It's happening! I'm going to be joining the ranks

The final frontier. Deciding when, if and how.
Griffin
Posts: 17
Joined: Sun Jan 03, 2021 6:47 am

It's happening! I'm going to be joining the ranks

Postby Griffin » Thu Apr 29, 2021 4:52 pm

Firstly, sorry there's no signiture. My phone doesn't give me the option and my daughter uses my laptop for her A-levels. 41, ED going on a couple of years, diagnosed excessive Peyronie's, sent away to do some time on PEDs and tumessance. Didn't help. No curvature but lost an inch girth under glans

So, it took some time bouncing around urologists here in England but I eventually I got to the man. I went for my follow up today at the end of my wits, armed with notes, measurements and a speach lol. My urologist just said 'yeah you need an implant'
Crikey! I thought I was going to have a battle and leave with injections.
They aren't mega volume here in Nottingham but 3rd busiest in the country.

The hundreds of hours on here gave me invaluable knowledge and sent me we'll informed.
He explained that the NHS havnt let them perform implants since March 20 and there will be 10 men or so ahead of me when they practice again on the list but still.... I floated to my van a happy boy :D
I'll pass my knowledge on as I go as you all did for for us.
42 UK, Peyronie's plaques. No bending, just substandard functionality and some miss-shaping. Jumped through all the NHS hoops (various pills, VED, injections) finally getting implanted 04/10/22

ViaSwiss
Posts: 624
Joined: Fri May 24, 2019 9:09 am

Re: It's happening! I'm going to be joining the ranks

Postby ViaSwiss » Thu Apr 29, 2021 6:35 pm

Amazing, I have been searching for the go ahead for 3 years. Hope to receive similar news soon!
Age 37. Venous Leakage & Post Finasteride Syndrome (PFS) since age 18.
Original Implant | June 25, 2021 | 20cm Titan w 1.5cm & 1cm RTEs
Revision | November 16, 2021 | 26cm | Dr. Hakky

newbie443
Posts: 1931
Joined: Fri Dec 01, 2017 9:41 pm
Location: Sedgwick county, Kansas USA

Re: It's happening! I'm going to be joining the ranks

Postby newbie443 » Thu Apr 29, 2021 9:48 pm

Congratulations. Having 10 or so in front of you will be a good thing after over a year of none is a good thing I would think. Give the doctor some cases to knock the rust off so to speak. Best of luck going forward with this.
Injections failed. Implanted 3-21-18 AMS 700 LGX 21 + 1 RTE 100 cc reservoir 6.5" L 5" G Dr. Kramer.

Proximal Perforation Sling Repair 4/13/21 Dr. Broghammer

66 years young.

Will show and tell and talk with others.

Griffin
Posts: 17
Joined: Sun Jan 03, 2021 6:47 am

Re: It's happening! I'm going to be joining the ranks

Postby Griffin » Fri Apr 30, 2021 3:32 am

Keep at it Viaswiss, you'll get there. My insurance didn't cover me either so I'm very lucky to have the NHS. Good luck.
42 UK, Peyronie's plaques. No bending, just substandard functionality and some miss-shaping. Jumped through all the NHS hoops (various pills, VED, injections) finally getting implanted 04/10/22

Griffin
Posts: 17
Joined: Sun Jan 03, 2021 6:47 am

Re: It's happening! I'm going to be joining the ranks

Postby Griffin » Fri Apr 30, 2021 3:39 am

Thanks newbie443. I like your thinking, I wouldn't want to be the first :shock:
Hope your enjoying your LGX. My urologist doesn't tend to use them he seems to think that they are for larger cases?? Basically he said he uses whatever he can get from our NHS but mostly uses AMX 700 CX models.
42 UK, Peyronie's plaques. No bending, just substandard functionality and some miss-shaping. Jumped through all the NHS hoops (various pills, VED, injections) finally getting implanted 04/10/22

Blah1109
Posts: 121
Joined: Tue Mar 09, 2021 8:23 pm

Re: It's happening! I'm going to be joining the ranks

Postby Blah1109 » Fri Apr 30, 2021 8:43 am

Hi good morning all, very soon I will also be joining the club, may 21th coming up very soon and very nervous, I hope all goes well for you.

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45acp1911
Posts: 25
Joined: Thu Mar 11, 2021 8:27 am

Re: It's happening! I'm going to be joining the ranks

Postby 45acp1911 » Fri Apr 30, 2021 1:16 pm

I too will become a card carrying member on 17 May. Wishing you the best of luck and will be able to welcome you on the 18th with my experience. A little nervous to say the least. :shock:
73YO, married; Peyronie's 2008; 16 dot plication 2010; Levitra, Cialis, Muse; Exdex 2019. Implanted 5/17/21 Coloplast Titan Touch Zero Degree, 125cc Cloverleaf Res, 18cm w/extenders. Performed by Ben Breyer, MD, MAS Professor and Chief of Urology, UCSF

AN02020
Posts: 44
Joined: Fri Jan 01, 2021 6:25 am

Re: It's happening! I'm going to be joining the ranks

Postby AN02020 » Fri Apr 30, 2021 4:29 pm

I will be impatiently waiting to hear a positive outcome from your operations. Please keep us updated.
40 Years; Suffering from ED due to taking SSRIs for 3 months; using Cialis 5 mg daily

LeRoastBeef
Posts: 681
Joined: Mon Sep 17, 2018 11:09 am

Re: It's happening! I'm going to be joining the ranks

Postby LeRoastBeef » Fri Apr 30, 2021 4:44 pm

UK here, just got word that I'll be going ahead here too.
I'm writing more to remind myself to respond more in the morning.

There were delays due to lockdown up in Scotland too. They are trying to get through the patients as best they can. Things are moving quicker than ever. The NHS is great when they are allowed to do their jobs!
Implanted with AMS 700 lgx, 2021.
30's
UK

Griffin
Posts: 17
Joined: Sun Jan 03, 2021 6:47 am

Re: It's happening! I'm going to be joining the ranks

Postby Griffin » Fri Apr 30, 2021 5:41 pm

Posititive news all round then guys. And positive days are few and far between with Ed as you know. Good to hear some of you have dates although, nervracking I bet.
I look forward to following your experiences and wish you all the luck in the world.
Always good to hear from other UK guys too LeRoastbeef. We'll be walking around with our implants in no time I'm sure.
Personally, I've been told I have to go back soon for an injection to 'see what we are working with' as he put it. Then I suppose it all hangs on the pandemic.
42 UK, Peyronie's plaques. No bending, just substandard functionality and some miss-shaping. Jumped through all the NHS hoops (various pills, VED, injections) finally getting implanted 04/10/22


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