My tragic story

[AntonS]

Hello to all Frank talk participants.

I am 36 years old.
I have been reading the forum for several months and decided to share my story. There has never been such horror and absurdity here.

Problems with ED began abruptly after a fight in 2009, which resulted in the collapse of the entire body. I don’t know what happened then, but problems with the spine began, headaches, insomnia, nasal breathing was disturbed and, in addition to everything, I didn’t understand how this could be, I began to stand badly. It was best to keep an erection only while sitting. 10 years of going to urologists in search of a cause, everyone put congestive prostatitis, sometimes they found bad flora, repeated treatment of which gave some minor improvements, but after a while everything returned again. In 2013, Doppler ultrasound showed good inflow, but rather strong outflow through the veins. I did not attach any importance to it then. Athlete - ran marathons, road bike, skiing, gym. He led a very active lifestyle and treated himself carelessly. Against the background of these complex problems, I tried to be treated by neurologists, chiropractors and others, until I went into myself and at the age of 26 I was diagnosed with an anxiety-depressive disorder. They were treated with antipsychotics and antidepressants, after which it took a year to get off them. I did yoga and really felt significant improvements, but sexual intercourse is still only with Viagra. It should be noted that the first sexual experience was at 22 after the fight and the problems that had already begun, and it was unsuccessful.

At the age of 30, he began a serious relationship with a girl and had sex with pills. He hid the pills from her. I went from 100mg of Viagra to 5mg of Tadalafil after I got used to the girl. Sometimes it turned out without pills at all. After 2 years of relationship, we broke up.

After there were short relationships or casual sex, also always with pills that worked very well. After the start of the pandemic, it so happened that for 2 years there was almost no sex, casual sex every 5-6 months. The rest is self-satisfaction. You can say - I forgot how to fuck at all. After undergoing covid in the fall of 21, I noticed that the erection became worse, morning erections, as for a long time already sluggish or absent altogether. When masturbating, I noticed that in order to keep an erection, you need to either sit or lie down with your legs crossed. In addition, in 2018, my right leg began to worry - varicose veins, I thought from running. In 2019, the operation was performed - the veins were soldered using the laser endovenous coagulation method. In 2020, everything returned, and after covid, the pain and the feeling of throwing down the legs increased significantly along with the worsening of the erection.

At the beginning of 2022, he began a relationship with a girl with whom he finally fell in love for real. But at that moment she was already planning to move to another city, and after the outbreak of the war she left for another country. I also planned the move, because I couldn’t look at this game and I can’t even be indirectly involved in this either. Well, and most importantly - I fell in love with a person and could not lose her. A long distance relationship began. In the meantime, I decided once again I decided to deal with health. I went to a urologist, who finally saw the dilation of the veins around the prostate gland on Trusi, sent me for an MRI scan of the inferior vena cava and I was diagnosed with May-Thurner syndrome and varicose veins of the pelvis. People get upset when they find out about such diagnoses, and I was delighted, because I decided that finally, after many years, the cause of my suffering was found. The doctor recommended the placement of a stent at the site of the stenosis and reported positive results after stenting in his patients. I was even happier. In the first clinic, after the phlebography, they did not put a stent in me, saying that there was no stenosis. Also reporting that I have a left-sided varicocele and dilated collaterals in the pelvis. As it turned out later, they either did not see the stenosis, or they did not have stents, due to the lack of supplies due to the war.

Further, I contacted other endovascular surgeons, who, according to my MRI, said that May-Thurner is still pronounced and stenting is definitely indicated for me. But it didn’t work everywhere - either there are no stents, or hospitals are closed for COVID. Well, I'm in a hurry to my girlfriend. I needed to quickly close this issue and leave. And after that, on the recommendation of the same urologist, I get to other urologists, professors who deal with similar problems with arterio-venous conflicts. Then I didn’t know yet and thought that I had come to honest doctors, but, as it turned out, after the horror that they did to me, these are tough charlatans who have already crippled dozens of people. Only in Russia these bastards can do this. They pointed out to me a strongly protruding external dorsal vein, which is really large in me, because. penis size is also not small. Cavernosography was done, erection after 10 mg of caverject appeared incomplete. According to the results of cavernosography, a proximal and distal venous leak was established, as well as an expansion of the veins of the prostatic plexus. The conversation was about installing a stent in the left iliac vein in order to unload the plethora of the pelvis and remove stagnation. Next, embolization was planned, half a year after the stent was installed, to close the leak in those veins that would not subside after the stent. But they blatantly deceived me and led me to make the ligation of the veins of the penis the first step.

Guys, I cannot explain what was guiding me at that moment and how I could make this decision, agreeing to this operation. I just hurried to my girlfriend, realizing that time was passing and I was losing her. Yes, and I myself lost my head because of her and did not understand what I was doing. I made a hasty decision in a hurry. And then there are the charlatan doctors who beat my head too. I had a ligation of the veins of my penis, which broke my life. They ligated the deep dorsal vein, external dorsal and lateral veins of the penis, to the maximum. After that, after only 10 days, the stent appeared and another doctor installed the wallstent for me, and also did embolization of the varicocele. As it turned out, the pressure on the vein was really strong.

After 3 days, the external dorsal vein was thrombosed. Erection improved 2 weeks after surgery. Sometimes there were good morning erections, but the thrombosis of the vein did not go away, and then I went to the doctor, who said that the penis was now in a state of shock after the operation and prescribed tadalafil 5 mg every day, and also recommended masturbating so that there was no stagnation. I foolishly followed the recommendations, drank tadalafil 5 mg and trouble happened. A bump appeared at the base of the penis. As it turned out later, the thread broke off the vein and an encysted hematoma formed. I was told that it would take a long time to resolve, or it would not resolve at all, and they offered to remove it. I made another mistake agreeing to the deletion. After the operation to remove the hematoma, as soon as I fell asleep and an erection appeared in a dream, I caught myself from wild pain, as if the entire left side of the penis, my groin and leg were being pierced by electric shock. The doctor said that it was postoperative pain and it would pass. But this horror did not pass either the next day, or after 3 days, or after a week. As a result, 3 weeks I was in hell! Really climbed the wall. And when he removed the stitches, he was horrified! A scar formed at the base of the penis, which pulled the tissues together and turned out to be an hourglass. As it turned out in the end, the reason for the hellish pain was that the surgeon had bandaged the nerve during the operation! I drank testosterone-lowering drugs so that I would not stand at all and at least somehow reduce the pain. Then they tried shock wave therapy on the scar to soften it and release the nerve, but I already knew perfectly well that this was all complete garbage and that I was finished. Naturally, nothing helped and I had nowhere to go. I was dying of pain. I had to put my penis under the knife for the third time in 2 months. The surgeon cut the pubis and, under the farm load, cut the scar and crossed the nerve. The cavernous bodies straightened out, the narrowing went away. After that came the complete end. Some veins in the penis were thrombosed, lymphostasis began, scars formed in the region of the ligament supporting the penis, adhesions appeared in the region of the ligament, a postoperative scar formed on the albuginea at the base, which gave an upward curvature, 2 large saphenous veins came out on the urethra after ligation of the external dorsal veins. The erection almost completely disappeared. Complete horror ensued. And now for 8 months I have been in a state of psychosis, the deepest depression and the strongest post-traumatic disorder. Viagra or Cialis work in maximum doses. Member falls in 5-7 minutes from 100 mg of Viagra. Sensitivity on the front side of the member was gone. The skin doesn't feel anything. The sensitivity of the head is still there, but not the same as it was before.

Embolization, which was originally planned, I do not want to do and will not do. I don't see the point in this. Instead of putting in a stent, solving this problem and starting a relationship with my girlfriend, I lost everything: a loved one, health, my life turned into a nightmare. At the moment, he traveled all the masters of urogenital surgery. Everyone offers different options. Some recommend taking pills to the last and placing an implant when they will no longer help in any doses. I don't even consider injections. They are not for me. Some of the doctors recommend waiting a year after the last operation for the scars to stabilize and decrease as much as possible. Some say there is no point in waiting. One doctor suggested suprapubic access to me, excise the scars that are in the area of ​​the ligament, do corporoplasty of the scar, which is on the albuginea, and install Titan, because he thinks that ams lgx 700 in my case with the consequences that I have will be mild. The second doctor says that it is impossible to do suprapubic access and go from above, because in this case I will completely lose sensitivity and I will definitely not need a prosthesis. He offers to make a scrotal access, cut the scar on the albuginea, do not touch the scars in the connection area so as not to damage the nerves, and suggests that I myself make a choice between AMS lgx 700, which, according to him, has been less broken than coloplast lately. Or still coloplast at will. The third doctor suggests waiting another year or two years and after that, without touching the scars, install coloplast. The doctor who installed the stent suggests embolization of the veins of the prostatic plexus, but the feedback from patients after embolization is contradictory, plus there are complications in the form of pain after it.

I understand perfectly well that I have the strongest post-traumatic disorder and severe depression, I do not want anything. I don't want to live. Just less than a year ago, I was an athlete with a good job and huge plans for the future, and these bastards turned my life into a nightmare. I can't wake up in the morning. Every morning, thinking only that this project failed, let's start the next one. Psychologists don't help me much. And I understand that if the cause is not eliminated, the effect will not go away. Perhaps if I return to the normal life that was before, the pills will still work, but I can’t return, because I fell into a trap from which I can’t get out. It is psychologically impossible to come to terms with the fact that quite recently I had minor erection problems and could live on 5 mg of tadalafil, and now I will not have my own erection and I need to put an implant in a disfigured penis. This is creepy! The girl with whom they wanted to build a relationship together, having learned that I was in trouble, stopped communicating with me and blocked me, saying that she had a new life with new people in Turkey by the sea. This killed me completely! Instead of leaving Russia and enjoying life together, I was left disabled for life with a broken psyche and untangled desire to live. All this time I've been killing myself. Alcohol and cigarettes have become my life companions. I used to start every morning with a run.

I recently spent the weekend with another girl who has been in love with me for years. She does not believe in what happened and says that it was not me who did it all. We get sex with only 20 mg of tadalafil + 50-100 mg of viagra. Only in a pose when I'm on top. If I get up on my feet, the erection disappears when it is on top, also not very good. I understand that the leak will progress even more and will get even worse. In all those who did the ligation of the dorsal vein, the erection first improved for a while, and then it became much worse than it was before the operation. Vein ligation is done specifically with the aim of making money first on ligation, and then on implantation.

I want the world to know these devils from Russia: Professor Kurbatov and Dr. Kapto. They have already crippled dozens, maybe hundreds of people. And what they did to me is just awful! Karma will return to them, but that doesn't make it any easier for me.

Please tell us how you could come to terms with the fact that now you have an implant due to some ridiculous situation or as a result of an accident?

[bldoink]

Please edit your post and add a lot more paragraph breaks. It's too hard to read in it's current format.

[Bigdave]

Anton, I'm shocked at what happened to you.
You were apparently given horrible advice, and no one who calls themselves a doctor should ever have recommended all this to you.
I pray that you'll get a competent surgeon to help your situation, and I wish you the best of luck.

[AntonS]

Anton, I'm shocked at what happened to you.
You were apparently given horrible advice, and no one who calls themselves a doctor should ever have recommended all this to you.
I pray that you'll get a competent surgeon to help your situation, and I wish you the best of luck.

Thank you. I still feel like this is a dream. I'll wake up now, and it's May outside. But, unfortunately, there is no time machine. if it weren’t for those close to me, I would have already left, but so far I’m holding on with my last strength.

[otter17]

I'm sorry that this happened to you, Anton. You are in psychological hell through no fault of your own. But you must move forward to get yourself out of it. I think that in order to do this, you need a fully functioning penis, and that would require an implant. If you decide to do go this route, I recommend you use whatever resources you have to find the most experienced implant surgeon you can. Go outside the country if you have to. You have had some unusual operations and scar tissue, and you want someone with experience in urological reconstructive surgery.

[25yearsold]

Agree with comment above,
Pick an experienced surgeon in reconstructive penile surgery, take scrotal approach no matter what to keep your remaining sensitivity to get best experience from implant, consider pros and cons of ams and titan, select the one that fits your lifestyle and priorities most and go for it and go back living your life where you left

[AntonS]

Agree with comment above,
Pick an experienced surgeon in reconstructive penile surgery, take scrotal approach no matter what to keep your remaining sensitivity to get best experience from implant, consider pros and cons of ams and titan, select the one that fits your lifestyle and priorities most and go for it and go back living your life where you left

Thanks for support! I don't even know how to keep going. Now 20 Cialis or 100 Viagra somehow works. I understand that my psychological state plays an important role. and my psyche is now completely broken. during intercourse or blowjob, there is no sensitivity on the dorsal surface. At the moment, he refused the proposal of Professor Akhvelidiani, who proposed a pubic access with excision of scars and corporoplasty. settled on the proposal of Professor Gamidov, who offers scrotal access so as not to completely lose sensitivity. I don't know how long the pills will work, but after talking with people who did the ligation, in half a year or a year they will stop working completely. it is unacceptable for me to inject injections into the operated member, because it hurts, and injections do not work for me. Please tell me, after what dose of pills do people here already switch to an implant? Please advise specialists in Europe or America who can take on my case. Perito, Gabriele, Stiv are very expensive meters for me. Maybe there are doctors on the forum who are ready to take on such difficult cases? please respond

[25yearsold]

Agree with comment above,
Pick an experienced surgeon in reconstructive penile surgery, take scrotal approach no matter what to keep your remaining sensitivity to get best experience from implant, consider pros and cons of ams and titan, select the one that fits your lifestyle and priorities most and go for it and go back living your life where you left

Thanks for support! I don't even know how to keep going. Now 20 Cialis or 100 Viagra somehow works. I understand that my psychological state plays an important role. and my psyche is now completely broken. during intercourse or blowjob, there is no sensitivity on the dorsal surface. At the moment, he refused the proposal of Professor Akhvelidiani, who proposed a pubic access with excision of scars and corporoplasty. settled on the proposal of Professor Gamidov, who offers scrotal access so as not to completely lose sensitivity. I don't know how long the pills will work, but after talking with people who did the ligation, in half a year or a year they will stop working completely. it is unacceptable for me to inject injections into the operated member, because it hurts, and injections do not work for me. Please tell me, after what dose of pills do people here already switch to an implant? Please advise specialists in Europe or America who can take on my case. Perito, Gabriele, Stiv are very expensive meters for me. Maybe there are doctors on the forum who are ready to take on such difficult cases? please respond

If you are looking for doctors for another venous surgery/embolization then i dont know, but for implant i do not think your case would be a such difficult case for an implant specialist doctor as they already deal with severe scarring on peyronies patients that require implant and/or penile reconstruction.
I am not from US, but saw Clavell’s videos on Youtube, he was saying he’s interested in doing complex implant cases (revisions etc)

[AntonS]

Agree with comment above,
Pick an experienced surgeon in reconstructive penile surgery, take scrotal approach no matter what to keep your remaining sensitivity to get best experience from implant, consider pros and cons of ams and titan, select the one that fits your lifestyle and priorities most and go for it and go back living your life where you left

Thanks for support! I don't even know how to keep going. Now 20 Cialis or 100 Viagra somehow works. I understand that my psychological state plays an important role. and my psyche is now completely broken. during intercourse or blowjob, there is no sensitivity on the dorsal surface. At the moment, he refused the proposal of Professor Akhvelidiani, who proposed a pubic access with excision of scars and corporoplasty. settled on the proposal of Professor Gamidov, who offers scrotal access so as not to completely lose sensitivity. I don't know how long the pills will work, but after talking with people who did the ligation, in half a year or a year they will stop working completely. it is unacceptable for me to inject injections into the operated member, because it hurts, and injections do not work for me. Please tell me, after what dose of pills do people here already switch to an implant? Please advise specialists in Europe or America who can take on my case. Perito, Gabriele, Stiv are very expensive meters for me. Maybe there are doctors on the forum who are ready to take on such difficult cases? please respond

If you are looking for doctors for another venous surgery/embolization then i dont know, but for implant i do not think your case would be a such difficult case for an implant specialist doctor as they already deal with severe scarring on peyronies patients that require implant and/or penile reconstruction.
I am not from US, but saw Clavell’s videos on Youtube, he was saying he’s interested in doing complex implant cases (revisions etc)

I already had venous surgery and it was the biggest mistake of my life. venous surgery in urology breaks and kills people's lives. I heard that ligation and even embolization are already banned in many European and American countries. I read Golam's story. it's horrible. So I have much worse consequences than him. I'm still looking for the strength not to get into the loop. I am offered embolization, but I will not do it, as it will not help in my case. I talked with several people who did embolization and it helped a few, and to whom it helped, it was only for a while. There is no other line of treatment, except for pills - injections - an implant. I need a surgeon who works with complex postoperative scars and puts prostheses. Professor Hamidov offers me a good option with scrotal access and manual scar modeling on the Implant. at the same time, he recommends taking pills as long as they help somehow. Why everything happened so quickly that while I can’t break my psyche, what is it with me and that now I will fuck everyone with an inflatable member. exactly what the scripture says. Apocalypse. Thank you for recommending Dr. Clavell's. And I will strangle these charlatans Doctors from Moscow with my own hands!

[master1c8]

Venous leak surgeries It's a big scam in Russia. Government reject finance implantation by insurance, and as a result we got what we got. Only 300 implantation per year, and some thousand Venous leak surgeries at the same time. Do you think about implants?
We have hundreds of people injured like this