Having sex with a venous leak

Anything goes when it comes to ED.
全部完璧類韻
Posts: 18
Joined: Thu Jan 12, 2023 10:41 am

Re: Having sex with a venous leak

Postby 全部完璧類韻 » Mon Jan 16, 2023 5:58 pm

s7utty wrote:
全部完璧類韻 wrote:
s7utty wrote:
well then its very weird. in my case i have good and bad days. this makes me think i truly have inflow issues due to those narrrow arteries that were revealed on my CT angiography.
i think i have combination of inflow issues, hormonal stuff, weak pelvic floor that doesnt prevent outflow.

because im assuming your problem is just the fact stimulation need to be ongoing to have erection right?
because i have literally days where im just kissing hugging my girlfriend and i get good boner then like today she trying blowjobs handjobs and my dick cant grow more than 30-40% with such stimulation….
and you always can get it up but MUST stimulate right ?


Yes, in my case I can always get it up, I can be not horny and just start stimulating while thinking arousing stuff or watch porn at any time and get an erection 100% of the time, my testosterone levels are also abnormally high for someone that just turned 27, they are above 1500 ng/dl, the laboratory didn't measure exactly how much because it doesn't work in numbers higher than that Image, I also thought about me having a weak pelvic floor but I only spent 2 months doing kegels and 1 months without masturbating and I noticed some improvement but I think it was from me not masturbating and not from the kegels.



well in general id consider ur diagnose of venous leak.
i thought while doing doppler ultrasound you should be injected alprostadil and take a look at EDV values because they indicate venous leak or not.

cavernosogram or angiography doesnt require to be in erect state to see leak i think - correct me if im wrong please.

i wouldnt say you have venous leak but rather maybe something with pelvic floor muscles.

especially fact that you can always get yourself erection makes me think my problem might not be venous leak cuz i barely can get erection on some days like today, no matter how my GF try she cant lift it, me neither. Then i have days where i got erection from kissing or licking poosey xd


I got my diagnose done with this machine https://www.shockwaveargentina.com/img/home/elastografia-destacado-1.jpg https://www.shockwaveargentina.com/img/ ... cado-1.jpg

I think what I got done was an elastography that checks for the rigidity of tissue, apparently my tunica albuginea was stiff to very stiff in some places and that was a venous leakage, I think what I got done was not an actual doppler but that machine could also do color doppler or something along those lines, this is the page of the place I went to where it explains this stuff, the doctor told me that with 6 sessions of 2 times a week for three weeks would solve the problem but I have not read of anyone online that fixed the problem with shockwave, I only read of 1 person that fixed it using the shockwave phoenix device that you can use on your own, I've also read of people not being able to get an erection and losing sensation after getting shockwave done so I'm not sure what to do anymore, I could try injections but they say that they create scarring tissue on the corpora cavernosa and worsen the problem, I think I'm just going to get the phoenix device and try that and if it doesn't work I'll just take sildenafil or tadalafil to get an erection that lasts as long as possible without stimulation and work with that.

https://www.shockwaveargentina.com/index.html

Leebert
Posts: 567
Joined: Wed Aug 07, 2019 9:51 pm

Re: Having sex with a venous leak

Postby Leebert » Wed Jan 18, 2023 10:50 pm

I still have my VL and have to use a ring yet for engorgement.
I'm 65, heart attack w/stent 10 yrs ago, mod.HBP, married 46 yrs, retired.2 strokes.No damage, except start of Ed, Live in Ada Michigan. implanted by Dr. Wise in Grand Rapids mi. Implanted on 9/2/21 with 15 cm + 5cm rte. Ams 700 cx ms pump

s7utty
Posts: 179
Joined: Thu May 19, 2022 6:09 am

Re: Having sex with a venous leak

Postby s7utty » Thu Jan 19, 2023 6:42 am

全部完璧類韻 wrote:
s7utty wrote:
全部完璧類韻 wrote:
Yes, in my case I can always get it up, I can be not horny and just start stimulating while thinking arousing stuff or watch porn at any time and get an erection 100% of the time, my testosterone levels are also abnormally high for someone that just turned 27, they are above 1500 ng/dl, the laboratory didn't measure exactly how much because it doesn't work in numbers higher than that Image, I also thought about me having a weak pelvic floor but I only spent 2 months doing kegels and 1 months without masturbating and I noticed some improvement but I think it was from me not masturbating and not from the kegels.



well in general id consider ur diagnose of venous leak.
i thought while doing doppler ultrasound you should be injected alprostadil and take a look at EDV values because they indicate venous leak or not.

cavernosogram or angiography doesnt require to be in erect state to see leak i think - correct me if im wrong please.

i wouldnt say you have venous leak but rather maybe something with pelvic floor muscles.

especially fact that you can always get yourself erection makes me think my problem might not be venous leak cuz i barely can get erection on some days like today, no matter how my GF try she cant lift it, me neither. Then i have days where i got erection from kissing or licking poosey xd


I got my diagnose done with this machine https://www.shockwaveargentina.com/img/home/elastografia-destacado-1.jpg https://www.shockwaveargentina.com/img/ ... cado-1.jpg

I think what I got done was an elastography that checks for the rigidity of tissue, apparently my tunica albuginea was stiff to very stiff in some places and that was a venous leakage, I think what I got done was not an actual doppler but that machine could also do color doppler or something along those lines, this is the page of the place I went to where it explains this stuff, the doctor told me that with 6 sessions of 2 times a week for three weeks would solve the problem but I have not read of anyone online that fixed the problem with shockwave, I only read of 1 person that fixed it using the shockwave phoenix device that you can use on your own, I've also read of people not being able to get an erection and losing sensation after getting shockwave done so I'm not sure what to do anymore, I could try injections but they say that they create scarring tissue on the corpora cavernosa and worsen the problem, I think I'm just going to get the phoenix device and try that and if it doesn't work I'll just take sildenafil or tadalafil to get an erection that lasts as long as possible without stimulation and work with that.

https://www.shockwaveargentina.com/index.html



can you get erection or partia erection from arousal with partner ? i for example can have erection when im aroused and kissing, hugging, doing oral to partner but i must proceed fast to penetration otherwise i will go limp super fast.

are you able also to get boner from arouse or watching porn etc. ?
28 years old. some form of ED always with me entire life.
///
19th May 22' - doppler, 10mcg PGE1, good inflow, terrible outflow (EDV) of 15cm/s.
Currently about to visit Paris to dr Allaire seeking for further help.

全部完璧類韻
Posts: 18
Joined: Thu Jan 12, 2023 10:41 am

Re: Having sex with a venous leak

Postby 全部完璧類韻 » Thu Jan 19, 2023 7:31 pm

s7utty wrote:
全部完璧類韻 wrote:
s7utty wrote:

well in general id consider ur diagnose of venous leak.
i thought while doing doppler ultrasound you should be injected alprostadil and take a look at EDV values because they indicate venous leak or not.

cavernosogram or angiography doesnt require to be in erect state to see leak i think - correct me if im wrong please.

i wouldnt say you have venous leak but rather maybe something with pelvic floor muscles.

especially fact that you can always get yourself erection makes me think my problem might not be venous leak cuz i barely can get erection on some days like today, no matter how my GF try she cant lift it, me neither. Then i have days where i got erection from kissing or licking poosey xd


I got my diagnose done with this machine https://www.shockwaveargentina.com/img/home/elastografia-destacado-1.jpg https://www.shockwaveargentina.com/img/ ... cado-1.jpg

I think what I got done was an elastography that checks for the rigidity of tissue, apparently my tunica albuginea was stiff to very stiff in some places and that was a venous leakage, I think what I got done was not an actual doppler but that machine could also do color doppler or something along those lines, this is the page of the place I went to where it explains this stuff, the doctor told me that with 6 sessions of 2 times a week for three weeks would solve the problem but I have not read of anyone online that fixed the problem with shockwave, I only read of 1 person that fixed it using the shockwave phoenix device that you can use on your own, I've also read of people not being able to get an erection and losing sensation after getting shockwave done so I'm not sure what to do anymore, I could try injections but they say that they create scarring tissue on the corpora cavernosa and worsen the problem, I think I'm just going to get the phoenix device and try that and if it doesn't work I'll just take sildenafil or tadalafil to get an erection that lasts as long as possible without stimulation and work with that.

https://www.shockwaveargentina.com/index.html



can you get erection or partial erection from arousal with partner ? i for example can have erection when im aroused and kissing, hugging, doing oral to partner but i must proceed fast to penetration otherwise i will go limp super fast.

are you able also to get boner from arouse or watching porn etc. ?


yes I can get an erection from arousal without touching but it only gets to 30% to 60% depending on the level of arousal the rest of the erection needs stimulation for me to achieve. Can you get 100% erect without stimulation? the weird thing about me is that after achieving a partial erection without stimulation if I were to stimulate to achieve 100% of erection and stop stimulating my penis then my penis would slowly lose the erection until it is 0% erect, it wouldn't go back and stay in that 30% to 60% area as it does before I start stimulating.

全部完璧類韻
Posts: 18
Joined: Thu Jan 12, 2023 10:41 am

Re: Having sex with a venous leak

Postby 全部完璧類韻 » Thu Jan 19, 2023 7:35 pm

Leebert wrote:I still have my VL and have to use a ring yet for engorgement.


VL never goes away on its own, it appears out of nowhere at any point in your life for no reason and your sexual life gets crippled.

s7utty
Posts: 179
Joined: Thu May 19, 2022 6:09 am

Re: Having sex with a venous leak

Postby s7utty » Fri Jan 20, 2023 5:29 am

全部完璧類韻 wrote:
Leebert wrote:I still have my VL and have to use a ring yet for engorgement.


VL never goes away on its own, it appears out of nowhere at any point in your life for no reason and your sexual life gets crippled.


yes i can have erection sometimes from arousal and they last few minutes. but in my case i have like day offs where my dick is completely turned off. even heavy stimulation wont make it grow anything or maybe 20-30% and instantly vanish when my girl stop touching or sucking me. then few days later on i can have normal erection from arousa and have penetrative sex. i have if im lucky next following day the same or 2 days and again my dick is completely turned off.

do you ever ever get some nocturnal erections when you wake up in middle of night or in the morning ? I do sometimes but they also last minutes.
28 years old. some form of ED always with me entire life.
///
19th May 22' - doppler, 10mcg PGE1, good inflow, terrible outflow (EDV) of 15cm/s.
Currently about to visit Paris to dr Allaire seeking for further help.

Frenchie
Posts: 172
Joined: Sun Sep 11, 2022 11:14 am

Re: Having sex with a venous leak

Postby Frenchie » Fri Jan 20, 2023 8:39 am

全部完璧類韻 wrote:
s7utty wrote:yes you can post such videos here.
what EDV numbers you had during doppler ultrasound ?
have you done any other examination to confirm the leak ? such as cavernosogram etc.


I don't know what EDV numbers are, I got it done while flacid, the doctor put some liquid stuff on my penis and then passed some stuff on top of my penis he explained stuff in technical details but it just went over my head, there were some pictures like these on a screen in a machine Image Image I pretty much had mostly some purple coloring with a side that had quite a lot of red it was all in the shape of two circles and he told me that the leakage was on the tunica albuginea and not the corpora cavernosa, I find weird that he did it while I was flaccid I thought I was going to have some stuff injected on my penis, while we were talking he said to never inject anything on my penis. I tried finding a place that does cavernosogram but there isn't any in the country where I live only doppler tests. I have tried kegels for like 2 months, ceased all masturbation for over 1 month (now going for 3 to 6 months), tried tadalafil and sildenafil (both help in the erection lasting longer without stimulation but don't fix the problem), I tried penile rings (I find it helps a bit but makes stuff feel weird and acts as a double edged sword as blood still leaves my penis but when stimulating it it makes it harder for blood to get into the penis and make the erection bigger), my testosterone levels are fine, the only things left for me to try are injections, and shockwave theraphy which I can afford to pay but it costs 3600 usd and I live in a country where wages are of 200 usd a month so I don't even bother working and live off of inherited money while I work on getting out of here, I thought about getting the phoenix device instead which costs like 800 usd, as for implants I'd rather just stay the way I am I don't want to have anything to do with those which is why I made this thread, I think I could have a normal sex life just like this, here is a nsfw video of my problem this is without any pills if I use sildenafil or tadalafil the erection lasts longer but it still leaves https://drive.google.com/file/d/1KYgYcX ... sp=sharing


Hey after looking at your video I am convinced that I also have venous leak. Its the exacr same thing for me too. Have you tried pills? Do they work? What about injections?
Venous like since I was 20 years old. Pills don't work too well. Thinking of implant in the future

s7utty
Posts: 179
Joined: Thu May 19, 2022 6:09 am

Re: Having sex with a venous leak

Postby s7utty » Fri Jan 20, 2023 8:54 am

Frenchie wrote:
全部完璧類韻 wrote:
s7utty wrote:yes you can post such videos here.
what EDV numbers you had during doppler ultrasound ?
have you done any other examination to confirm the leak ? such as cavernosogram etc.


I don't know what EDV numbers are, I got it done while flacid, the doctor put some liquid stuff on my penis and then passed some stuff on top of my penis he explained stuff in technical details but it just went over my head, there were some pictures like these on a screen in a machine Image Image I pretty much had mostly some purple coloring with a side that had quite a lot of red it was all in the shape of two circles and he told me that the leakage was on the tunica albuginea and not the corpora cavernosa, I find weird that he did it while I was flaccid I thought I was going to have some stuff injected on my penis, while we were talking he said to never inject anything on my penis. I tried finding a place that does cavernosogram but there isn't any in the country where I live only doppler tests. I have tried kegels for like 2 months, ceased all masturbation for over 1 month (now going for 3 to 6 months), tried tadalafil and sildenafil (both help in the erection lasting longer without stimulation but don't fix the problem), I tried penile rings (I find it helps a bit but makes stuff feel weird and acts as a double edged sword as blood still leaves my penis but when stimulating it it makes it harder for blood to get into the penis and make the erection bigger), my testosterone levels are fine, the only things left for me to try are injections, and shockwave theraphy which I can afford to pay but it costs 3600 usd and I live in a country where wages are of 200 usd a month so I don't even bother working and live off of inherited money while I work on getting out of here, I thought about getting the phoenix device instead which costs like 800 usd, as for implants I'd rather just stay the way I am I don't want to have anything to do with those which is why I made this thread, I think I could have a normal sex life just like this, here is a nsfw video of my problem this is without any pills if I use sildenafil or tadalafil the erection lasts longer but it still leaves https://drive.google.com/file/d/1KYgYcX ... sp=sharing


Hey after looking at your video I am convinced that I also have venous leak. Its the exacr same thing for me too. Have you tried pills? Do they work? What about injections?


What does it mean in ur profile bro that pills doesnt work good ? if u can have erection like OP then you could fine have penetrative sex in my opinion. Just keep receiving stimulation.
28 years old. some form of ED always with me entire life.
///
19th May 22' - doppler, 10mcg PGE1, good inflow, terrible outflow (EDV) of 15cm/s.
Currently about to visit Paris to dr Allaire seeking for further help.

Frenchie
Posts: 172
Joined: Sun Sep 11, 2022 11:14 am

Re: Having sex with a venous leak

Postby Frenchie » Fri Jan 20, 2023 9:21 am

s7utty wrote:
Frenchie wrote:
全部完璧類韻 wrote:
I don't know what EDV numbers are, I got it done while flacid, the doctor put some liquid stuff on my penis and then passed some stuff on top of my penis he explained stuff in technical details but it just went over my head, there were some pictures like these on a screen in a machine Image Image I pretty much had mostly some purple coloring with a side that had quite a lot of red it was all in the shape of two circles and he told me that the leakage was on the tunica albuginea and not the corpora cavernosa, I find weird that he did it while I was flaccid I thought I was going to have some stuff injected on my penis, while we were talking he said to never inject anything on my penis. I tried finding a place that does cavernosogram but there isn't any in the country where I live only doppler tests. I have tried kegels for like 2 months, ceased all masturbation for over 1 month (now going for 3 to 6 months), tried tadalafil and sildenafil (both help in the erection lasting longer without stimulation but don't fix the problem), I tried penile rings (I find it helps a bit but makes stuff feel weird and acts as a double edged sword as blood still leaves my penis but when stimulating it it makes it harder for blood to get into the penis and make the erection bigger), my testosterone levels are fine, the only things left for me to try are injections, and shockwave theraphy which I can afford to pay but it costs 3600 usd and I live in a country where wages are of 200 usd a month so I don't even bother working and live off of inherited money while I work on getting out of here, I thought about getting the phoenix device instead which costs like 800 usd, as for implants I'd rather just stay the way I am I don't want to have anything to do with those which is why I made this thread, I think I could have a normal sex life just like this, here is a nsfw video of my problem this is without any pills if I use sildenafil or tadalafil the erection lasts longer but it still leaves https://drive.google.com/file/d/1KYgYcX ... sp=sharing


Hey after looking at your video I am convinced that I also have venous leak. Its the exacr same thing for me too. Have you tried pills? Do they work? What about injections?


What does it mean in ur profile bro that pills doesnt work good ? if u can have erection like OP then you could fine have penetrative sex in my opinion. Just keep receiving stimulation.

It means that even with pills it goes down in 10seconds. I cant have penetartive sex because I cant even put on the condom. Also if I lose it once its too difficult to gain another hard erection like the one in the begining
Venous like since I was 20 years old. Pills don't work too well. Thinking of implant in the future

s7utty
Posts: 179
Joined: Thu May 19, 2022 6:09 am

Re: Having sex with a venous leak

Postby s7utty » Fri Jan 20, 2023 10:18 am

Frenchie wrote:
s7utty wrote:
Frenchie wrote:
Hey after looking at your video I am convinced that I also have venous leak. Its the exacr same thing for me too. Have you tried pills? Do they work? What about injections?


What does it mean in ur profile bro that pills doesnt work good ? if u can have erection like OP then you could fine have penetrative sex in my opinion. Just keep receiving stimulation.

It means that even with pills it goes down in 10seconds. I cant have penetartive sex because I cant even put on the condom. Also if I lose it once its too difficult to gain another hard erection like the one in the begining


i got you. got it exactly the same if it comes to getting another erection after first „strong” one vanish already. although pills help me and i can have intercourse with them. this is the thing that wonders me the most why some people with VL like potentially us react totally different to pills. I can have sex like 3 times a day with 5-10mg cialis but each session must be fast as if i want to fuck more than 5 minutes even on pills my dick dies. This makes me wonder i might have more hormonal issues rather than VL or a small one maybe :/
I need to jump back on Levothyroxine asap.

BTW have you checked ever the following:
TSH
FT4
prolactin

If so, what were the results.
All the best broski
28 years old. some form of ED always with me entire life.
///
19th May 22' - doppler, 10mcg PGE1, good inflow, terrible outflow (EDV) of 15cm/s.
Currently about to visit Paris to dr Allaire seeking for further help.


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