Peyronies - Grieving the loss of my best friend.

[sogwap]

It has been said that over 50% of men with Peyronies also suffer with depression.

I developed Peyronies Disease (PD) 14 months ago.
Seemingly overnight I lost my best friend. I lost length, and girth and had a noticeable curve.

No wonder most men with PD suffer with depression.
Many men have physical pain either flaccid or often erect. (Thankfully I never had any pain associated with my PD)
Most men with PD, lose length, girth, or both. Losing an inch or more in length or girth is not uncommon.
Most men have penile curvature ranging from 15 to as much as 70-100 degree curvature.
Some men develop ED as a result of Peyronies.

Because of the size loss sex is often difficult.
Because of the curvature many find sex impossible or very difficult. Resulting in pain for the man or his partner. (personally, I am still able to have sex, but it is very limited because of the size loss)

I lost interest in masturbation, As my penis feels quite foreign. The size loss feels noticeably different when stroking and the curvature make my penis feel like it's broken.

[Bent Ben]

I can attest to this thesis. I cant say I was depressed, maybe whoas me but not depressed. I did lose length and girth. I was 6.25l x 6.375g now 7 month today I am 5.5 x 5.875. (At 1 month I was 4.75 x 5.5 so Im growing) My wife actually prefers my new girth and says she cant tell any difference in length.
I was determined to not get down and to fightback. While my natural erection and penis were preferable (size, no dog ears, no discomfort from the cylinders rubbing inside my flesh) my new implanted penis has its upsides. Rock hard on demand erections that last until I want to be done, better performance because Im not concerned about losing my erection, long lasting sex without premature ejaculation and a large flaccid penis that doesnt make me embarrassed to use urinals and troughs in front of others.
If you have PD and or ED dont sit around moping, get over it and find solutions. Im glad I did and would do it again in a heartbeat

[Musson]

I was depressed for a year after PD set in. I lost substantial length and a little girth. Minor ED became significant ED. The upward curve causes “ folding” unless I am at 100% erectile rigidity. The curve and length loss makes sex less satisfying. ( although at the risk of contradicting myself, several women have cum like crazy during sex because I now hit the ceiling of the vagina…ie G spot). Over several years my curve has reduced and I have regained some size. Once I read about PD-related depression, I began to realize what was happening and was much improved. I switched to Trimix injections to avoid the higher doses of sildalifil.

To mitigate the sexual problems my wife and I have really gotten in to dildos and other toys, not to mention more oral. I’ve also recently added a new 58 year old Asian plaything on the side that prefers smaller penises.

All in all I wouldn’t wish PD on my worst enemy, but with a few adjustments I’ve made things work. If things go south there is always the nuclear option(implant)

Cheers.

[Musson]

More to my prior note;

My Uro failed to warn me about PD-related depression. I really wish he had. He also strongly disagreed that the Peyroines caused or worsened my ED. I ended up firing him and am now seeing a Much more sympathetic one.

[gandalfasfhaf]

I can attest to this thesis. I cant say I was depressed, maybe whoas me but not depressed. I did lose length and girth. I was 6.25l x 6.375g now 7 month today I am 5.5 x 5.875. (At 1 month I was 4.75 x 5.5 so Im growing) My wife actually prefers my new girth and says she cant tell any difference in length.
I was determined to not get down and to fightback. While my natural erection and penis were preferable (size, no dog ears, no discomfort from the cylinders rubbing inside my flesh) my new implanted penis has its upsides. Rock hard on demand erections that last until I want to be done, better performance because Im not concerned about losing my erection, long lasting sex without premature ejaculation and a large flaccid penis that doesnt make me embarrassed to use urinals and troughs in front of others.
If you have PD and or ED dont sit around moping, get over it and find solutions. Im glad I did and would do it again in a heartbeat

Gives me some real hope, I've lost a bunch of length to be smaller than ideal now although I think I still sit around lower average. I can't exactly measure properly due to curve.

I am on the waiting list to be implanted. Still get to choose between titan and AMX. Doc says my girth will be noticeably bigger, I believe they said could even be 2x what I am now. So even with a smaller than my natural size in length the girth might make up for it, I hear the ladies appreciate some girth.

Did you regain that length from 4.7 to 5.5 AFTER being implanted whilst cycling?

[Bent Ben]

Yes it was from cycling. Twice a day. Sometimes I take a day or two iff because my scrotum gets sore from pumping.

[Namirrah]

I developed Peyronie's from use of trimix and abnormal wound healing from diabetes.

There's a thick plaque at my injection site. It causes a complete collapse of the CC in that spot, creating a dent a significant curve.

I also developed two plaques at the distal end of both CCs. They are hard and just under an inch in length. It has significantly shortened my penis and changed the shape of my glans.

I was well endowed before the Peyronie's.

I have lost 2 1/2 inches in length, so far. I am now around average to low average in length and feel like my dick is withering away daily.

I am circumcised and used to have a flaccid penis between 5-6 inches, maybe 4 inches after swimming in cold water.

Now my flaccid penis is 2-3 inches and looks like I am uncircumcised.

I feel like I am literally half the man I used to be.

I have been to two urologists, because the first one didn't want to aggressively treat this.

Both seem very unconcerned about my loss of size. But it sure as hell concerns me.

I also have a lot of pain.

[AKJess]

I've been dealing with PD for a few years now. I also had a loss in length, but an increase in girth where it looked swollen. The girth increase was a major problem for my wife because her southern anatomy is small, this caused both of us pain. It didn't help being curved to the side either, had it been either up or down, I believe it would have been manageable during sex. I started with opposing traction and medication which helped, but I hit a plateau and stopped making progress. We changed treatment strategies and I started getting xiaflex injections. There was some further improvement and I can now have sex without too much pain now unless wifey gets overly enthusiastic. Still bent around 30 degrees though and it sucks because I always anticipate the pain hitting me suddenly and causing my erection to fail.

[lovedavis]

Your feelings of loss and the sense that your penis feels foreign to you are very common among men with PD. Many men experience a range of emotional responses, including sadness, frustration, and a decrease in self-esteem. The fact that you've also lost interest in masturbation due to the physical changes is another aspect that can contribute to the emotional strain.

It's important to acknowledge these feelings and understand that they are a natural reaction to a difficult situation. Seeking support is crucial. This can include talking to a healthcare provider about treatment options for PD, which might help improve some of the physical symptoms. Additionally, counseling or therapy can be very beneficial for addressing the emotional impact. There are also support groups for men with PD where you can share your experiences and learn from others who understand what you're going through.

You're not alone in this, and there are resources and people who can help you navigate this challenging time.