High guys,
Over the past several months, that I have been a member of FrankTalk I have been more of lurker than a contributor. Since my story has been about the same as many of you. I told myself I would do a short, summary journal if things changed.
Back around 2004 or so my ED had progressed from just a minor inconvenience in that over the counter things like “Enzyete” would get me firm enough for sex. Now it had gotten to the point of the oral medications, Levetra, and Viagra were the medications of choice for the Veteran’s Affairs Health care. I deployed a couple more times after that. As a kind of back up I thought my ED was related more to my using anti-depressants. Then anything else and may actually be. Any way I continued with the orals, actually stopped using them after my last deployment as shortly after coming back home my wife and I decided that we have changed too much to stay together so we divorced after 27 years of marriage. Well that really set of my ED but I couldn’t care less to be honest. After being divorce and separated for about 3 years I decided to get back into the dating scene as well as try and lose the weight I had gained. I met my current wife and having ED was problem again. After being together with oral meds becoming more and more ineffective about 2 years ago, I went back to the VA ED Urology Clinic and after discussing thing with the doctor we decided on CaverJect (Alprostadil). Wow loved the stuff an erection like when I was in my 20’s maybe even in my teens. This went well until about 18 months later, while recovering from foot surgery I noticed my penis had a curve I didn’t notice before. In the Army I was a Pharmacy Technician and Medic so being true to being a man I ignored it thinking it was just me. At least until my wife said that he was noticing the curve and I should get it checked. In September of 2018 I was told I had Peyronie’s Disease. And the doctor asked if I had considered an implant as it would correct both my ED and Peyronie’s well I wasn’t ready and put on Pentoxifylline, and advised to keep using the injections to keep from losing size and in my research I came across and article about using a vacuum devise to correct or at least help so I bought one and started using it. Also, I learned about FrankTalk from another site.
At an appointment in February of this year I was ready to go with an implant I went with my wife so she could ask questions or express concerns if she had any as ED and Peyronie’s also affect our partners. I was told to wait until about a year from the first symptoms of Peyronie’s , and to take pictures of my erect penis from time to time. So now today July 19, 2019 I had another follow up and I have a date for an implant. So now I’m nervous and excited at the same time.
I can only thank you guys here on FrankTalk for getting me to this point and I’ll keep posting things as I gain information.
My Journal Implant scheduled for Sept 3rd 2019
My Journal Implant scheduled for Sept 3rd 2019
Last edited by Quester on Fri Aug 09, 2019 4:30 pm, edited 1 time in total.
ED 20 years, Peyroine's Disease diagnosed in 2018, at 57 years I was implanted September 3rd 2019 at the Salt Lake City VA Medical Center, AMS700 CX 21cm + 2cm RTE
Re: My Story
You won't be sorry But I caution you to make sure you get the right Dr. I don't know much about the VA or where you live but ask a lot of questions about Who from the VA had a good outcome I know of one friend that was less than pleased. Good luck
Dave
Dave
Born 52
Prostatectomy 6/1/18
Viagra worked before RRP
Trimix painful Bimix both Ineffective
Titan 20CM 1CM RTE
10/26/18 Dr.Eid
Prostatectomy 6/1/18
Viagra worked before RRP
Trimix painful Bimix both Ineffective
Titan 20CM 1CM RTE
10/26/18 Dr.Eid
Re: My Story
Your story is similar to mine. I would say: Go to the best Surgeon you can afford. Just go.
LU
LU
ED 26 years. 1995->Pills->Shots->Implant penoscrotal Implanted Feb2021, AMS CX, 18 CM + 3 RTE, penoscrotal, 100cc reservoir. Looking forward to revision with a better Doctor.
Re: My Story
Until you get surgery I would use both ved and traction. Dr. Eid actually answered the question. Do you need to wait until out of the acute phase. He stated it made no difference. The implant corrects the peyronies and what phase you are in does not affect the correction. Once implanted it is corrected. That along with a bunch of other questions he answered were posted on another peyronies forum.
I saw 4 urologists. Not one cared what phase my peyronies was in. Got peyronies when do you want your titan. Last one I felt comfortable with so titan went in. Peyronies gone. No curve. Cannot find plaque. Hard straight and working like old times.
You might query va and see what pops up. Quite a few members have gone that route and were happy. Some not. Or you might start a new topic asking for who got surgery at vs where and by whom. Might be faster than trying to go through years of posts.
Most everyone on here tries to be helpful and positive barring a bad procedure.
I saw 4 urologists. Not one cared what phase my peyronies was in. Got peyronies when do you want your titan. Last one I felt comfortable with so titan went in. Peyronies gone. No curve. Cannot find plaque. Hard straight and working like old times.
You might query va and see what pops up. Quite a few members have gone that route and were happy. Some not. Or you might start a new topic asking for who got surgery at vs where and by whom. Might be faster than trying to go through years of posts.
Most everyone on here tries to be helpful and positive barring a bad procedure.
18 cm plus 1 rte titan installed March 2019. Revision March 2020 by Dr. Andrew Todd, Richmond KY. He replaced the titan with an AMS 700 LGX 18 cm cylinder plus 2 rte for 20 cm total length.
Re: My Story
Congratulations on getting a date set and getting through the hurdles to get approval. Also, thanks for sharing your story, I'm sure it will resonate with some of the others that visit here. Keep us posted on your progress if you will.
As you get closer to the surgery date, you should check out some of the threads on what to take to the hospital, what to expect, etc. Let us know if you have questions. Lots of great support here.
Quincy.
As you get closer to the surgery date, you should check out some of the threads on what to take to the hospital, what to expect, etc. Let us know if you have questions. Lots of great support here.
Quincy.
71, Boise area, Married
ED from type 2 diabetes and PCa radiation.
AMS LGX surgery 6/5/18 with Edward Karpman in Silicon Valley, 18cm+3RTE
ED from type 2 diabetes and PCa radiation.
AMS LGX surgery 6/5/18 with Edward Karpman in Silicon Valley, 18cm+3RTE
Re: My Story
Thanks all, I have been doing a lot of research since last September, and have found that the VA medical center I go to has one of the finest Men's Sexual health doctors in the area. He has written a book that helps explain the whole process of ED the treatment and more.
He does a lot of implants, both at the VA and other hospitals that he is accredited at, as well as trains others doctors in the procedures. I also work at this VA and have talked to other patients at the Urology Clinic and think this guy is the greatest.
I also have been checking other sources and I myself tend to be very conservative on treatments, both with my ED and Peyronie's. I appreciate, this forum and the knowledge I gained.
I only give this account and reply to my post at this time, to again thank you all and to let you know because of you all I have really dug into whether or not I should go with an implant.
I've already had the EKG I'm not sure if this is a VA standard prior to full anesthesia surgeries as I've had so few procedures of this type. But so far nothing I amiss they want me to wait for labs for between August 5th and 16th.
He does a lot of implants, both at the VA and other hospitals that he is accredited at, as well as trains others doctors in the procedures. I also work at this VA and have talked to other patients at the Urology Clinic and think this guy is the greatest.
I also have been checking other sources and I myself tend to be very conservative on treatments, both with my ED and Peyronie's. I appreciate, this forum and the knowledge I gained.
I only give this account and reply to my post at this time, to again thank you all and to let you know because of you all I have really dug into whether or not I should go with an implant.
I've already had the EKG I'm not sure if this is a VA standard prior to full anesthesia surgeries as I've had so few procedures of this type. But so far nothing I amiss they want me to wait for labs for between August 5th and 16th.
ED 20 years, Peyroine's Disease diagnosed in 2018, at 57 years I was implanted September 3rd 2019 at the Salt Lake City VA Medical Center, AMS700 CX 21cm + 2cm RTE
Re: My Story
EKG may be standard requirement prior to surgery.
It was for me in the private sector.
It was for me in the private sector.
86 years
Inject testosterone weekly.
Implant on 1/22/19 by Dr Avila.
Scrotal, hor. incision just over 1"
18cm AMS 700 CX, 3.5cm RTE 100cc res
Gleason 6 prostate cancer. Monitoring it for now.
Update: On my last biopsies the cancer wasn't found.
Inject testosterone weekly.
Implant on 1/22/19 by Dr Avila.
Scrotal, hor. incision just over 1"
18cm AMS 700 CX, 3.5cm RTE 100cc res
Gleason 6 prostate cancer. Monitoring it for now.
Update: On my last biopsies the cancer wasn't found.
Re: My Story
So take us thru steps using va. I have medicare also and va but dont have B coverage because its not useable oversees so hoping i can go straight va i have 70%iu and pt with a 0 rated for ed so in my case va or sign up for part b next year which will work
edex and tri mix 45/1/27 26 units
Re: My Story
I suggest contacting your local VA office. Ask if they have a benefits advisor to help you decide. I'm guessing that they do.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months
2019, penile traction device reduces the use of collagenase in Peyronie disease
A new medical protocol to treat the Peyronie disease was developed based on the clinical study published in Journal of Sexual Medicine, May-2019, The use of a penile traction device reduces the need of cycles of collagenase in patients with Peyronie disease, by Dr. García Gómez, Dr. Romero-Otero et al.
The conclusion of the clinical study was the combination of the use of a penile traction device (andropeyronie) with collagenase (xiaflex) is useful to reduce the number of cycles of collagenase to treat the Peyronie disease, achieving similar results to those in the literature, and improving the cost-efficiency of the treatment.
https://www.jsm.jsexmed.org/article/S1743-6095(19)30622-8/abstract
The conclusion of the clinical study was the combination of the use of a penile traction device (andropeyronie) with collagenase (xiaflex) is useful to reduce the number of cycles of collagenase to treat the Peyronie disease, achieving similar results to those in the literature, and improving the cost-efficiency of the treatment.
https://www.jsm.jsexmed.org/article/S1743-6095(19)30622-8/abstract
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