Hard Flaccid, ED, and Implant at 34

[dashriprock24]

Hello everyone!

I'm 34 years old and have been dealing with ED, Hard Flaccid for 15+ years, and more recently the latest 5 years Chronic Pelvic Pain and Pudendal Neuralgia symptoms. This all started afteR a bike accident where I hit my genitals very hard when I was younger. I have been using Cialis on and off for 5 years, have done pelvic floor exercises and stretches for 3 years, have had 3 sexual therapists to address psychological issues, and have tried many innovative treatments like PRP, stem cells, and even Class 4 Laser Therapy. The only thing I haven't tried wholeheartedly is trimix or other injections, mainly because I don't want it to irritate my symptoms.

I have been to many top urologist, including Dr. Lawrence Levine at Rush in Chicago, IL. All have concluded that my blood flow looks great and can't tell why I would struggle with ED. Many have said it's psychological, but I deal with extreme numbness, so much that I can't really feel the left side of my penis, and when I orgasm I can only feel pleasure on the right side. My hard flaccid comes and goes, and my pelvic pain has improved dramatically from the stretches I have done the past few years. All that being said, my ED persists, and even though I can sometimes get an erection for sex, other times I can't, and even when I do I never know how long I'm going to last. This psychological stress has lead to occasional PE as well.

I met with Dr. Helo at the Mayo Clinic in Rochester, MN back in May and she is onboard with me getting an implant and is ready when I am. Was going to fly out and see Eid but I like the idea of being close to home and she has reputable men I have talked to who can advocate for her. I understand I will probably have to get 4-5 revisions in my life unless the implant and procedure improves overtime. 15+ years is long enough and I think I'm ready. I'm happily married and my next step is talking about this to my wife with my doctor. She is hesitant I can tell because of how life changing of a procedure this could be for me if it's not the right move.

Here are my questions if anyone can offer insight:

If I had a venous leak this would be a no brainer, but instead I have problems with numbness and lack of sensation. I know the implant won't fix those sensations, but can anyone chime in who had numbness, got the implant, and felt like it was worth it?

My doctor did the stretch test and I'm sitting at 6.75 in. BPEL I'm usually over 7. I'm planning on pumping a few months to get the most out of that. Are the stretch tests all that reliable? I heard some doctors don't even do them anymore.

Does the penis look/feel substantially different when engorged/aroused compared to when you're not when the implant is fully inflated? In other words, if I wasn't aroused or engorged, would it be relatively the same size or smaller when pumped all the way?

Thank you!

[Happy Toy]

Completely flaccid, mine feels soft and I think, looks pretty normal. I'm 5.5" erect and 4+" fully flaccid. Before my implant, flaccid I was less then an inch , I love my "new" flaccid size. My Dr. did not do a stretch test as far as I know, although he may have done one after I was under during the surgery.

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sitting flaccid (1).JPG (253.46 KiB) Viewed 2939 times

[Fourtytwo00]

ED sucks a lot and everyone is here to get rid of it but as far as I understood you are reporting several symptoms which can't be addressed by an implant but you managed to improve them a lot with pelvic floor therapy. Your situation didn't prevent you to get married, your wife isn't pressing for a surgery and you didn't try injections. I imagine you're having a sexual life, even if stressed, taking pills. Are you sure that you have exhausted all your margins of improvement?
If pelvic floor therapy is helping you why don't you wait a little? IPP will fix any issue about erection but won't do nothing for numbness, etc. You're one of the few guys here reporting "dramatic improvements" and no venous leak. What is your regimen now? Maybe you still have 5-10 years in front of you.

[newbiehere23]

I have hard flaccid as well. If Cialis works well, what would be the reason for getting an implant?

[dashriprock24]

Thanks for the reply FortyTwo. I should clarify that pelvic floor therapy has helped dramatically with pelvic pain, not with sexual function. Cialis and viagra have stopped working for me reliably and I'm not having much of a sex life right now. The past several times I have had sex it either didn't work, was not strong enough to have what I feel like is enjoyable sex, or didn't last long enough. After 15 years I'm sure much of this is psychological at this point as well, but I have committed many hours to meeting with 3 different sex therapists over the past however many years to address this psychologically and have not had success. I have had this conversation with the Mayo Clinic, which I feel like is a reputable hospital, and they agree that it's too long for someone to be dealing with these issues, which is why they are okay moving forward with an implant. You're right, I haven't tried injections, but I have discussed with both my wife and my doctor that option, and neither of them think it's necessary considering my pelvic floor issues, how long I have been dealing with this, and all the other options I have tried. I could wait 5-10 years like you suggested, but I feel like it would only extend the hell I have been living in for 15+.

[newbiehere23]

Thanks for the reply FortyTwo. I should clarify that pelvic floor therapy has helped dramatically with pelvic pain, not with sexual function. Cialis and viagra have stopped working for me reliably and I'm not having much of a sex life right now. The past several times I have had sex it either didn't work, was not strong enough to have what I feel like is enjoyable sex, or didn't last long enough. After 15 years I'm sure much of this is psychological at this point as well, but I have committed many hours to meeting with 3 different sex therapists over the past however many years to address this psychologically and have not had success. I have had this conversation with the Mayo Clinic, which I feel like is a reputable hospital, and they agree that it's too long for someone to be dealing with these issues, which is why they are okay moving forward with an implant. You're right, I haven't tried injections, but I have discussed with both my wife and my doctor that option, and neither of them think it's necessary considering my pelvic floor issues, how long I have been dealing with this, and all the other options I have tried. I could wait 5-10 years like you suggested, but I feel like it would only extend the hell I have been living in for 15+.

What dose of cialis or viagra are you using? Have you looked into a pudendal decompression procedures? There are a few guys on the Hard Flsccid forum on Reddit that have gotten it and a few seems to be recovering. One doctor in Belgium (Dr Bollens) has done a few for some guys on the forum so maybe exploring that before an implant could be more suitable since no permanent to the penis will occur?

[Thisworld]

Thanks for the reply FortyTwo. I should clarify that pelvic floor therapy has helped dramatically with pelvic pain, not with sexual function. Cialis and viagra have stopped working for me reliably and I'm not having much of a sex life right now. The past several times I have had sex it either didn't work, was not strong enough to have what I feel like is enjoyable sex, or didn't last long enough. After 15 years I'm sure much of this is psychological at this point as well, but I have committed many hours to meeting with 3 different sex therapists over the past however many years to address this psychologically and have not had success. I have had this conversation with the Mayo Clinic, which I feel like is a reputable hospital, and they agree that it's too long for someone to be dealing with these issues, which is why they are okay moving forward with an implant. You're right, I haven't tried injections, but I have discussed with both my wife and my doctor that option, and neither of them think it's necessary considering my pelvic floor issues, how long I have been dealing with this, and all the other options I have tried. I could wait 5-10 years like you suggested, but I feel like it would only extend the hell I have been living in for 15+.

What dose of cialis or viagra are you using? Have you looked into a pudendal decompression procedures? There are a few guys on the Hard Flsccid forum on Reddit that have gotten it and a few seems to be recovering. One doctor in Belgium (Dr Bollens) has done a few for some guys on the forum so maybe exploring that before an implant could be more suitable since no permanent to the penis will occur?

I still have to hear an actual story of someone who got cured of Hard flaccid by pudendal surgery. Usually this surgeries just fuck you up even more. But i wuold be happy to be proved wrong

[newbiehere23]

Thanks for the reply FortyTwo. I should clarify that pelvic floor therapy has helped dramatically with pelvic pain, not with sexual function. Cialis and viagra have stopped working for me reliably and I'm not having much of a sex life right now. The past several times I have had sex it either didn't work, was not strong enough to have what I feel like is enjoyable sex, or didn't last long enough. After 15 years I'm sure much of this is psychological at this point as well, but I have committed many hours to meeting with 3 different sex therapists over the past however many years to address this psychologically and have not had success. I have had this conversation with the Mayo Clinic, which I feel like is a reputable hospital, and they agree that it's too long for someone to be dealing with these issues, which is why they are okay moving forward with an implant. You're right, I haven't tried injections, but I have discussed with both my wife and my doctor that option, and neither of them think it's necessary considering my pelvic floor issues, how long I have been dealing with this, and all the other options I have tried. I could wait 5-10 years like you suggested, but I feel like it would only extend the hell I have been living in for 15+.

What dose of cialis or viagra are you using? Have you looked into a pudendal decompression procedures? There are a few guys on the Hard Flsccid forum on Reddit that have gotten it and a few seems to be recovering. One doctor in Belgium (Dr Bollens) has done a few for some guys on the forum so maybe exploring that before an implant could be more suitable since no permanent to the penis will occur?

I still have to hear an actual story of someone who got cured of Hard flaccid by pudendal surgery. Usually this surgeries just fuck you up even more. But i wuold be happy to be proved wrong

Not sure but significant improvements, especially if done laparoscopically. The guys who had this procedure and had ED said their ED was gone very quickly but the sensation takes time and doesn’t get to 100%. Of course it’s a small sample size but still (I know 3 have gotten it for sure and one is getting it in October).

[dashriprock24]

Thanks for the reply newbiehere. I was diagnosed with Pudendal Neuralgia by Dr. Stanley Antolak in 2017, who was a pioneer in the PNE surgery. He told me to check out Conway, Dellon, and Hibner, all surgeons on the filed of PNE. The biggest red flag for someone like me and many HF sufferers is that insurance won't cover this surgery. The reason they don't cover it is because it's not a proven way to address PN, PNE, HF, or ED. I have spoken with some of the gentlemen who had the procedure done on Reddit and heard they have seen some improvements, but every case is different, and the doctors I have spoken to have told me that you're essentially spending 40K out of pocket to roll the dice to see if it works. Finally, the surgeons I have spoken to said if I was in pain it would be a good idea to pursue the surgery because that's one of the main objectives - getting rid of pain. However, I'm not really in pain anymore, only experiencing numbness and ED, which many of them have agreed is even more of a toss up on whether it will improve sensation or not - especially after 15 years. According to the doctors, in some cases the surgery can potentially make things worse too.

If you could provide links though for success stories it would be appreciated! For real! I'm not close minded to getting that procedure done. I am more hesitant because of the cost and how I'd be rolling the dice. Doctors I have discussed this with at Mayo want nothing to do with those procedure which makes me nervous to pursue them.

[newbiehere23]

Thanks for the reply newbiehere. I was diagnosed with Pudendal Neuralgia by Dr. Stanley Antolak in 2017, who was a pioneer in the PNE surgery. He told me to check out Conway, Dellon, and Hibner, all surgeons on the filed of PNE. The biggest red flag for someone like me and many HF sufferers is that insurance won't cover this surgery. The reason they don't cover it is because it's not a proven way to address PN, PNE, HF, or ED. I have spoken with some of the gentlemen who had the procedure done on Reddit and heard they have seen some improvements, but every case is different, and the doctors I have spoken to have told me that you're essentially spending 40K out of pocket to roll the dice to see if it works. Finally, the surgeons I have spoken to said if I was in pain it would be a good idea to pursue the surgery because that's one of the main objectives - getting rid of pain. However, I'm not really in pain anymore, only experiencing numbness and ED, which many of them have agreed is even more of a toss up on whether it will improve sensation or not - especially after 15 years. According to the doctors, in some cases the surgery can potentially make things worse too.

If you could provide links though for success stories it would be appreciated! For real! I'm not close minded to getting that procedure done. I am more hesitant because of the cost and how I'd be rolling the dice. Doctors I have discussed this with at Mayo want nothing to do with those procedure which makes me nervous to pursue them.

The procedures in Europe are much more cost friendly; Dr Bollens from Belgium charges about 5-7k Euro from what I remember. You are right there is a dice to roll but it seems worth it considering inplants require multiple revisions. If you go on Reddit, the following users have had the surgery and are recovering: danieluci, isonexus and affect important is getting his done in October. Danieluci can be reached by direct messages and has yet to make a post about it but he is almost recovered. Isonexus is still recovering. There was also a guy last year who got it done and recovered (albeit his posts were a bit sketchy). If you make a post on Reddit we can link you their profiles.