Help me improve my situation

[sonnyjim]

The reason for my penile implant surgery was that I had some sort of trauma to the penis that caused me a lot of pain for a while and then my erections gradually got worse and worse to the point where I couldn’t stay erect with pills.

My symptoms other than that were: lack of blood flow to glans, glans staying soft, lack of sensation (cannot feel my dick in my pants and can’t feel much during sex), scar-like lumps can be felt on the underside of my penis. Despite that, nothing was found on all the tests I had (ultrasound, mri)

Seeing that the implant cylinders replace the corpus cavernosum, is it safe to say that since I still have all of the same symptoms the damage must of been done to the corpus spongiosum?

And if so, will this ever improve?

I don’t know what else to try.

[AllHailTed]

The reason for my penile implant surgery was that I had some sort of trauma to the penis that caused me a lot of pain for a while and then my erections gradually got worse and worse to the point where I couldn’t stay erect with pills.

My symptoms other than that were: lack of blood flow to glans, glans staying soft, lack of sensation (cannot feel my dick in my pants and can’t feel much during sex), scar-like lumps can be felt on the underside of my penis. Despite that, nothing was found on all the tests I had (ultrasound, mri)

Seeing that the implant cylinders replace the corpus cavernosum, is it safe to say that since I still have all of the same symptoms the damage must of been done to the corpus spongiosum?

And if so, will this ever improve?

I don’t know what else to try.

Have you been to a pelvic physio who might be able to diagnose you with pelvic floor dysfunction? A few of your symptoms (soft glans, low sensation) scream pelvic floor issue to me.

[sonnyjim]

How would I know if it was a pelvic floor issue? I’ve literally had the same issues for 6 years and I just assumed it was due to damaged corpus spongiosum.

I would literally die of happiness if this was a pelvic floor issue and it could still be corrected. Viagra and Cialis also do not improve this, could it still be pelvic floor related ?

[AllHailTed]

How would I know if it was a pelvic floor issue? I’ve literally had the same issues for 6 years and I just assumed it was due to damaged corpus spongiosum.

I would literally die of happiness if this was a pelvic floor issue and it could still be corrected. Viagra and Cialis also do not improve this, could it still be pelvic floor related ?

Look into the symptoms of Hard Flaccid Syndrome and Chronic Pelvic Pain Syndrome and see if these apply to you. Glans not filling up and reduced sensation together scream pelvic floor dysfunction, as the nerves and blood vessels that supply the penis all run through the muscles of the pelvic floor.

That said, the only way to know for sure is to find a pelvic physio who will perform an examination to assess the state of the muscles down there. And yes, being non-responsive to medication doesn't rule this issue out (in my humble opinion).

[sonnyjim]

I literally thought that having an implant would be a fix, but it really wasn’t what I expected. Sure, it gets hard. But what is the point in having a hard dick with a soft glans and no pleasurable feeling or the ability to ejaculate ?

6 years I’ve been reading forums and going to appointments to try and figure out what is wrong with me but there just isn’t any answers, or it is unfixable.

[AllHailTed]

I literally thought that having an implant would be a fix, but it really wasn’t what I expected. Sure, it gets hard. But what is the point in having a hard dick with a soft glans and no pleasurable feeling or the ability to ejaculate ?

6 years I’ve been reading forums and going to appointments to try and figure out what is wrong with me but there just isn’t any answers, or it is unfixable.

Personally I've had ED for so long, from such a young age, that I'd be thrilled with an implanted penis that could get hard on demand, even at the expense of those drawbacks you are experiencing - but that's just me, and understandably you might feel differently.

Again, I encourage you to see a physio who knows how to treat male pelvic floor issues; based on the symptoms you described I strongly suspect they might be able to help.

[sonnyjim]

I literally thought that having an implant would be a fix, but it really wasn’t what I expected. Sure, it gets hard. But what is the point in having a hard dick with a soft glans and no pleasurable feeling or the ability to ejaculate ?

6 years I’ve been reading forums and going to appointments to try and figure out what is wrong with me but there just isn’t any answers, or it is unfixable.

Personally I've had ED for so long, from such a young age, that I'd be thrilled with an implanted penis that could get hard on demand, even at the expense of those drawbacks you are experiencing - but that's just me, and understandably you might feel differently.

Again, I encourage you to see a physio who knows how to treat male pelvic floor issues; based on the symptoms you described I strongly suspect they might be able to help.

Can you ejaculate? Because if you can I would trade places with you.

I am only 33. But I felt like the implant was the only option left for me after 4 years of ED. Never even found out the cause of it either. All of these “specialists” couldn’t even find out.

[Fourtytwo00]

Have you ever checked with a transtectal ultrasound?

They found my tissue / prosthate inflamed. They didn't solve my ED but some symptoms like soft glans, lack of blood and feelings partially subsided after a treatment with cortisone / corticosteroids.

[sonnyjim]

No, never tried that. Although at my young age the urologists probably didn’t think of that.

I had ultrasounds, mri’s, night time erection thing, nerve tests. I just don’t know how to make this any better.

[AllHailTed]

Can you ejaculate? Because if you can I would trade places with you.

I am only 33. But I felt like the implant was the only option left for me after 4 years of ED. Never even found out the cause of it either. All of these “specialists” couldn’t even find out.

I don't mean to sound like a dick but from what I gather you injured yourself through penis enlargement exercises and then got implanted on the NHS. Given the circumstances I think you need to adjust your perspective slightly.

Fourtytwo00 and I have given you two new leads that could help with the remaining issues. I encourage you to follow up on those before giving up on health specialists.