to the point of this note. I have advised a goodly number of people both in public and private posts not to consider an implant unless nothing else works. While I still believe that to be the case. For the above reasons, I would recommend seriously thinking about an implant as soon as frustration begins to build. Essentially, once pills become less effective and you have tweaked your formulation and injection dosage without satisfactory results, I have come to believe that further avoidance of an implant is not helpful. In talking with my docs, they too, believe couples get frustrated and just give up on sex. My cardiologist even offered he would like to see way more men go for implants. He says many patients report that they have just given up.
Bottom line is I do not know how to accelerate the process to an implant. We believe we waited six to nine months too long. I also recall my almost complete rejection of the first implant recommendation. For guys who are say over age 55, are frustrated and have systemic ED regardless of the cause, I would say “Go for it”.
Sorry for the long post. Just food for thought. Cincinnatus

[vey999]

I had to get the implant because of peyronie’s. The bend was 90 degrees up and if I straightened it out, I lost the erection, so it was useless for penetration.

[Smetro]

Geo
My instinct is to say to you that doctors are amazing but I think each of them views a particular problem from the point of view of their own specialty.
Physio will fix you with ultrasound and stretching whereas a surgeon fixes things with a scalpel etc etc.
Surely there would be no harm in making an appointment with one of the top urologist implant specialists you have stateside for an opinion....may cost a few dollars but it would at least give you valuable and pertinent information you currently don’t have....... just saying

[Larry10625]

First post:
So I'm 27 years old in the last year of my phd and I never felt better or happier in my life. Everything was going well, working hard, in great shape, and healthy. Until I had sex with a girl who did some weird shit and bent my dick. A month later peyronies started and I have developed fibrosis in the septum of my or is, no curve, small indents all over my erect penis, and ED. The ED can be mitigated with cialis. 5 mg daily works alright but not my old self and not reliable. 10 mg is the sweet spot and gives good erections for a reliable period of time if taken daily. But I do not want to take 10 mg daily forever, it sucks and doesn't inspire confidence. I also have no interest in trying injections or the pump, all of you that did that for years, you guys are way more mentally strong than me. Peyronies and ED specialists here in CA, Rafjer, Lue, Gelbard, have said my ED could get better, give it 3-6 more months, they didn't like the idea of an implant and said I won't need one. Well the fibrosis has continued to grow and Ive gained more indents. Since researching this whole thing, PD and ED, the only light at the end of the tunnel has been the implant, fairly low risk and high satisfaction rates, plus a bunch of anecdotal stuff here that seems to suggest that people get their lives back with the implant. Like many of you this has destroyed my outlook, self esteem, motivation, etc and I've become anxious and honestly depressed, I've never felt this way. I've told my girlfriend but she's having a great time because I'm hopped up on 10 mg cialis everyday. She loves me and tells me not to worry. I can't not worry. I've always had the attitude of, if it's broken fix it or get a new one, if you don't like something about yourself improve it to the best you can like exercise education etc. I'm proactive and I don't do well with problems that can't be solved. Is the implant a solution to my problem? I know the last resort deal, but let's have some frank talk... 10 mg daily cialis forever seems like a bandaid, I feel like I'd prefer stitches. Besides its more than the daily recommended dose. I just want to put this all behind me and maintain my size and have an erection on demand, like before! Thoughts on this being a reasonable solution?

Maybe someone like merrix who seems to have experience and be honest could comment on whether in hindsight earlier implantation, much earlier, would have given him a better sex life over the years.

Please create a signature. It makes things much easier to answer your questions without asking a lot of questions. Here's how you do it
Click on your name in the top right corner and select "user control panel"

Then under the big letters "User Control Panel" there is a row of words... select "Profile"

Then down the left had side of the "User Control Panel" select "Edit Signature" (You might have Create Signature or something. I don't know exactly what you'll get because I already have a signature to edit)

Most guys put something like what I have, but you can put whatever you want. Here is mine -
"AMS 700 (18 + 2 rte's). Implanted March 30, 2017 by Dr. Brock of London, Ont, CANADA. Great surgeon. Went in to septic shock and had to have implant removed April 29, 2017. I'm from Belleville, Ontario, CANADA. Appt. for consult for second attempt is on November 6, 2017... I can't wait."

Don't get too carried away with the doctor like his name, address, phone number, etc (anything that looks like advertising for him).. you can certainly say Dr. Jones (great Dr.)

If you need further help, please ask, that's what I'm here for.

Larry
Moderator

[geophd]

Thanks for all the replies guys. Clearly there's a bit of a split on how people feel about getting an implant. I've read many times that men "wish they had done it earlier" and some men saying that they would have never done it if cialis continued to work etc. I see how cialis could be acceptable for infrequent sexual activity but daily sexual activity and dealing with headaches seems like a burden over the course of a lifetime. I'm afraid that treatments like cialis and injections and the side effects will change my feeling about sex and make me less interested. But the implant does not seem to cause that in many men, sometimes doing the opposite! Maybe others will comment:

For frequent sexual activity (married/committed relationship) and knowing what you know now after having the implant would you have preferred the implant to other treatments and their side effects, i.e., cialis/viagra and injections?

[Larry10625]

Thanks for all the replies guys. Clearly there's a bit of a split on how people feel about getting an implant. I've read many times that men "wish they had done it earlier" and some men saying that they would have never done it if cialis continued to work etc. I see how cialis could be acceptable for infrequent sexual activity but daily sexual activity and dealing with headaches seems like a burden over the course of a lifetime. I'm afraid that treatments like cialis and injections and the side effects will change my feeling about sex and make me less interested. But the implant does not seem to cause that in many men, sometimes doing the opposite! Maybe others will comment:

For frequent sexual activity (married/committed relationship) and knowing what you know now after having the implant would you have preferred the implant to other treatments and their side effects, i.e., cialis/viagra and injections?

Implant in a heartbeat. Just wish I had discovered it earlier. With injections you get scar tissue and with both, over time you will require more and more drug and eventually, the likelihood is that you will be getting implanted anyway.

Larry