Maybe I should stay like this and not fight

[Jess21]

I have very little proximal space in my corpora cavernosa and I have erectile dysfunction. I want the implant but I don't know if it is possible due to the tightness I have in that area. My question is should I keep trying or just stay like this forever. I have a very serious deformity, maybe I am losing a lot.I would like to talk to someone who could guide me through this. maybe I have sex all my life with VED.

Deep down I feel like maybe I'm asking too much from God and he's not going to give it to me. What will become of me? will i have a partner?. Will they be unfaithful to me? I don't know

[NorCol]

Research the Titan NB and AMS CXR. Your comment leads one to believe you've obtained some medical advice however it seems rather lacking. Wherever you may be seek out the advice of a high volume implant surgeon as soon as possible. Best of luck.

[easymoney]

Yes high volume implant and sexual health dr. in your area .. many universities are tied onto teaching hospitals and do this type of surgery. Down side to it like me I'm not sure who did my last surgery, and not sure on the truthfulness of my surgeon when asked.

[LastHope]

I completely agree with easymoney. A university team may have many intelligent students, but some of them can include inexperienced resident fellows.

When researching malleables, consider Rigicon's Rigi10. Its narrow proximal section makes it a better choice for easier implantation, especially if you have significant proximal fibrosis.

Coloplast Genesis and Boston Scientific Tactra lack narrow proximal sections, so I wouldn't recommend them IF you have proximal fibrosis.

[Jess21]

thanks guys. I will continue looking, my doctor actually told me that it was unlikely due to the narrowness that a prosthesis could fit there.

I had an untreated penile fracture. Several urologists saw me and said everything was fine. but I felt that I had a lot of difficulty erecting. It was tried with an injection to do the Doppler ultrasound and the sonographer pointed out two problems: an injury to the urethra and cavernous fibrosis in the proximal area (base of the penis). After the injection everything got worse, it was difficult for me to have erections and I also lost weight all over. right side of my penis is almost like it's empty.

My penis loses thickness and size every time it takes effect, I proposed to my urologist doctor about the prosthesis and he told me that it was not possible due to the proximal damage. I'm not sure if my doctor is an implanter and maybe that's why he doesn't know what to do either. but the truth is that I am very damaged.

is it really possible to save my case

What do you recommend I change urologists?

I also have to see an implanter that was recommended to me.

I was investigated and I have not seen any cases of proximal stricture that have been operated on, not even Dr. Kramer has videos of those cases.

My concern is really the narrowness of my proximal part.

[Txagq8]

Giving up…throwing in the towel…is an absolutely certain way to never prevail. Fighting on isn’t easy but I fear you’ll regret it forever if you don’t.

I’m not an expert on fibrosis. However I see no reason why they can’t do some cleanup work and create some more space for cylinders.

And yes I know the CXR is narrower and was designed specially for guys whose space was limited due to fibrosis.

As far as I can tell, as accurate as my memory is…having an implant is better than before. My dick looks normal, it works perfectly, the only difference is I have to inflate the cylinders. I honestly don’t think of myself as implanted. I see myself as having had a structural problem corrected via surgery.

Truthfully? You’ve got a complex issue. The local guy who does a dozen implants annually might not want to mess with you. It may take elevating this to one of the world class guys and letting him evaluate it.

That’s what I would do. Get your medical records together, any imaging on cd or thumb drive, and send it to Eid, Clavell, Perito Hakky et al. Depending on where you are I wouldn’t rule out a visit in person to the second tier of surgeons.

[Jess21]

Giving up…throwing in the towel…is an absolutely certain way to never prevail. Fighting on isn’t easy but I fear you’ll regret it forever if you don’t.

I’m not an expert on fibrosis. However I see no reason why they can’t do some cleanup work and create some more space for cylinders.

And yes I know the CXR is narrower and was designed specially for guys whose space was limited due to fibrosis.

As far as I can tell, as accurate as my memory is…having an implant is better than before. My dick looks normal, it works perfectly, the only difference is I have to inflate the cylinders. I honestly don’t think of myself as implanted. I see myself as having had a structural problem corrected via surgery.

Truthfully? You’ve got a complex issue. The local guy who does a dozen implants annually might not want to mess with you. It may take elevating this to one of the world class guys and letting him evaluate it.

That’s what I would do. Get your medical records together, any imaging on cd or thumb drive, and send it to Eid, Clavell, Perito Hakky et al. Depending on where you are I wouldn’t rule out a visit in person to the second tier of surgeons.

Thanks friend, I will try to see if I can find this implanter. If not, I'll see someone else, I guess there are options. I heard about the cavernous excavation. but I really don't know if anyone would try this procedure with me. All I have to do is try.

[LastHope]

I'll reiterate. Eid, Clavell, Perito, and Hakky are well-regarded on this forum for treating complex cases, and I consider them top-tier.

Seeing a general urologist for a penile prosthesis consult is like seeing a primary care physician for complex cardiac issues—you need a fancy super specialist high volume penile prosthetic urologist blah blah blah...

As Dr. Eid said, your penis with a prospective implant is like a Ferrari, and don't take him to a general mechanic for servicing.

For starters who can't go to the hakkys, eids, peritos and clavells, as a second-tier option, I would only consider those who have the Coloplast or Boston Scientific "Center of Excellence" seal (see below links and only a few have that seal) for treating erectile dysfunction.

Coloplast device specialists:
https://www.coloplastmenshealth.com/find-a-physician/
AMS device specialists:
https://www.edcure.com/us/en/find-a-specialist.html

[Gt1956]

Jess21, listen carefully. Not all drs are equal, even within the same specialized area of medicine.

You are the perfect patient for a top surgeon. One that has seen some problem cases. Its likely that your proximal tissue has filled with scar tissue. Scar tissue is your bodies natural reaction to injury. I have read of several members that have had their proximal cavities cut down through the scar tissue. Then an appropriate implant is then placed. This isn't a common surgery but it is done by the drs that specializes in tough cases.

It sounds like you haven't actually talked to an IPP surgeon. If you had of seen one he would of told you about these methods. Now just maybe he doesn't do that procedure but he knows that it is done.

Quit going to a local dr, even if he is well regarded. I'm guessing but I bet there is maybe 20 to 30 drs in the USA that can work on your condition. You need to find one. It only takes finding one of them to get you fixed up.

Btw, tell your IPP dr about your injury. And for heavens sake, don't do it anymore.

[Jess21]

Jess21, listen carefully. Not all drs are equal, even within the same specialized area of medicine.

You are the perfect patient for a top surgeon. One that has seen some problem cases. Its likely that your proximal tissue has filled with scar tissue. Scar tissue is your bodies natural reaction to injury. I have read of several members that have had their proximal cavities cut down through the scar tissue. Then an appropriate implant is then placed. This isn't a common surgery but it is done by the drs that specializes in tough cases.

It sounds like you haven't actually talked to an IPP surgeon. If you had of seen one he would of told you about these methods. Now just maybe he doesn't do that procedure but he knows that it is done.

Quit going to a local dr, even if he is well regarded. I'm guessing but I bet there is maybe 20 to 30 drs in the USA that can work on your condition. You need to find one. It only takes finding one of them to get you fixed up.

Btw, tell your IPP dr about your injury. And for heavens sake, don't do it anymore.

I'm going with the implanter. Due to the case I am in, my option may be to try to expand the nearby tunnels with cavertometers or even a cavernous excavation and see how to implant the cylinder. You may even only be able to use small malleable prostheses. Damn I hope they don't make my penis too small if it happens. Tomorrow I will go to the urologist (I already had
pay the appointment)
I will talk about the case with him. but in my mind I know I'm going to the implanter.