Plz help

The final frontier. Deciding when, if and how.
Jato1229
Posts: 67
Joined: Wed Jan 29, 2020 12:24 pm

Plz help

Postby Jato1229 » Thu Dec 10, 2020 10:17 am

So I went into big detail just now about my problem and somehow it got deleted and didn’t post so I’m gonna make a long story short. I have very very bad Peroni‘s disease 90° upward curve. I had several injections which only caused a ton of pain and made the injection site purple. I also had graft surgery about a year and a half ago which made my problem even worse. I lost about 70% of my sensitivity. So I decided to call Dr Kramer only to find out he no longer works in that office and managed to get a new email which he responded and said he will be open in about six weeks that was two weeks ago. My question is should I wait for him or should I look elsewhere. I live in New Jersey. Sorry about the penmanship, talk to text and I was being called as I was texting .

Gt1956
Posts: 3042
Joined: Fri Apr 05, 2019 2:47 pm

Re: Plz help

Postby Gt1956 » Thu Dec 10, 2020 10:53 am

There is a member on here that had a 90 degree bend up. As I remember it, he was able to get it fixed. But please remember. If you go the implant route, it does take some time for it to straighten out.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months

Jato1229
Posts: 67
Joined: Wed Jan 29, 2020 12:24 pm

Re: Plz help

Postby Jato1229 » Thu Dec 10, 2020 11:32 am

Oh, I didn’t know it will take time. Does anybody know they gentlemen I would like to speak to him.

Waynetho
Posts: 1768
Joined: Wed Nov 27, 2019 11:22 pm
Location: Dallas, TX

Re: Plz help

Postby Waynetho » Thu Dec 10, 2020 11:32 am

Jato1229 wrote:Oh, I didn’t know it will take time. Does anybody know they gentlemen I would like to speak to him.

I think it was Biker60. Maybe he will see this and chime in.
62yo, married 41 yrs. Urolift (x4) 8/12/19. AMS 700CX 15cm (no RTE) penoscrotal 10/28/19, Frisco, TX. PD 1995/ED 2011. Cialis helped but hinged. (1995)L:6/G:5.5+, (2019)Pre-op L:5/G:4.5, (2/2020)L:6.0/G:5.0

Jato1229
Posts: 67
Joined: Wed Jan 29, 2020 12:24 pm

Re: Plz help

Postby Jato1229 » Thu Dec 10, 2020 12:30 pm

Hope so.

ViaSwiss
Posts: 624
Joined: Fri May 24, 2019 9:09 am

Re: Plz help

Postby ViaSwiss » Thu Dec 10, 2020 2:00 pm

Karpman, Clavill, Eid, Perito all deal with tough Peyronies. Karpman and Clavill are both around 18-19k out of pocket. Although none of them are in NJ

Are you able to still have sex at all? How and when did the Peyronies begin? Can you post a pic?
Age 37. Venous Leakage & Post Finasteride Syndrome (PFS) since age 18.
Original Implant | June 25, 2021 | 20cm Titan w 1.5cm & 1cm RTEs
Revision | November 16, 2021 | 26cm | Dr. Hakky

Gt1956
Posts: 3042
Joined: Fri Apr 05, 2019 2:47 pm

Re: Plz help

Postby Gt1956 » Thu Dec 10, 2020 2:33 pm

It is biker60. I checked his posts. I didn't find an exact timeline. But at 5 months he posted that it was straight. Not sure if he meant straight in the flacid state. But at least straight when inflated.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months

sweaterfan
Posts: 65
Joined: Sun Sep 06, 2020 7:39 pm
Location: Austin TX

Re: Plz help

Postby sweaterfan » Thu Dec 10, 2020 2:48 pm

On Dr. Eid's site, have a look at patient number 7 who had a 90-degree bend and straightened out over several months:

https://www.urologicalcare.com/contents ... -gallery-2

There are two other patients with Peyronie's on that page.
Born 1956, TRT, Peyronies (no improvement after 1 cycle of Xiaflex so discontinued), using alprostadil but have possible VL. Considering an implant. Aquablation for BPH Nov 2 2020, TURP 6/14/2021.

MK1965
Posts: 625
Joined: Thu May 24, 2018 5:32 pm

Re: Plz help

Postby MK1965 » Thu Dec 10, 2020 4:38 pm

Visaviss,
Call Dr Clavell if you don’t mind traveling to Houston.
He operates now 2 days a week ( Tuesday and Wednesday).
He uses one hospital and one ambulatory surgery center.
You can check his art work at YouTube when you search “ Clavell uro”
And he also has website menshealthhooston.com
MK
IPP 9/5/18; TITAN OTR 18 +1cm RTE,Prostate Ca at 51 y/o; RARP 11/2/16, ED Post RP, Cialis, Viagra, VED,TRIMIX painful, BIMIX ineffective,lost 2+ inches of length after RP. Revision 12/2/20 by Dr Clavell, AMS 700 CX, L 21 R 21+1.5 RTE.

MK1965
Posts: 625
Joined: Thu May 24, 2018 5:32 pm

Re: Plz help

Postby MK1965 » Thu Dec 10, 2020 4:41 pm

Jato1229,
I addressed my post to wrong person.
If you want any info and my experience with Dr Clavell, send me a PM.
MK
IPP 9/5/18; TITAN OTR 18 +1cm RTE,Prostate Ca at 51 y/o; RARP 11/2/16, ED Post RP, Cialis, Viagra, VED,TRIMIX painful, BIMIX ineffective,lost 2+ inches of length after RP. Revision 12/2/20 by Dr Clavell, AMS 700 CX, L 21 R 21+1.5 RTE.


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