Lost 2 full inches

The final frontier. Deciding when, if and how.
JasonFL4678
Posts: 5
Joined: Sat Mar 25, 2023 10:06 am

Lost 2 full inches

Postby JasonFL4678 » Tue Apr 25, 2023 6:23 pm

Hello everyone. I am a 42 yr old man who has been dealing with ED since I was 20 years old. I finally came to the realization after popping Viagra like M&Ms and injecting medication into my penis both started to fail, I needed another solution. I got the AMS700 implant 6.5 weeks ago. I have been reading posts on here for the past couple months, and it has really made me feel like a solution is out there. The overwhelmingly majority of comments say how happy that the man and his partner are post surgery. Well, I am on the other side of the spectrum. Speaking with a friend who has the implant and reading here, I expected a 1 cm-0.5 inch loss in length. I saw some saying as much as 2cm. The nurse in my office said I shouldn't lose length and I may increase in girth. My doctor also said on 2 occasions that it may "appear" smaller, so a minimal reduction was expected.

My doctor told me not to touch the pump for 6 weeks, so at 6 weeks I pumped it up myself before my appointment and was insanely dissatisfied. I was 6.5 inches pre surgery and its only 4.5-4.7 now. I tried having sex with my girl and it was a disaster. She was trying to be supportive, but we both couldn't believe it. I had to alter every position because it wouldn't reach or would fall out. The pump is handing very low and in front of my left testicle. In my 6 week appointment today, my Dr. just told me that I need to stay positive and start cycling everyday, and we will reassess in 3 months. He did mention the possibility of a revision surgery with another Dr. if things dont improve.

It is hard to stay positive after dealing with ED for decades and then making the very hard decision to go ahead with surgery. I am glad that there is a possibility for it to get better, but I dont know how I could accept losing a third of my length ( I never measured girth but its much smaller too). I expected a long road but this will be a much longer path than expected to potentially achieve a positive result. Has anyone had or hear of a similar experience?

And thank you for being a resource to help naviagte a very sensitive and difficult situation.

atul21
Posts: 381
Joined: Thu Sep 15, 2022 3:08 am

Re: Lost 2 full inches

Postby atul21 » Tue Apr 25, 2023 6:33 pm

You have just begun cycling. The size loss initially is normal. With regular cycling you should be able to gain back most of the lost length.
Some people lose more and some less post op. But with regular cycling you should be able to gain back the lost length.
Stay positive and be patient. It takes time. Imo it will take 6-8 months before things become really normal.
42 yr old from India, Ed since many years.
Coloplast Titan 22 cms one touch pump no rte; implanted by Dr. Billy Cordon in Miami on 02-March-2023. Found Dr. Cordon on reco from Dr. Eid after he fell sick.
Happy to help!
My Journal- click here

frank66665
Posts: 1463
Joined: Wed Mar 25, 2020 11:18 am

Re: Lost 2 full inches

Postby frank66665 » Tue Apr 25, 2023 6:51 pm

atul21 wrote:You have just begun cycling. The size loss initially is normal. With regular cycling you should be able to gain back most of the lost length.
Some people lose more and some less post op. But with regular cycling you should be able to gain back the lost length.
Stay positive and be patient. It takes time. Imo it will take 6-8 months before things become really normal.

I understand that you want to sweeten the pill to your unfortunate friend, it seems to me very difficult that he can recover 5 cm with cycling, these gentlemen surgeons and implant manufacturers like to win easy, they make you sign a lot of paperwork to cover your ass in all respects, whatever goes wrong the patient takes it in the ass, moreover after paying a lot of money and having himself castrated, if I were a head of state I would put them in jail, they should be the ones to guarantee the patient that pays, and not be guaranteed to them in all respects, this way of doing is neither in heaven nor on earth, unfortunately the world revolves around money and there are no heads of state with a straight back to impose themselves before the god money
56, ED since 2010, pills work but not always and well, trt in progress improved but not so much, myocardial infarction january 2016, new stent september 2016, hypertension, venous on 1/23/23 titan one touch 22, no rte dottor Gabriele Antonini Italia

atul21
Posts: 381
Joined: Thu Sep 15, 2022 3:08 am

Re: Lost 2 full inches

Postby atul21 » Tue Apr 25, 2023 7:28 pm

frank66665 wrote:
atul21 wrote:You have just begun cycling. The size loss initially is normal. With regular cycling you should be able to gain back most of the lost length.
Some people lose more and some less post op. But with regular cycling you should be able to gain back the lost length.
Stay positive and be patient. It takes time. Imo it will take 6-8 months before things become really normal.

I understand that you want to sweeten the pill to your unfortunate friend, it seems to me very difficult that he can recover 5 cm with cycling, these gentlemen surgeons and implant manufacturers like to win easy, they make you sign a lot of paperwork to cover your ass in all respects, whatever goes wrong the patient takes it in the ass, moreover after paying a lot of money and having himself castrated, if I were a head of state I would put them in jail, they should be the ones to guarantee the patient that pays, and not be guaranteed to them in all respects, this way of doing is neither in heaven nor on earth, unfortunately the world revolves around money and there are no heads of state with a straight back to impose themselves before the god money


I was just sharing my experiences of having read 100’s of posts here and also my own experience of speaking to surgeons. Recovery may not be full 2 inches, but some recovery is definitely expected. We have cases where people have actually increased their length. So I refuse to be negative and would rather follow my cycling regime religiously. I would also state that it is better to have a shorter dick which works than a long one which doesn’t.
Keep up the faith my friend OP!
42 yr old from India, Ed since many years.
Coloplast Titan 22 cms one touch pump no rte; implanted by Dr. Billy Cordon in Miami on 02-March-2023. Found Dr. Cordon on reco from Dr. Eid after he fell sick.
Happy to help!
My Journal- click here

Daytripper
Posts: 77
Joined: Sat Nov 05, 2022 9:42 am
Location: San Antonio, TX

Re: Lost 2 full inches

Postby Daytripper » Tue Apr 25, 2023 7:37 pm

Jason welcome to the board, you've just starting to cycle so dont get discouraged on your initial size because that wont necessarily be your final outcome. Your best results in terms of size are still in front of you in the upcoming months. Search the board and you'll find testimonials from memebers who have experienced gains in length with regular cycling. Noone here can guarantee you specific gains but most all agree regular cyclng improves outcome. Good luck.
62 yrs old first implanted 9/4/2012 Titan OTR, lasted 10 years failed on 9/7/2022. Revision by Dr. Clavell 4/5/2023. 24cm + 1cm RTE's, Titan OTR. 110CC cloverleaf reservoir. Penoscrotal both times.

frank66665
Posts: 1463
Joined: Wed Mar 25, 2020 11:18 am

Re: Lost 2 full inches

Postby frank66665 » Tue Apr 25, 2023 7:51 pm

atul21 wrote:
frank66665 wrote:
atul21 wrote:You have just begun cycling. The size loss initially is normal. With regular cycling you should be able to gain back most of the lost length.
Some people lose more and some less post op. But with regular cycling you should be able to gain back the lost length.
Stay positive and be patient. It takes time. Imo it will take 6-8 months before things become really normal.

I understand that you want to sweeten the pill to your unfortunate friend, it seems to me very difficult that he can recover 5 cm with cycling, these gentlemen surgeons and implant manufacturers like to win easy, they make you sign a lot of paperwork to cover your ass in all respects, whatever goes wrong the patient takes it in the ass, moreover after paying a lot of money and having himself castrated, if I were a head of state I would put them in jail, they should be the ones to guarantee the patient that pays, and not be guaranteed to them in all respects, this way of doing is neither in heaven nor on earth, unfortunately the world revolves around money and there are no heads of state with a straight back to impose themselves before the god money


I was just sharing my experiences of having read 100’s of posts here and also my own experience of speaking to surgeons. Recovery may not be full 2 inches, but some recovery is definitely expected. We have cases where people have actually increased their length. So I refuse to be negative and would rather follow my cycling regime religiously. I would also state that it is better to have a shorter dick which works than a long one which doesn’t.
Keep up the faith my friend OP!

not everyone who gets an implant has a 100% dead cock, I find myself an implant due to too much positivity, maybe it's better to be rational, with cycling something will recover, maybe 1 inch if it's okay with him, that it wouldn't be bad to have a penis from 5.5/5.7", finding yourself from 6.5 to 4.5 really pisses your balls off even if it works, I have nothing against you eh, I'm just saying what I think
56, ED since 2010, pills work but not always and well, trt in progress improved but not so much, myocardial infarction january 2016, new stent september 2016, hypertension, venous on 1/23/23 titan one touch 22, no rte dottor Gabriele Antonini Italia

misterecz
Posts: 113
Joined: Thu Dec 15, 2022 1:42 am
Contact:

Re: Lost 2 full inches

Postby misterecz » Tue Apr 25, 2023 8:11 pm

Who was your doctor? did you do any research on him before you went.
What kind of incision did you get? Scrotal or pubic.
What kind of implant? AMS? Titan?
What size cylinders?
Were you using a VED everyday while you had ED and in preparation for the implant?
Peyronie's From Rough Sex in 2020.
Developed Erectile Dysfunction, Dorsal, & Lateral Curvature.
Treated With Traction, VED, DMSO, & PGE1.
YouTube Channel: https://www.youtube.com/@mrecz

atul21
Posts: 381
Joined: Thu Sep 15, 2022 3:08 am

Re: Lost 2 full inches

Postby atul21 » Tue Apr 25, 2023 8:24 pm

frank66665 wrote:not everyone who gets an implant has a 100% dead cock, I find myself an implant due to too much positivity, maybe it's better to be rational, with cycling something will recover, maybe 1 inch if it's okay with him, that it wouldn't be bad to have a penis from 5.5/5.7", finding yourself from 6.5 to 4.5 really pisses your balls off even if it works, I have nothing against you eh, I'm just saying what I think


Hey! I was not being critical of you in anyway. I was just sharing my thoughts. We all have same destination here and have had different paths to it. That is the beauty of this forum.
42 yr old from India, Ed since many years.
Coloplast Titan 22 cms one touch pump no rte; implanted by Dr. Billy Cordon in Miami on 02-March-2023. Found Dr. Cordon on reco from Dr. Eid after he fell sick.
Happy to help!
My Journal- click here

Lost Sheep
Posts: 6162
Joined: Mon Jul 04, 2016 11:16 pm

Re: Lost 2 full inches

Postby Lost Sheep » Tue Apr 25, 2023 9:02 pm

Welcome to the forum, JasonFL4678. Sorry to hear of your disappointment. I sincerely hope it is not permanent.

My experience was that my surgeon left me 80% inflated after surgery and dropped that to about 75% before I left the hospital (on day one). I was 6 inches erect (substantial stimulation with oral medication help) the week before surgery and I retained that size immediately (after recovering for a couple weeks). Those weeks were maintained at 75% inflated.

What degree of inflation were you after the surgery? If not close to maximum, you will experience some shrinkage which will be temporary. Breaking up the scar tissue encapsulation (which begins to form immediately post-op) will be uncomfortable, but a few months of cycling your implant from 0% to 100% can break up/stretch the capsule and restore your natural length and girth.

The surgeon measures the inside length of your penis (stretching it quite aggressively with the measuring tool) distally and proximally, then adds them together to determine the size of the implant. This should be written up in the operating report. Absent arithmetic error or mis-reading of the instructions on the implant (both egregious and rare events), your implant should be able to render your original length after cycling.

Some surgeons leave their patients pretty much uninflated (so a scar tissue capsule does not form around the reservoir, which would make deflation difficult) and others leave their patients well-inflated to make early activation and cycling easier. Did you ask your surgeon which approach he used with you?

Do you have the AMS LGX or CX? Just the AMS 700 does not tell me.

I am no medical professional but this lay opinion is supported by a LOT of testimony from men on this forum over several years.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

ThailandBound
Posts: 966
Joined: Fri Dec 16, 2022 5:32 pm

Re: Lost 2 full inches

Postby ThailandBound » Tue Apr 25, 2023 10:03 pm

You stated that you've had "decades" of ED.

Dr. Perito says that "the day of your last erection is the day your dick starts to shrink". Is the size measurement you mentioned really what you were on the day of your surgery or your recollection of times past?

The stretch test, prior to surgery, is a good indicator of what you should expect. Did your doctor give your flaccid a hard tug, holding the glans, and stretch it out before your surgery? If so, that's what you can expect. As another member here mentioned, you are 6 weeks post op. I'm 4 months postop. I didn't lose 2 inches, but i lost some and was quite alarmed at 6 weeks. At 4 months, I can cycle such that i can pump not one iota more and my length has almost returned to normal. I expect a bit further increase as time goes on, but even at this point, i not only notice the difference between week 6 and now, but am most satisfied.
Active, athletic 63 years old. Sexually, still 33 in my mind and spirit. Pills and injections all worked, until they didn’t. Diagnosed with veinous leakage in 2022. Coloplast Titan. 22 CM. No RTE. Peno-scrotal. Implanted 1/4/23. Dr. Clavell.


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