Peyronies destroyed me, time for an implant?

[wolfpacker]

Implant is a great option if you can make it happen. Good luck to you bro

Hey man, hows your journey been? I see you're around same age as me and have implant with Eid.

I would love to choose Eid but simply do not have funds or will be able to aqquire them anytime soon, unless I win the lottery etc.

But it seems I can have the implant via the NHS in the UK, potentially with Professor David Ralph, although I see mixed reviews.

Some good and some bad but it seems the bad ones tend to be discussing grafting which I would not do.

Spoke to Hakky also he mentioned graft or implant but thought implant would likely be the way to go.


{edit: just read some of ur posts, seems like ur in a good place with it all congrats}

It's been good man. Having sex whenever I want now, mostly learned to conceal the implant. It has some downsides for sure but being able to have normal sex really makes life worth living again, at least for me.

[personfromon]

Implant is a great option if you can make it happen. Good luck to you bro

Hey man, hows your journey been? I see you're around same age as me and have implant with Eid.

I would love to choose Eid but simply do not have funds or will be able to aqquire them anytime soon, unless I win the lottery etc.

But it seems I can have the implant via the NHS in the UK, potentially with Professor David Ralph, although I see mixed reviews.

Some good and some bad but it seems the bad ones tend to be discussing grafting which I would not do.

Spoke to Hakky also he mentioned graft or implant but thought implant would likely be the way to go.


{edit: just read some of ur posts, seems like ur in a good place with it all congrats}

It's been good man. Having sex whenever I want now, mostly learned to conceal the implant. It has some downsides for sure but being able to have normal sex really makes life worth living again, at least for me.

What would you say are the downsides besides the obvious (revisions, dog-earring, potential embarassment from explaining to partners lol)? Are there any small things that people may not have thought about before getting the implant that kind of make you go "huh, wish I knew about that before going through with this"?

[Lost Sheep]

What other treatments do you speak of Lost Sheep? Grafting? Lue procedure etc?

I've read up about a bunch, spoken with Dr.Trost about Xiaflex but it all seems like nothing will fix this other than an implant and ALSO I do not have funds to be paying stuff like 800USD for 1 injection.
(edited for focus)

I only know that they exist. I did not make a study of them nearly as deeply as I studied implants for my own particular circumstances (which did not involve Peyronie's). I only know of them because of incidental reading. Sorry.

You, on the other hand have apparently studied more extensively.

[gandalfasfhaf]

What other treatments do you speak of Lost Sheep? Grafting? Lue procedure etc?

I've read up about a bunch, spoken with Dr.Trost about Xiaflex but it all seems like nothing will fix this other than an implant and ALSO I do not have funds to be paying stuff like 800USD for 1 injection.
(edited for focus)

I only know that they exist. I did not make a study of them nearly as deeply as I studied implants for my own particular circumstances (which did not involve Peyronie's). I only know of them because of incidental reading. Sorry.

You, on the other hand have apparently studied more extensively.

No worries man, I actually forgot you guys don't have Peyronies so that's understandable.

Yeah it's a real bi**h to cure this, I've looked through a lot and it seems I'm one of the people that has to do the "last resort" with an implant. Although it doesn't sound that bad to me. My only worry is the price tag (can't afford so got to go for free via NHS) and future revisions and my penis becoming less strong over time/eroding or such. I'm not too knowledgable on that subject though.

Thing is, I cannot have sex anymore. My confidence is deleted. Just two years ago I had a huge spring in my step loving life. Not so much now. I've completely written off even meeting women right now. I want to date but at the same time I don't/can't. I'd rather just wait till I can hop into a relationship and actually have sex. I've met women along the way and always have good responses. For example, I met someone not long ago and things escalated, I had to say we can't have sex because I broke my penis, she was cool about it (as she still got off probably lol) blah blah but STILL, that is not the life I want to live.

My thought is, I may aswell get an implant ASAP and hopefully it works all well and I can have sex and live a normal life again. I could die any day so might aswell have a working penis for however long possible than to not. I don't know. Thats the thing I just do not know what to do anymore. So depressed.

Ranting.

[gandalfasfhaf]

I had Peyronie's disease. Not as severe as yours. I had two plaque scarring on the same side ( right side ) . It made my erection curve right approximately 30° I'd guess. Dr. Clavell straighten me out using plaque incisions. With the implant, it's pretty straight. I still have a very slight curve when pumped to 100% . At 80% its straight. Another procedure that can be done is plication. In this surgery they shorten , ever so slightly, the corpora opposite the damaged side . This will also help straighten a curved erection. I might opt for this surgery whenever I get a revision. I saw pics of a penis that had almost 90° curve that Dr. Clavell got straight as an arrow. I don't know what will help your case , just know there's hope out there . Don't give up . Good luck brother

Thanks for your story man, unfortunately it is good hearing others stories who have dealt with peyronies.. Only say unfortunately as no one should have to deal with it..

Anyways, glad it worked out for you. As you see in my first pic I had such little problem with that short curved, I think I had SLIGHT loss of length then/things weren't expanding fully but I was still a good size. I've lost so much now it's brutal. This is why I don't think I would get plication as I don't want to lose anymore. I'm the exact google average currently which is whatever but ideally I gain some length.

Hopefully I can sort this out and be good again. I haven't had sex in nearly 2 years and at my age it's just not normal, it's messed up.

[Journeyman]

I had Peyronie's disease. Not as severe as yours. I had two plaque scarring on the same side ( right side ) . It made my erection curve right approximately 30° I'd guess. Dr. Clavell straighten me out using plaque incisions. With the implant, it's pretty straight. I still have a very slight curve when pumped to 100% . At 80% its straight. Another procedure that can be done is plication. In this surgery they shorten , ever so slightly, the corpora opposite the damaged side . This will also help straighten a curved erection. I might opt for this surgery whenever I get a revision. I saw pics of a penis that had almost 90° curve that Dr. Clavell got straight as an arrow. I don't know what will help your case , just know there's hope out there . Don't give up . Good luck brother

Thanks for your story man, unfortunately it is good hearing others stories who have dealt with peyronies.. Only say unfortunately as no one should have to deal with it..

Anyways, glad it worked out for you. As you see in my first pic I had such little problem with that short curved, I think I had SLIGHT loss of length then/things weren't expanding fully but I was still a good size. I've lost so much now it's brutal. This is why I don't think I would get plication as I don't want to lose anymore. I'm the exact google average currently which is whatever but ideally I gain some length.

Hopefully I can sort this out and be good again. I haven't had sex in nearly 2 years and at my age it's just not normal, it's messed up.

I had the exact same reaction when Dr. Clavell brought up plication surgery and I asked what it was . He said , " We shorten... " NO" ... I quickly interrupted . Then he went on to explain that the shortening is very minimal. Millimeters I think he said . He said it would help straighten it . Well he didn't do it and now I find myself trying to bend my dick to the left , trying to stretch the right corpora to straighten it . Even though my curve is very slight to the right ( pumped up to 100%) , I still wish it was straight like an arrow for 2 reasons. 1) Aesthetics... I think it'll look better and ... 2) The slight curve is because the left cylinder is able the expand farther than the left cylinder. The left corpora restricts that expansion. The result is the slight curve causes crincles in the bottom of the left cylinder . Like ribs ( for her pleasure? ) . Think of corrugated pipe... that's what it reminds me of . When I deflate a little , everything sorts itself out. When revision time comes , I'm gonna get the plication.

[Journeyman]

I had Peyronie's disease. Not as severe as yours. I had two plaque scarring on the same side ( right side ) . It made my erection curve right approximately 30° I'd guess. Dr. Clavell straighten me out using plaque incisions. With the implant, it's pretty straight. I still have a very slight curve when pumped to 100% . At 80% its straight. Another procedure that can be done is plication. In this surgery they shorten , ever so slightly, the corpora opposite the damaged side . This will also help straighten a curved erection. I might opt for this surgery whenever I get a revision. I saw pics of a penis that had almost 90° curve that Dr. Clavell got straight as an arrow. I don't know what will help your case , just know there's hope out there . Don't give up . Good luck brother

Thanks for your story man, unfortunately it is good hearing others stories who have dealt with peyronies.. Only say unfortunately as no one should have to deal with it..

Anyways, glad it worked out for you. As you see in my first pic I had such little problem with that short curved, I think I had SLIGHT loss of length then/things weren't expanding fully but I was still a good size. I've lost so much now it's brutal. This is why I don't think I would get plication as I don't want to lose anymore. I'm the exact google average currently which is whatever but ideally I gain some length.

Hopefully I can sort this out and be good again. I haven't had sex in nearly 2 years and at my age it's just not normal, it's messed up.

I fucked up that last post . The RIGHT corpora restricts the expansion of the cylinder. Causing it to curve right . .... I'm tired

[wolfpacker]

Hey man, hows your journey been? I see you're around same age as me and have implant with Eid.

I would love to choose Eid but simply do not have funds or will be able to aqquire them anytime soon, unless I win the lottery etc.

But it seems I can have the implant via the NHS in the UK, potentially with Professor David Ralph, although I see mixed reviews.

Some good and some bad but it seems the bad ones tend to be discussing grafting which I would not do.

Spoke to Hakky also he mentioned graft or implant but thought implant would likely be the way to go.


{edit: just read some of ur posts, seems like ur in a good place with it all congrats}

It's been good man. Having sex whenever I want now, mostly learned to conceal the implant. It has some downsides for sure but being able to have normal sex really makes life worth living again, at least for me.

What would you say are the downsides besides the obvious (revisions, dog-earring, potential embarassment from explaining to partners lol)? Are there any small things that people may not have thought about before getting the implant that kind of make you go "huh, wish I knew about that before going through with this"?

I still haven't found a comfortable way to go swimming in a bathing suit. The deflated Titan is basically like a mini-boner, concealable in more substantial clothes but not so much in a wet bathing suit. Doing cardio is also a little weird for the same reason, the stiff dick kinda bangs around down there while exercising instead of hanging limp like a non-implanted dick would.

[gandalfasfhaf]

Sorry to see your struggles OP but keep this in mind. Don't be embarrassed or broken about what you have atm. It is what it is and plenty of men and women have health issues.

If you have good sensation still, an implant will not only straighten your peyronies, but will send your confidence through the roof.

That being said there is no going back once it's done. Keep this in mind at all times. A surgeon or urologist is doing what they're doing for $$$. They will push whatever will make them that $$$ so their advise should be taken objectively.

Join the peyronies forum and seek advise from others who have already gone through the process, decide on your best route, and follow that through.

If going for an implant, go to the very best implant surgeon you can afford as that will govern your final outcome.

Thank you WatNext, I agree with all you say.

I am trying to keep the mindset of "It is what it is". Thats how I feel about life and usually pretty happy go lucky. Peyronies/Dick becoming deformed is something that has really rattled me though but, today has been a good day of treating it and hanging with friends, so life could be WAY worse.

I still think to myself "Thank F I can still urinate" otherwise that'd be a real problem. I do still have sensation which is good. I think my horizon see's an implant. I have spoken to one close friend about my issue (other than therapist) and they don't know the full details aside from basically my penis is broken/can't have sex. And they said to me today you might aswell do whatever gets you back to "normal" as soon as possible so you can live your life as you might not see tomorrow and I do think the same way, despite it being a life altering surgery I don't see much other options. Like I could die any day, so might aswell get an implant and deal with any future revisions.

I think my implant would be with Dr Ralph in the UK who seems to be one of the best in Europe despite having some bad reviews knocking about but it does seem the bad reviews tend to be around grafting rather than implant itself. I'm not sure though that's just what I've read.

In a dream world I would go with Eid or Hakky for example but I got to win the lottery to get the funds for that so it feels like I have to just bite the bullet and go to the NHS (Free healthcare) in the UK and have Ralph do it.

It's all getting quite boring at this point having to feel negative/down in the dumps, researching peyronies/doctors, looking at penis's and cut open penis's, putting a vaccuum onto my dick and sitting there like a lemon for 10 minutes, taking pills, to not have sex despite all of that because its deformed and unable, holding a heavy place in my head of distress and depression whilst carrying it on my shoulders where I go... This is just off the top of my head but I could think of some more lol... It seems like a F it situation, give me the implant and let me live my life again. I'm 30 and I see opportunities to meet women all the time but I don't bother at this point due to everything.

Rant over

[misterecz]

have you tried traction? should have started that as soon as possible. a VED will be negligible.
the place of your deformity is tough, but i'd much rather do traction and pumping than get an implant.
specially if you don't have ED.