Implanting while Peyronie still in active phase?

The final frontier. Deciding when, if and how.
hope794
Posts: 278
Joined: Wed May 30, 2018 7:59 am

Implanting while Peyronie still in active phase?

Postby hope794 » Wed Oct 21, 2020 8:51 am

Hello brothers. As you know, i'm considering an implant.

The main issue is that my Peyronie's disease, which i have since like 6 years, is still progressing, and i still feel some numbness, pain, discomfort and see from time to time some worsening of lenght, girth, erectile function and so on.

My question is: did anyone here got implanted while his Peyronie's was still in active phase? if yes, which have been your results? Did you mantain or got back lenght and girth? Did the pain disappear? Did the disease stop?

Tell me something about it.. I'm scared that it can worsen the situation and, if the fibrosis progresses, it could attack the nerves..

Thank you really much for sharing
26 yo from Italy.Peyronie's disease probably since 2015.Since then,penis bends of about 20-25°. PD keeps progressing. Moderate ED since 4 years and things getting worse.From pornstar-like to depressed, but still fighting for a solution.

SW0110
Posts: 648
Joined: Sun Sep 02, 2018 6:15 pm
Location: Central Kentucky

Re: Implanting while Peyronie still in active phase?

Postby SW0110 » Wed Oct 21, 2020 8:58 pm

My surgeon did not even consider it. Made no difference. Once the titan goes in, peyronies is done. He said it made no difference at all.
18 cm plus 1 rte titan installed March 2019. Revision March 2020 by Dr. Andrew Todd, Richmond KY. He replaced the titan with an AMS 700 LGX 18 cm cylinder plus 2 rte for 20 cm total length.

SW0110
Posts: 648
Joined: Sun Sep 02, 2018 6:15 pm
Location: Central Kentucky

Re: Implanting while Peyronie still in active phase?

Postby SW0110 » Wed Oct 21, 2020 9:02 pm

Sorry. Hit the wrong button.

Once titan was in and cycling and using it. I had no more thought about peyronies. Gone like the wind. 2.5 years of hell, gone overnight.

No more bend, no hourglassing. Cannot find plaque anywhere. Penis is straight. At surgery it was about 35 degrees. Over time I am within quarter inch of pre ed length.
18 cm plus 1 rte titan installed March 2019. Revision March 2020 by Dr. Andrew Todd, Richmond KY. He replaced the titan with an AMS 700 LGX 18 cm cylinder plus 2 rte for 20 cm total length.

hope794
Posts: 278
Joined: Wed May 30, 2018 7:59 am

Re: Implanting while Peyronie still in active phase?

Postby hope794 » Thu Oct 22, 2020 6:11 am

Thanks for the reply, both here and on peyroniesforum. I really appreciate that!

Anyone else also willing to share his experience?
26 yo from Italy.Peyronie's disease probably since 2015.Since then,penis bends of about 20-25°. PD keeps progressing. Moderate ED since 4 years and things getting worse.From pornstar-like to depressed, but still fighting for a solution.

Andy1955
Posts: 36
Joined: Sat May 26, 2018 10:01 pm

Re: Implanting while Peyronie still in active phase?

Postby Andy1955 » Thu Oct 22, 2020 6:53 am

Just like above!

My Dr used the AMS CX. After surgery and the initial pump by the surgical team I had about 30 degrees of curvature upward. That was immediate from about 90 degrees. As SW stated no more hourglass and the plaque seems non existent. As information; from my initial diagnosis to the surgery was about 6 months.

It has been over two years since my surgery and you can not find a hint of the Peyronies. I just had my annual visit to the Urologist and no issues with the implant.

Pick your surgeon and listen to him/her. Good luck!
Inplanted May 24, 2018. AMS 700 CX, MS Pump. 21cm x 12mm. Peyronies and ED. Pills stopped working and extreme curvature

hope794
Posts: 278
Joined: Wed May 30, 2018 7:59 am

Re: Implanting while Peyronie still in active phase?

Postby hope794 » Thu Oct 22, 2020 9:40 am

Andy1955 wrote:Just like above!

My Dr used the AMS CX. After surgery and the initial pump by the surgical team I had about 30 degrees of curvature upward. That was immediate from about 90 degrees. As SW stated no more hourglass and the plaque seems non existent. As information; from my initial diagnosis to the surgery was about 6 months.

It has been over two years since my surgery and you can not find a hint of the Peyronies. I just had my annual visit to the Urologist and no issues with the implant.

Pick your surgeon and listen to him/her. Good luck!



Thank you really much Andy! Was your Peyronie's still in active phase? (So you were feeling pain, or discomfort, or you still were seeing worsening and so on)?
26 yo from Italy.Peyronie's disease probably since 2015.Since then,penis bends of about 20-25°. PD keeps progressing. Moderate ED since 4 years and things getting worse.From pornstar-like to depressed, but still fighting for a solution.

Andy1955
Posts: 36
Joined: Sat May 26, 2018 10:01 pm

Re: Implanting while Peyronie still in active phase?

Postby Andy1955 » Thu Oct 22, 2020 9:58 pm

I did still have some of the pain but it was getting better. I did have the hourglass symptom and was loosing both length and girth. In my case I had three distinct plaques at or near the base of the penis and on top. So to answer your question directly; I would say yes, I was still in the active phase but nearing the end.

I have regained the majority of my former size. My Dr did indicate most patients that have Peyronies do not get all of there length back but do get close. In my case I would say I’m about 1/2” less than I was. On the positive side; I do not have to worry rather or not I can get an erection.
Inplanted May 24, 2018. AMS 700 CX, MS Pump. 21cm x 12mm. Peyronies and ED. Pills stopped working and extreme curvature

Quester
Posts: 286
Joined: Mon Nov 19, 2018 9:10 pm

Re: Implanting while Peyronie still in active phase?

Postby Quester » Thu Oct 22, 2020 11:31 pm

I was on pentoxifylline at the time of implant, that medication had shown some help. It may have helped me I’m not sure if I still in the active stage or not. In my case it was a mild curving and hour glassing.

I was under treatment for Peyronie’s for about a year using a VED and traction device. During that time I learned that a implant is the gold standard for treatment of Peyronie’s. Using this site and others I learned a lot about the disease and implants

After facing ED then Peyronie’s I was ready for a better sex life.

When I first started cycling I had some pain in the areas of scar tissue as the scar tissue stretched or at least that was my thought.

At where I am at on year post OP I’m at my previous ED size.

As my urologist said an implant will fix both my ED and Peyronie’s

Good luck
ED 20 years, Peyroine's Disease diagnosed in 2018, at 57 years I was implanted September 3rd 2019 at the Salt Lake City VA Medical Center, AMS700 CX 21cm + 2cm RTE

hope794
Posts: 278
Joined: Wed May 30, 2018 7:59 am

Re: Implanting while Peyronie still in active phase?

Postby hope794 » Fri Oct 23, 2020 11:19 am

Thanks everyone for your effort to help me, i found brothers rather than friends here on FT. Thank you!
26 yo from Italy.Peyronie's disease probably since 2015.Since then,penis bends of about 20-25°. PD keeps progressing. Moderate ED since 4 years and things getting worse.From pornstar-like to depressed, but still fighting for a solution.


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