That *&$%#@!! Deflation Button

The final frontier. Deciding when, if and how.
stephen54
Posts: 481
Joined: Sun Nov 10, 2019 11:43 am
Location: Chicago

Re: That *&$%#@!! Deflation Button

Postby stephen54 » Wed Dec 18, 2019 6:43 pm

Lost Sheep wrote:
oneperson wrote:What I cannot understand is how the hell a doctor lets a patient go home with cycling protocol without being sure the patient can inflate/deflate by himself in a suitable manner.

When I was instructed to begin cycling, I had to inflate and deflate 3 times in front of the doctor and without his help before he showed me the green light. It was difficult, but he didn't let me go without being sure I was able to do it by myself.

While this reply quotes oneperson, it is in answer to the OP's (Stephen54) post.

I was sent home without being able to inflate/deflate (though my surgeon did deflate me from about 80% postop to about 75% the day after surgery).

Waiting until my incision healed enough, I began after those few days and as I could tolerate it, I felt around my scrotum to identify the bulb, the valve body and search for my (hiding atop the pump :o ) left testicle.

When I was able to distinguish the operating button, and only then, I began to cycle the implant. But I DID NOT INFLATE FULLY until AFTER I was certain I could deflate at will.

Discretion.


Yep. Gotcha. Understood.

Thank you!
54 yrs. Blessed with highly sexual 52 yr old wife. Pills 10 years, then 9 yrs Trimix. 28 cm Titan Touch XL 2019, Laurence Levine, Rush Univ Med Ctr, Chicago. Implant = nonstop fun. Hypogonadal, so also 10+ years testosterone replacement.

stephen54
Posts: 481
Joined: Sun Nov 10, 2019 11:43 am
Location: Chicago

Re: That *&$%#@!! Deflation Button

Postby stephen54 » Wed Dec 18, 2019 6:45 pm

Waynetho wrote:And I was lucky. I broke every rule (almost) that the doctor gave me. I was to see him at 2 weeks for first activation and I had to "play dumb" when he instructed me on inflating and deflating and just let him talk and explain.

I had already pumped it to about 50-75% on day 7, against doctor's orders (and 2-3 times more later the second week), just to see it up for the first time in I can't remember when...

He said after first activation, "NO SEX FOR SIX WEEKS" and added "DON'T STICK IT IN ANYTHING UNTIL THEN". I took that to mean no anal or vaginal penetration - nothing about stroker toys... (wrong!) I got an edema and blue swelling one night at day 32 from using a stroker too vigorously. Taped it up loosely with elastic athletic tape and left it that way overnight to eliminate the swelling. I had had the same blue swelling at day 2-3 so I believe it was a vein that was injured during the Peyronie's remodeling and it hadn't healed well enough by day 32.

I never seemed to have any difficulty with the AMS MS pump as my escapades from day 7 on would indicate. I guess in that way I was lucky, both for an easier pump use and that I didn't do any permanent damage in my breaking the rules.


Clearly I understand you. They didn't tell me not to do certain things, but we had vaginal sex several times just on the power of the semi-hard dick the Titan has left me with in the new "flaccid" world here. I'm not much of a rule follower, either. But hell man...this inability to figure the fucking bulb out...like I said, I'm just praying it's patience/time/swelling needing to resolve...
54 yrs. Blessed with highly sexual 52 yr old wife. Pills 10 years, then 9 yrs Trimix. 28 cm Titan Touch XL 2019, Laurence Levine, Rush Univ Med Ctr, Chicago. Implant = nonstop fun. Hypogonadal, so also 10+ years testosterone replacement.

544kenmatt
Posts: 221
Joined: Sun Nov 17, 2019 10:17 am
Location: ROCHESTER , NY

Re: That *&$%#@!! Deflation Button

Postby 544kenmatt » Thu Dec 19, 2019 2:02 pm

yes, the deflation button was hard to locate and then hard to push while anchoring the block. My surgeon inflated me and deflated at week 2 and I almost passed out! My blood pressure dropped and I had to lie down for 15 minutes. Bottom line was: I was still too swollen and inflamed from the procedure. after six weeks, I started cycling at home (1 week before activation appointment) but I felt that I was ready. I started when my scrotum was very warm and loose, so I could feel all of the landmarks on the device.
Now that I have had practice, I can locate things easier when my scrotal skin is tighter and Im not quite as squeamish about rooting around in my ball sac.
im definitely shorter and skinnier, which is a disappointment but not unexpected.

You seem like the kind of guy who will figure all this out.
AMS 700 LGX 10/31/2019. age 63

stephen54
Posts: 481
Joined: Sun Nov 10, 2019 11:43 am
Location: Chicago

Re: That *&$%#@!! Deflation Button

Postby stephen54 » Fri Dec 20, 2019 5:32 pm

544kenmatt wrote:yes, the deflation button was hard to locate and then hard to push while anchoring the block. My surgeon inflated me and deflated at week 2 and I almost passed out! My blood pressure dropped and I had to lie down for 15 minutes. Bottom line was: I was still too swollen and inflamed from the procedure. after six weeks, I started cycling at home (1 week before activation appointment) but I felt that I was ready. I started when my scrotum was very warm and loose, so I could feel all of the landmarks on the device.
Now that I have had practice, I can locate things easier when my scrotal skin is tighter and Im not quite as squeamish about rooting around in my ball sac.
im definitely shorter and skinnier, which is a disappointment but not unexpected.

You seem like the kind of guy who will figure all this out.


Oh, I'll figure this stuff out. My (our) motivation level is very high.

I'm grateful for your note. Thank you. So much of this is about validating an experience against that of other guys who've gone there before. Is it ok if I message you later privately at some point? I was in my doctor's office again today (peeing blood, super fun) and we agreed to let my sac calm down until Jan 3, then he wants me to inflate/deflate multiple times in his presence to be sure I've got it figured out. Crazy. But god almighty we are motivated to use this sweet new thing...
54 yrs. Blessed with highly sexual 52 yr old wife. Pills 10 years, then 9 yrs Trimix. 28 cm Titan Touch XL 2019, Laurence Levine, Rush Univ Med Ctr, Chicago. Implant = nonstop fun. Hypogonadal, so also 10+ years testosterone replacement.

oldbeek
Posts: 2547
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Location: Los Angeles area

Re: That *&$%#@!! Deflation Button

Postby oldbeek » Fri Dec 20, 2019 10:15 pm

My doc left me 80-90 % pumped. My next appointment was in 4 weeks with no pain meds. Excrutiating pain. I asked about pulling down the pump. He said don't touch it. At 4 weeks it was attached to the left testicle. His assistant deflated it for me at the office and was not gentle. I went through the roof. Up to then I had tried to deflate it but just could not inflict that much pain on myself. I went home and soaked it in the hot tube (106 degree) twice a day. I pulled and pulled and finally got it detached from my left nut after about 2 more weeks. Sex was not without pain till week 8. You will be able to feel all 3 tubes going into the pump block when swelling is gone. I hold onto the tubes to stabilize the pump and block when pumping and releasing. Push the release button and you will hear a buzz noise. You don't have to keep holding the button to get full release. Just squeeze your dick till all the saline is back into the reservoir. Some folks make one quick pump to pop the button into pump mode at this time. I find it is not necessary. Good luck. It gets better.
82, good health, RP 7-2017, all nerves taken , PSA 0.05, 4-18,, .07 1/19,.05 4/19, .03 11-21, .04 11-23, implanted 4-1-18, Infra-pubic, AMS lgx 15 cm with 5cm rte. Implant at USC Keck. Dr Boyd and Dr Loh Doyle 6.5 x 5, 800 AUS 7-21-20

544kenmatt
Posts: 221
Joined: Sun Nov 17, 2019 10:17 am
Location: ROCHESTER , NY

Re: That *&$%#@!! Deflation Button

Postby 544kenmatt » Sat Dec 21, 2019 12:04 am

sure, message anytime.
AMS 700 LGX 10/31/2019. age 63

Gt1956
Posts: 3041
Joined: Fri Apr 05, 2019 2:47 pm

Re: That *&$%#@!! Deflation Button

Postby Gt1956 » Sat Dec 21, 2019 3:45 am

I'm missing something here. Why would you pee blood? The bladder & urethra do not contain any of the implant parts. I would be inclined to suspect some kind of bladder infection. Perhaps from the catheter?
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months

oneperson
Posts: 238
Joined: Tue Oct 22, 2019 10:54 am

Re: That *&$%#@!! Deflation Button

Postby oneperson » Sat Dec 21, 2019 6:03 am

Gt1956 wrote:I'm missing something here. Why would you pee blood? The bladder & urethra do not contain any of the implant parts. I would be inclined to suspect some kind of bladder infection. Perhaps from the catheter?


In absence of injuries, pee blood is a clear symthom of bladder infection.
Implanted September 12nd 2019. Coloplast Titan OTR 20 cm + 1 cm RTE. Dr Cruz (Spain). Liver transplanted. Born in 1967. ED since 24 in different degrees. Pills stopped working in March 2019. Injections caused much pain.

stephen54
Posts: 481
Joined: Sun Nov 10, 2019 11:43 am
Location: Chicago

Re: That *&$%#@!! Deflation Button

Postby stephen54 » Sat Dec 21, 2019 7:47 am

oldbeek wrote:My doc left me 80-90 % pumped. My next appointment was in 4 weeks with no pain meds. Excrutiating pain. I asked about pulling down the pump. He said don't touch it. At 4 weeks it was attached to the left testicle. His assistant deflated it for me at the office and was not gentle. I went through the roof. Up to then I had tried to deflate it but just could not inflict that much pain on myself. I went home and soaked it in the hot tube (106 degree) twice a day. I pulled and pulled and finally got it detached from my left nut after about 2 more weeks. Sex was not without pain till week 8. You will be able to feel all 3 tubes going into the pump block when swelling is gone. I hold onto the tubes to stabilize the pump and block when pumping and releasing. Push the release button and you will hear a buzz noise. You don't have to keep holding the button to get full release. Just squeeze your dick till all the saline is back into the reservoir. Some folks make one quick pump to pop the button into pump mode at this time. I find it is not necessary. Good luck. It gets better.


That...sounded so damn unpleasant. To say the least. My god man.

But I appreciate your description of how you're acquainting yourself and orienting use of the button. Thank you. Honestly, everyone has some helpful advice here and I certainly appreciate.
54 yrs. Blessed with highly sexual 52 yr old wife. Pills 10 years, then 9 yrs Trimix. 28 cm Titan Touch XL 2019, Laurence Levine, Rush Univ Med Ctr, Chicago. Implant = nonstop fun. Hypogonadal, so also 10+ years testosterone replacement.

stephen54
Posts: 481
Joined: Sun Nov 10, 2019 11:43 am
Location: Chicago

Re: That *&$%#@!! Deflation Button

Postby stephen54 » Sat Dec 21, 2019 8:01 am

Gt1956 wrote:I'm missing something here. Why would you pee blood? The bladder & urethra do not contain any of the implant parts. I would be inclined to suspect some kind of bladder infection. Perhaps from the catheter?


I would have thought so, too, but my surgery was over a month ago and, post-op, I didn't have any hint of blood in the urine, nothing.

Doctor got me in to the office yesterday and physical exam was fine, lots of blood in urine but no bacteria - so he takes a look, endoscopically (ie, performed a cystoscopy). Again, not the most pleasant procedure, but fuck it at this point...just looking for answers and reassurance that I'm ok. So my doctor threads the endoscope into my penis and looks up my urethra, lower urinary tract, bladder, and prostate. Prostate part highly un-enjoyable. Thankfully, he said everything was perfectly clean. Which is a hell of a relief, to tell you the truth, because of the bad shit (I mean...the seriously bad shit) that could have been occurring.

So he talked about how, via the catheter during surgery, something could have been damaged enough and left a little pocket of fluid/blood which, for whatever reason, decided to let loose, but he agrees it's pretty unusual and odd and even more so that it's happening over 4 weeks out. And it wasn't a speck of blood or a pink tinge. It was pretty fucking crazy to tell the truth...extremely alarming to see the volume of brownish deep red pee keep coming and coming.

Other possibility in my book...and this is not necessarily supported by the anatomy, but it is curious to me...when I had to go in to the office to get deflated the day prior, the urology fellow who deflated me, when he got the button to activate he squeezed my dick hard. Then, harder. Then? Insanely fucking hard. In my newbie opinion, anyway. Hard enough that I felt the cylinders seemingly crinkle down. And I know he did more than we had done prior on my 4 week activation visit, because he left me truly deflated...I think I left the office the day prior with some fluid still in the cylinders. So my point is, the day I started peeing scary ass blood, that day started with one hell of a crazy manipulation of my sac to drive edema out, followed by an extremely tight-fisted penis crushing. So I don't see how that puts blood into my lower urinary tract exactly. Like...that anatomy does not wash for me. But the coincidence is odd.

Knock on wood, 12 hours later the urine is clearing up...

This new implant world is so odd!
54 yrs. Blessed with highly sexual 52 yr old wife. Pills 10 years, then 9 yrs Trimix. 28 cm Titan Touch XL 2019, Laurence Levine, Rush Univ Med Ctr, Chicago. Implant = nonstop fun. Hypogonadal, so also 10+ years testosterone replacement.


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