Tenacio Failed - Revision on the way...

The final frontier. Deciding when, if and how.
TruthEdge
Posts: 42
Joined: Fri Jul 21, 2023 6:03 pm

Re: Tenacio Failed - Revision on the way...

Postby TruthEdge » Tue Jan 07, 2025 10:06 pm

wilsonmill wrote:
TruthEdge wrote:
wilsonmill wrote:Sorry to hear that your pump malfunction, I had a revision this year and wanted the tenacio pump because it looked like a good piece of engineering. I hope it is easily resolved, there are quite a few tenacio pumps implanted, I have followed them in both LinkedIn and X, yours is the first I have read about that is malfunctioning.

Here is a link on the pump
https://t.co/TVOeLtQ6gO


Thanks. The rate of failure at this point would be too soon to know as AMS stated to me on phone or what would be the general issue that would occur in the failures. We prob won't know that for at least a full year maybe even two years from June of 2024 when they got cleared officially for the top 10-15 AMS approved surgeons. Hopefully for everyone, I am in a very small percentage.


There should be data as it was used and approved in Europe before the USA, like Rigicon. Hope it is a one off but feel for the patients if it should fail, hope my revision (AMS) with the MS pump lasts at least 10yrs.


I agree to a point, but they are going to want to cover themselves too IMO by trying to keep those numbers close to their chest. I do hope mine is a one-off. we all know that this is place to point an issue we run across. There are many im sure wiht Tenacio and do not have any issues. I'm just lucky I guess! I hope your AMS/MS works for at least 10 years as well
ED @ 36. Bionic 7/23/24 @ 47: AMS CX 21CM+2CM RTE+12MM Diameter+Tenacio Pump+100ML Conceal Reservoir+Vertical Penoscrotal by Dr. Allen Morey - Urology Clinics of North Texas. XC Marathon MTB Racer since 2015 for fellow Cyclist with questions!

TruthEdge
Posts: 42
Joined: Fri Jul 21, 2023 6:03 pm

Re: Tenacio Failed - Revision on the way...

Postby TruthEdge » Tue Jan 07, 2025 10:09 pm

Thisworld wrote:So are you suggesting it was the Perito exercise to damage the pressure release valve? I can't see the connection here


No I am not suggesting the Perito exercises had anything to do with malfunction. I was just saying that now that the valve is having issue keeping the inflation, the Perito exercise make it go down faster. Bottom line is there shouldn't be a release valve in the pump in the first place and mine has malfunctioned and releases at too low of pressure.
ED @ 36. Bionic 7/23/24 @ 47: AMS CX 21CM+2CM RTE+12MM Diameter+Tenacio Pump+100ML Conceal Reservoir+Vertical Penoscrotal by Dr. Allen Morey - Urology Clinics of North Texas. XC Marathon MTB Racer since 2015 for fellow Cyclist with questions!

TruthEdge
Posts: 42
Joined: Fri Jul 21, 2023 6:03 pm

Re: Tenacio Failed - Revision on the way...

Postby TruthEdge » Tue Jan 07, 2025 10:12 pm

sambalamba wrote:
TruthEdge wrote:
Interesting about your experience with Dr. Morey. I felt like he took his time with me but I am also pretty straight forward about questions so he probably knew I wasn't going to let him off the hook. I dont know. I do think I know what you mean on being a little vague. I basically gave hime either or questions like if this happens will you do this or this. Anyway I think I know what you are saying. As for Urology Clinics of NT - I just thought they were all like that. Whether by phone call or online message I never got a response from Dr. Morey sooner than 5 days. I just assumed that would be normal with any high volume doctor.

How recent was it that he said absolutely go with Coloplast/Classic pump? Are you around 6 inch length or longer?

Originally, he told me I could go either way between AMS and Coloplast based upon natural length before IPP. He said he preferred Coloplast once into the 22cm range of length. I wanted Coloplast and he talked me into AMX CX and then Tenacio later since it was available.

To clarify my confusing statement - It wasn't hard enough after surgery to my comfort so I put a pump or two in and that felt much better

1) He released me partially inflated with 24 hour catheter. Once the catheter was out I couldn't make my penis stay straight up comfortably because it wasn't pumped enough to hold itself up - so I added a pump or two.
2) So I am several hours away from Dr. Morey office. 3 weeks post-op he had me go to my local urologist to be pumped up the first time. Let me say it was a joke. He barely pumped it up and say well thats good enough for penetration and then deflated it. I did a better activation myself at home. The stupid part was not instruction to cycle or anything. My urologist who supposedly had done this procedure before - acted totally dumb about it all. He was probably just covering his butt I'm sure. I was brought back down to post-surgery pump level and told to not touch it for another 3 weeks. Whatever.

I just kept adjusting the pump level as needed for comfort to keep it up and keep from being so exposing in public but I never fully pumped it until a few days before last visit to release me. I couldn't stand it any more so I talked my wife into breaking it in slowly and gently. Based on reading so much on FT I just didnt think I was taking that much of a risk!

Last visit with Morey was just stupid - He did pump it up much more than my uro did at home. Dr Morey was like oh yeah that looks great! I was like well my length is off and my girth looks like a pencil dick with a lollipop head. I don't like being patronized - I would rather him to say that it looks like it is supposed to at this point and that it will get better with cycling. Instead, I am the one that had to bring up cycling! I told him I was not please with the girth in particular and I assumed cycling would help. He just nodded his head yes. I thought then he would explain cycling - nope. He said have a good trip home and let me know if you have any issues. The end.

So I came home and read up more on cycling and watched Perito videos to get a system down and away I went.

All this to say - there is no way I caused these issues with the Tenacio. I didn't do anything different on my own that other surgeons have not done with their patients.

3) I believe he said he injected my penis with saline solution first to get an idea of length and look before IPP and then used the measuring rods once I was cut open to get final length. Before sowing me up he pumped me up with IPP and compared the visual to saline injected penis.


Was away and didn't get a chance to respond earlier. Here are answers to your questions:

* How recent was it that he said absolutely go with Coloplast/Classic pump? On 12/12/24. Interestingly he had told me before to go with CX and I was surprised that he suddenly changed his recommendation so emphatically.

* Are you around 6 inch length or longer? I'm bone pressed 6.25 inches length all the way to the tip. Around 5" girth around the base and 4.5 inches in the mid shaft.

* As for Urology Clinics of NT - I just thought they were all like that. Whether by phone call or online message I never got a response from Dr. Morey sooner than 5 days. I just assumed that would be normal with any high volume doctor.

I have consulted with Eid/Clavell/Hakky multiple times over email and all of them were very prompt with their responses and also spent significant amount of time with me when I visited their office. This was not the case with Dr. Morey. The big three have their own practices instead of being part of a large network and this is probably why they can dictate how long they want to spend time with their patient instead of being pushed around by the practice manager,


Thanks for the responses!
Odd that Morey changed his tune about the AMS/CX like he did.
Sounds like you length is almost exact the same as me
Good to know about the Big 3 - I would have gone to one of them if I could have driven to them
ED @ 36. Bionic 7/23/24 @ 47: AMS CX 21CM+2CM RTE+12MM Diameter+Tenacio Pump+100ML Conceal Reservoir+Vertical Penoscrotal by Dr. Allen Morey - Urology Clinics of North Texas. XC Marathon MTB Racer since 2015 for fellow Cyclist with questions!

TruthEdge
Posts: 42
Joined: Fri Jul 21, 2023 6:03 pm

Re: Tenacio Failed - Revision on the way...

Postby TruthEdge » Tue Jan 07, 2025 10:13 pm

Rider1400 wrote:
fucked0ne wrote:
Rider1400 wrote:
I actually gained about a 1/4” at base, now 6-3/4 at base 6-1/2 mid. Both up a 1/4 from prior to implant when I was using a VED! Took almost a year to get there but I got all my length back and the girth is AWSOME!


That's awesome, Rider1400! But I think he's asking about potential girth loss with malleables.

Yep, realized that after I posted


Still encouraging to know and gives me hope to regain girth after my revision in June
ED @ 36. Bionic 7/23/24 @ 47: AMS CX 21CM+2CM RTE+12MM Diameter+Tenacio Pump+100ML Conceal Reservoir+Vertical Penoscrotal by Dr. Allen Morey - Urology Clinics of North Texas. XC Marathon MTB Racer since 2015 for fellow Cyclist with questions!

fucked0ne
Posts: 293
Joined: Wed Nov 22, 2023 7:47 pm

Re: Tenacio Failed - Revision on the way...

Postby fucked0ne » Tue Jan 07, 2025 10:31 pm

TruthEdge wrote:
Rider1400 wrote:
fucked0ne wrote:
That's awesome, Rider1400! But I think he's asking about potential girth loss with malleables.

Yep, realized that after I posted


Still encouraging to know and gives me hope to regain girth after my revision in June


Good point :)
40. Implanted July 5, 2024, by Dr. Andrew Kramer, Urology Associates of Cape Cod. AMS LGX, 21cm cylinders + 2cm RTEs. Idiopathic "hard flaccid" ED following bacterial infection. Tried pulse waves, Cialis, TRT, even spinal injections. Nada.

JohnHC
Posts: 246
Joined: Mon Apr 24, 2023 9:35 am

Re: Tenacio Failed - Revision on the way...

Postby JohnHC » Thu Jan 09, 2025 5:21 pm

I'll be getting the Tenacio pump. Revision scheduled for Feb 18th with Dr Hakky. After reviewing everything I've been through so far he was pretty adamant that we go with the Tenacio pump, even so far as to tell the Boston Scientific Rep on the phone that "no he's getting the Tenacio pump" I just hope that there won't be any issues with this one. Having two surgeries within 3 months and having both fail within 9 months then waiting over a year fighting insurance just to get this revision isn't fun. Thought I wanted the AMS LGX but Hakky told me in order to place the LGX they have to size it down 2 cm because the LGX expands by 2 cm - he doesn't want them to erode through later on - so if you're a 21 cm you'll get a 18 cm with 1 cm rear tips to bring you to 21 cm when inflated.
AMS 700 CX 21 cm X 12 mm with 1.5 cm RTE, MS pump, Conceal Reservoir. Implanted on 4-12-2023 revision on 6-22-23 next revision by Dr Hakky Feb 18th 2025 same but with Tenacio pump

Thisworld
Posts: 175
Joined: Sun Sep 06, 2020 3:01 pm

Re: Tenacio Failed - Revision on the way...

Postby Thisworld » Thu Jan 09, 2025 6:32 pm

JohnHC wrote:I'll be getting the Tenacio pump. Revision scheduled for Feb 18th with Dr Hakky. After reviewing everything I've been through so far he was pretty adamant that we go with the Tenacio pump, even so far as to tell the Boston Scientific Rep on the phone that "no he's getting the Tenacio pump" I just hope that there won't be any issues with this one. Having two surgeries within 3 months and having both fail within 9 months then waiting over a year fighting insurance just to get this revision isn't fun. Thought I wanted the AMS LGX but Hakky told me in order to place the LGX they have to size it down 2 cm because the LGX expands by 2 cm - he doesn't want them to erode through later on - so if you're a 21 cm you'll get a 18 cm with 1 cm rear tips to bring you to 21 cm when inflated.

Considering the Tenacio is been tested only for 1.000 cycles, you have any idea why Hakky is so convinced about it?
Hard flaccid syndrome since 2019. Trying to get better with conservative treatments but an implant is on my radar

JohnHC
Posts: 246
Joined: Mon Apr 24, 2023 9:35 am

Re: Tenacio Failed - Revision on the way...

Postby JohnHC » Mon Jan 13, 2025 5:49 pm

He said the MS pump is garbage, I'm assuming because of it sticking, neither one of the 2 MS pumps on mine ever "stuck". But then again my first lasted less than a week before leaking out, my current one lasted about 6 months before it leaked out ( pumps were not the issue ) but worked exactly like it should have. Took a bit to break in ( easier to pump ) but hot shower/baths softened it up. He may have insight into the inner workings of the pump but I don't know, probably just his personal experience when dealing with failed devices.
AMS 700 CX 21 cm X 12 mm with 1.5 cm RTE, MS pump, Conceal Reservoir. Implanted on 4-12-2023 revision on 6-22-23 next revision by Dr Hakky Feb 18th 2025 same but with Tenacio pump

stmcknig
Posts: 22
Joined: Fri Nov 08, 2024 11:54 am

Re: Tenacio Failed - Revision on the way...

Postby stmcknig » Mon Jan 13, 2025 8:16 pm

Thisworld wrote:
JohnHC wrote:I'll be getting the Tenacio pump. Revision scheduled for Feb 18th with Dr Hakky. After reviewing everything I've been through so far he was pretty adamant that we go with the Tenacio pump, even so far as to tell the Boston Scientific Rep on the phone that "no he's getting the Tenacio pump" I just hope that there won't be any issues with this one. Having two surgeries within 3 months and having both fail within 9 months then waiting over a year fighting insurance just to get this revision isn't fun. Thought I wanted the AMS LGX but Hakky told me in order to place the LGX they have to size it down 2 cm because the LGX expands by 2 cm - he doesn't want them to erode through later on - so if you're a 21 cm you'll get a 18 cm with 1 cm rear tips to bring you to 21 cm when inflated.

Considering the Tenacio is been tested only for 1.000 cycles, you have any idea why Hakky is so convinced about it?

Where is the citation that it has only been tested for 1000 cycles? Something my surgeon Dr Kansas laughed out loud at when I mentioned today.
62 18cm+3rte AMS700LGX Tenacio pump. Implanted 11/19/24 Dr Bryan Kansas Austin TX

equusAz
Posts: 111
Joined: Mon May 22, 2023 9:16 am

Re: Tenacio Failed - Revision on the way...

Postby equusAz » Tue Jan 14, 2025 8:15 am

You know, there is an old saying. "Don't let perfect be the enemy of good." In otherwords, striving for perfection will result in a lot of wasted effort to get something with zero flaws. If you ever want to have your head spin go read up on confidence testing and D-optimisation which is used to figure out success rates.

Nothing in this world is perfect, or has zero flaws. The MS pump has been used for HOW many years? Reading up on its success rates, I would be more inclined to trust something with THAT track record than a product is new and untested by the public. However, your doctor has made a decision and is pretty adamant about it. Have you asked why? I'd be leery of him saying 'its garbage' without any proof or numbers to back it up though.
48yo gay married male - Size before cancer / ED = 7.5" x 6.25" (current 5.5x5). AMS 700 CX implanted 12/9/29. 18cm + 1cm RTE and 18cm + 2cm RTE.
Implant Journal: https://www.franktalk.org/phpBB3/viewtopic.php?t=25158


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