How impotent were you from prostatectomy?
Re: How impotent were you from prostatectomy?
Well it's been 22 months since I had a Prostatectomy but 7 months after had a massive heart attack ended up with a triple bypass and aorta valve replacement. Then 5 months later got covid. I wish someone would have told me to use a pump asap didn't think I had a dick anymore setting down to pee. Tried pills nothing worked started shots a month ago hate them hard on like a 5 year old. I what the size it comes out of the pump like. they had me start at 5 and go up 5 each time now at 25 to get a 1/2 a hard on. They said don't go pass 40 ?? Talked to a doctor about implant said I have to do shots for 3 more months? Had 2 lower back surgeries still have back issues, had prostate cancer and Prostatectomy and a heart problem fitted with a loop recorder in my chest. I still want sex my wife only 52 and I am 64.
Re: How impotent were you from prostatectomy?
Welcome to the forum. It sounds like you've had a tough go of it. I'm sorry to hear that. Do you know what mix you're on and what strength?
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.
Re: How impotent were you from prostatectomy?
RP in 2016 no erection mat all after that nothing worked to get it up. 2018 37 rounds or radiotherapy due to prostrate cancer returning in the prostrate bed. This made the incontinence I had after the RP worse and still nothing worked to give me an erection. Then 2020 I can’t remember the date I woke up in the morning with a raging hard on 
. The wife and I were over the moon . But getting erect and staying erect was hit and miss. Late 2020 I was found to be suffering from low testosterone. So was put on testosterone replacement (Testogel) this was working great until August 2021 when a routine psa blood test showed my psa at 3.4 it had been undetectable until then. Testosterone replacement was stopped and slowly the frequency or erections became less. My psa was being checked regularly and found to be doubling every two months. November 2021 it was confirmed by my oncologist that the rising psa was coming from a malignant tumour in my left hip and one in my lower spine. I am still deciding along with my oncologist what treatment to have if any. Because I also suffer with Parkinson’s disease which is also worsening. So it’s all about the quality of my life at the moment. I can still get a good enough erection for sex with my wife even with my testosterone level of a castrated man although they are not as often as I would like them. My moto now is never waste an erection
. The wife and I were over the moon . But getting erect and staying erect was hit and miss. Late 2020 I was found to be suffering from low testosterone. So was put on testosterone replacement (Testogel) this was working great until August 2021 when a routine psa blood test showed my psa at 3.4 it had been undetectable until then. Testosterone replacement was stopped and slowly the frequency or erections became less. My psa was being checked regularly and found to be doubling every two months. November 2021 it was confirmed by my oncologist that the rising psa was coming from a malignant tumour in my left hip and one in my lower spine. I am still deciding along with my oncologist what treatment to have if any. Because I also suffer with Parkinson’s disease which is also worsening. So it’s all about the quality of my life at the moment. I can still get a good enough erection for sex with my wife even with my testosterone level of a castrated man although they are not as often as I would like them. My moto now is never waste an erection I had a RP in 2016 and a year later My psa started to rise resulting in having 37 sections of radio therapy. 2021 Testosterone replacement stopped due to psa rising again. Oncologist says most likely coming from a malignant source. I am at my wits end.
Re: How impotent were you from prostatectomy?
rich,
I'm sure sorry to hear about your continued troubles. My PSA has risen over the years to .3 which is very low if I still had a prostate, which I don't. So there is that bit of concern but otherwise things seem fine. I pray you'll get some good news for a change.
Good luck.
I'm sure sorry to hear about your continued troubles. My PSA has risen over the years to .3 which is very low if I still had a prostate, which I don't. So there is that bit of concern but otherwise things seem fine. I pray you'll get some good news for a change.
Good luck.
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.
Re: How impotent were you from prostatectomy?
Motorheadrulz wrote:RPP in Jan 2020, so it’s been 2 yrs and cancer free.
Short answer… completely impotent; no blood flow or morning wood, and normally turtle headed hiding. I think a better question is: who has recovered from RPP and how long did it take?
Six months after surgery I tried cialis for a few months- expensive but no results at all.
Then tried VED for a few months and hated it.
I’ve been on trimix for about a year. I don’t like it, but it works.
I hope I never have to consider an implant.
Many guys on here report their wood came back after a couple years. I’m hopeful this happens to me. However, my uro said that most of his patients recover in a year, but if I haven’t found any wood then I probably never will.
24 months is average. some more some less.Hang in there. if doc says he saved your nerves, they may come back.
82, good health, RP 7-2017, all nerves taken , PSA 0.05, 4-18,, .07 1/19,.05 4/19, .03 11-21, .04 11-23, implanted 4-1-18, Infra-pubic, AMS lgx 15 cm with 5cm rte. Implant at USC Keck. Dr Boyd and Dr Loh Doyle 6.5 x 5, 800 AUS 7-21-20
Re: How impotent were you from prostatectomy?
bldoink wrote:rich,
I'm sure sorry to hear about your continued troubles. My PSA has risen over the years to .3 which is very low if I still had a prostate, which I don't. So there is that bit of concern but otherwise things seem fine. I pray you'll get some good news for a change.
Good luck.
.3 with + margins I would be worrying. Praying for you man. What is your age?
82, good health, RP 7-2017, all nerves taken , PSA 0.05, 4-18,, .07 1/19,.05 4/19, .03 11-21, .04 11-23, implanted 4-1-18, Infra-pubic, AMS lgx 15 cm with 5cm rte. Implant at USC Keck. Dr Boyd and Dr Loh Doyle 6.5 x 5, 800 AUS 7-21-20
Re: How impotent were you from prostatectomy?
It seems to be holding steady for now. I get checked every 6 months or so. I'm 69. It's been going on 11 years now. However I'm aware it may be the ultimate cause of my end. Hopefully not for a good many years yet. Of course that's not in my hands.
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.
Re: How impotent were you from prostatectomy?
I had RP in August 2021. Daily sildenafil with zero result. I can pump up to 7" but even with a ring it doesn't last. Currently doing injections and I have an appointment in March with Dr Brady in Orlando to discuss an implant/
66, married 40+ years. Robotic Prostatectomy with 50% of nerves spared 8/21. Cancer returned 4/22. 38 Radiation treatments. Coloplast Titan implant 20cm + 2cm with Dr. Paul Perito 10/22. Cancer is back 3/23.
Re: How impotent were you from prostatectomy?
I was completely impotent following my partial nerve sparing RALP (daVinci) back in 2012. About 3 months post surgery my limp noodle slowly started coming back to life with the help of daily Cialis, vitamin B complex, and VED usage. At 14 months post surgery, I was able to penetrate a few minutes with the help of 100g Viagra. Erection quality slowly improved with PDE5’s and supplements but rarely lasted long enough for either of us to orgasm via intercourse. By the 2 year mark, recovery seemed to plateau and inconsistent. Best results with the PDE5’s were on an empty stomach with limited alcohol and perfect timing. Of coarse that ruled out any spontaneity or the way date night used to play out.
Frustrated, I made an appointment with my urologist. He suggested injections which I rejected at that time because of needle phobia. He also mentioned some of his patients in similar situations were having success with testosterone supplements along with the PDE5’s. He said it was controversial for those with prostrate cancer and sited conflicting studies. He said he would not recommend nor refuse testosterone supplements but presented the information and left it to my choice. I’m usually not a gambler but I so wanted a normal sex life so I left his office with a month’s supply of Androgel samples. I quickly noticed a kick in my libido and the PDE5’s were working much better. I continued with Androgel & pills for about 18 months with satisfactory results.
At 3-1/2 yrs post surgery I received the dreaded news that my PSA was rising again. I immediately stopped the Androgel while my PSA was monitored every 45 days. After 6 months of watchful waiting it was confirmed my cancer was back. I started radiation treatments to the prostrate bed around the 4 year anniversary of my surgery. I remember asking the oncologist if the radiation would destroy the nerves that were spared during the surgery. He responded, “it’s likely but there’s a small chance not”. Well the odds played out and It wasn’t long before the radiation took its toll and the pills stopped working.
My urologist again recommended injections and this time I decided to give it a try since there was little hope of nerve function ever returning. Injections worked very well for awhile and in hindsight I wish I had confronted my needle fears the first time my Urologist recommended them. But now injections are fading after multiple dosing & Trimix strength increases. I reached the final frontier in my 9+ years of battling ED after radical prostatectomy. I’m ready for IPP surgery as soon as my cardiologist clears me.
On the plus side my PSA counts have remained <0.05 since radiation and I didn’t experience any Post-Prostatectomy Incontinence to speak of which I’m very grateful for.
Frustrated, I made an appointment with my urologist. He suggested injections which I rejected at that time because of needle phobia. He also mentioned some of his patients in similar situations were having success with testosterone supplements along with the PDE5’s. He said it was controversial for those with prostrate cancer and sited conflicting studies. He said he would not recommend nor refuse testosterone supplements but presented the information and left it to my choice. I’m usually not a gambler but I so wanted a normal sex life so I left his office with a month’s supply of Androgel samples. I quickly noticed a kick in my libido and the PDE5’s were working much better. I continued with Androgel & pills for about 18 months with satisfactory results.
At 3-1/2 yrs post surgery I received the dreaded news that my PSA was rising again. I immediately stopped the Androgel while my PSA was monitored every 45 days. After 6 months of watchful waiting it was confirmed my cancer was back. I started radiation treatments to the prostrate bed around the 4 year anniversary of my surgery. I remember asking the oncologist if the radiation would destroy the nerves that were spared during the surgery. He responded, “it’s likely but there’s a small chance not”. Well the odds played out and It wasn’t long before the radiation took its toll and the pills stopped working.
My urologist again recommended injections and this time I decided to give it a try since there was little hope of nerve function ever returning. Injections worked very well for awhile and in hindsight I wish I had confronted my needle fears the first time my Urologist recommended them. But now injections are fading after multiple dosing & Trimix strength increases. I reached the final frontier in my 9+ years of battling ED after radical prostatectomy. I’m ready for IPP surgery as soon as my cardiologist clears me.
On the plus side my PSA counts have remained <0.05 since radiation and I didn’t experience any Post-Prostatectomy Incontinence to speak of which I’m very grateful for.
A-69, M-44, Battling ED since partial NS-Prostatectomy 2012 plus SRT for PCa return 2016
Pills & injections ran their course. Implant 11/11/22 by Dr. Eid.
Titan Classic 22cm, LH cylinder trimmed, Ectopic reservoir placement.
Pills & injections ran their course. Implant 11/11/22 by Dr. Eid.
Titan Classic 22cm, LH cylinder trimmed, Ectopic reservoir placement.
Re: How impotent were you from prostatectomy?
RALP two year anniversary is today 30 Jan 2022. Gleason 8 aggressive cancer. Nerve sparing surgery. Biopsy of the prostate resulted in downgrade to Gleason 7, no cancer in the margins and no cancer in the one lymph node removed.
It took about 9 months to get any engorgement at all, then very slow progress since. Four months ago I began to experience nocturnal erections two or three times a week that wake me up and could be used for penetration, but I don't think my wife is interested in sex at 4am. I take daily Cialis 5mg and with significant manual stimulation I might be able to attain a useable erection. Caverject 20units will provide a usable erection for 40 minutes, but groin area is noticeably sore (like you had marathon sex when you were younger) for a couple hours.
Every time I consider an implant, I feel there is some slight natural improvement.
It took about 9 months to get any engorgement at all, then very slow progress since. Four months ago I began to experience nocturnal erections two or three times a week that wake me up and could be used for penetration, but I don't think my wife is interested in sex at 4am. I take daily Cialis 5mg and with significant manual stimulation I might be able to attain a useable erection. Caverject 20units will provide a usable erection for 40 minutes, but groin area is noticeably sore (like you had marathon sex when you were younger) for a couple hours.
Every time I consider an implant, I feel there is some slight natural improvement.
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