I'll keep it short..
Diagnosed Peyronies at 28, I'm about to be 30.
Small bend below glans to begin with. I was shocked as never seen my penis bend. Google = peyronies disease. Went to urologist in London, UK. Officially diagnosed. Got SOMA pump and ciailis. Long story short it is now WAY worse. Attaching photos.
Now I'm not sure what made it go so much worse and deformed but I cannot have sex now and bad ED. Lost at least 1 inch maybe 2. Never measured pre peyronies so not sure but all I know is I was bigger than now. I'm around the "average erect" size but its clearly all bent and deformed. Severe hourglassing where it seems like it completely cuts off growth from that point.
I simply believe I have to get a implant at this point as I've lost nearly 2 years of normal sex life. I want to date and live life.
Guess I'm just posting this here for now for some open dialogue with a community (as its lonely) and incase anyone has success stories, similar issues to mine/my penis, advice... I do not have the funds for private care so looking into options.
Haven't seen many dicks as deformed as mine. I'm very curious to see if there is other dicks on here like mine thats clearly messed up. Hopefully they had a success story as things don''t feel great right now.
This was when I was first diagnosed around 1-2 months into this journey:
Now all the rest below was taken within the last week:
Peyronies destroyed me, time for an implant?
-
- Posts: 66
- Joined: Fri Jun 16, 2023 10:04 pm
Peyronies destroyed me, time for an implant?
Last edited by gandalfasfhaf on Wed Aug 23, 2023 8:39 pm, edited 6 times in total.
-
- Posts: 66
- Joined: Fri Jun 16, 2023 10:04 pm
Re: Peyronies destroyed me, time for an implant?
A few extra photos to show how impressive this deformity is lol.... Gulp
It leaves me to think I have no other option other than implant
It leaves me to think I have no other option other than implant
-
- Posts: 6162
- Joined: Mon Jul 04, 2016 11:16 pm
Re: Peyronies destroyed me, time for an implant?
Sorry to hear of your problem. There are treatments short of an implant, a couple of which you have already tried. There are others, though, including surgery to remove whatever tissues or problems there are. Implant is a big step.
Wishing you the best with both your condition and your dealings with the National Health System.
Wishing you the best with both your condition and your dealings with the National Health System.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter
Re: Peyronies destroyed me, time for an implant?
Is it fully erect in these pictures? Is the deformity most evident when fully erect?
-
- Posts: 1127
- Joined: Thu Dec 12, 2013 10:16 pm
Re: Peyronies destroyed me, time for an implant?
Implant is a great option if you can make it happen. Good luck to you bro
Early 30s with ED for years from penis enlargement stretching and jelqing. Implant by Dr Eid on 24 June 2021 with a Titan 24cm with +1cm RTE on one side and -1cm cut off on the other side
My journal: viewtopic.php?t=17202
My journal: viewtopic.php?t=17202
-
- Posts: 66
- Joined: Fri Jun 16, 2023 10:04 pm
Re: Peyronies destroyed me, time for an implant?
What other treatments do you speak of Lost Sheep? Grafting? Lue procedure etc?
I've read up about a bunch, spoken with Dr.Trost about Xiaflex but it all seems like nothing will fix this other than an implant and ALSO I do not have funds to be paying stuff like 800USD for 1 injection.
I don't want this to sound like I'm complaining, just simply stating my reality currently.
With an implant, my main concern is how many revisions can I have in the future before it erodes and I can't have anymore...
If it's just the case of, have an implant, can't get naturally erect anymore/have to use pump, penis is straight and functional, I can have great sex again and date, but every 8-15 years I got to go through with a revision - I would do it, but if after every revision it means my penis is eroding and eventually will not be able to have revisions then thats an issue.
I've read up about a bunch, spoken with Dr.Trost about Xiaflex but it all seems like nothing will fix this other than an implant and ALSO I do not have funds to be paying stuff like 800USD for 1 injection.
I don't want this to sound like I'm complaining, just simply stating my reality currently.
With an implant, my main concern is how many revisions can I have in the future before it erodes and I can't have anymore...
If it's just the case of, have an implant, can't get naturally erect anymore/have to use pump, penis is straight and functional, I can have great sex again and date, but every 8-15 years I got to go through with a revision - I would do it, but if after every revision it means my penis is eroding and eventually will not be able to have revisions then thats an issue.
-
- Posts: 66
- Joined: Fri Jun 16, 2023 10:04 pm
Re: Peyronies destroyed me, time for an implant?
TwoStep wrote:Is it fully erect in these pictures? Is the deformity most evident when fully erect?
I would say this is mostly what I look like fully erect currently yes. And you can't really see anything wrong with it at all when flaccid. Although I was a grower before and it's clearly lost length when erect
Although I am not taking high doses of pills so maybe that'd make it look different, but eitherway the angle is impossible for sex.
The tip half/above the hourglass is less hard than the base of the shaft. Leading me to believe the blood isn't get pushed all the way up.
Last edited by gandalfasfhaf on Wed Aug 23, 2023 8:41 pm, edited 1 time in total.
-
- Posts: 66
- Joined: Fri Jun 16, 2023 10:04 pm
Re: Peyronies destroyed me, time for an implant?
wolfpacker wrote:Implant is a great option if you can make it happen. Good luck to you bro
Hey man, hows your journey been? I see you're around same age as me and have implant with Eid.
I would love to choose Eid but simply do not have funds or will be able to aqquire them anytime soon, unless I win the lottery etc.
But it seems I can have the implant via the NHS in the UK, potentially with Professor David Ralph, although I see mixed reviews.
Some good and some bad but it seems the bad ones tend to be discussing grafting which I would not do.
Spoke to Hakky also he mentioned graft or implant but thought implant would likely be the way to go.
{edit: just read some of ur posts, seems like ur in a good place with it all congrats}
-
- Posts: 603
- Joined: Fri May 12, 2023 3:46 pm
Re: Peyronies destroyed me, time for an implant?
I had Peyronie's disease. Not as severe as yours. I had two plaque scarring on the same side ( right side ) . It made my erection curve right approximately 30° I'd guess. Dr. Clavell straighten me out using plaque incisions. With the implant, it's pretty straight. I still have a very slight curve when pumped to 100% . At 80% its straight. Another procedure that can be done is plication. In this surgery they shorten , ever so slightly, the corpora opposite the damaged side . This will also help straighten a curved erection. I might opt for this surgery whenever I get a revision. I saw pics of a penis that had almost 90° curve that Dr. Clavell got straight as an arrow. I don't know what will help your case , just know there's hope out there . Don't give up . Good luck brother
54 - Coloplast Titan 22cm , Implanted by Dr. Clavell in April 2023
-
- Posts: 603
- Joined: Fri May 12, 2023 3:46 pm
Re: Peyronies destroyed me, time for an implant?
.... still have the " dents " though . I want to get that fixed in the future too. With all these minor complications and aesthetic blemishes, it is still WAY better than the hell ED brought into my life for 20 years . An implant solved all that. I've had more sex in the last 2 months than the previous 10 years.
54 - Coloplast Titan 22cm , Implanted by Dr. Clavell in April 2023
Who is online
Users browsing this forum: No registered users and 348 guests