After a radical prostatectomy (nerve sparing), and over a 5 year period more and more problems with ED, trying pills, then shots (success at first but not now):
I've been reading and participating some in this forum, studying implants. I had decided I probably should go that route. Having found the doctor that seemed to have good feedback here from the Florida area, I made an appointment and went to see him last week.
They gave me a shot, and then did what I expect was ultrasound. I was told that I have good flow in, but have a venous leak.
I also told him of my last experience with using injections (earlier Edex, later Trimix). The last one I took I had a large bulb appear at the base of my penus. I assume it was blood. Although it didn't look blue as I would have expected. Of course, after it went down, I was well bruised. It also made my penus lean left, which still seems to be the case.
Having made the appointment to see if I was a candidate for penile implant, I did not bring up alternatives. When told of the venous leak, unless I misunderstood, he left me with the impression my only options were the implant. There was no discussion of the leaning penus.
So, since then I have done some research on venous leak, I find discussions of: medications, boosting the parasympathetic nervous system, and arterial reconstruction. I've seen mention of Sclerotherapy, but haven't read much on that yet (find more on that about varicose veins). Venous ligation surgery, it appears from what I've read, have 30-50% success. Not that great.
One thing I might add: Given my history, phycological issues/confidence would likely be an issue even if the leak could be 'fixed'.
Interested in your thoughts. I don't want to jump in on the implant if I would be well off to investigate other things first. I am thinking I may visit a local urologist and get further input there.
Don't know that it makes any difference, a little more background: 68 years old, diabetic (with good control...6.2 A1C).
Considering Implant - Venous leak - Other options?
Re: Considering Implant - Venous leak - Other options?
After rp surgery, the only real ED fix is an implant imo.
Re: Considering Implant - Venous leak - Other options?
With a radical prostatectomy, I agree with ED2013. The only thing that worked for me was an implant, which is excellent for me.
With a venous leak, I would definitely check all of the other options before going to an implant; even though I would lay odds that you will eventually become a member of the Bionic Brotherhood. (A happy member; I may add.)
With a venous leak, I would definitely check all of the other options before going to an implant; even though I would lay odds that you will eventually become a member of the Bionic Brotherhood. (A happy member; I may add.)
Born 1951. Radical Robotic Prostatectomy on October 6, 2013. Bionic with Titan Touch with Bioflex Zero Degree 18cm w/ (1) rte Implant, Infrapubic, on July 13, 2015.
Re: Considering Implant - Venous leak - Other options?
I was implanted with the Coloplast Titan in December 2007 after developing ED Post-Prostatectomy in 2004.
Best decision I ever made.
I would do it again in a heart-beat!!
Best of Luck.
Bob
Best decision I ever made.
I would do it again in a heart-beat!!
Best of Luck.
Bob
Re: Considering Implant - Venous leak - Other options?
Whether you have a venous leak or not, it you have had 5 years of ED following a radical prostatectomy, the only real solution for your ED is an implant. Those nerves that your surgeon allegedly spared are not going to spring back to life. I am very happy with my implant.
Re: Considering Implant - Venous leak - Other options?
OttoHS wrote:Whether you have a venous leak or not, it you have had 5 years of ED following a radical prostatectomy, the only real solution for your ED is an implant. Those nerves that your surgeon allegedly spared are not going to spring back to life. I am very happy with my implant.
JFYI...I had successful erections for the first year after the surgery (after recuperation, of course). Then things slowly went down hill. Success with pills for a while, then not, same with shots. So, I do think it is a venous leak, not lost nerves.
I may talk to another urologist for an opinion.
Being on the implant thread, I expect to get positive feedback on implants, which is the case. I don't see a place, on this forum anyway, to hear from folks who have attempted some of the 'fixes' for venous leaks.
Appreciate all the feedback.
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Re: Considering Implant - Venous leak - Other options?
Your situation sounds real similar to mine. I had to wait 5 years to get an implant because of insurance. Starting in 2010 the events are:
*2010 diagnosed with Venous Leakage, 3 months later had a Nerve Sparing Radical Prostactectomy
*None of the Oral Meds worked at all
*Refused to try Muse
*Trimix worked but it was extremely painful
*Bimix would give me a slight chubby and that is all
*For purposes of sex I found the VED to be extremely frustrating and a mood killer. I did continue to use it for Rehab purposes
*July 2014 got new insurance
*Jan 2015 I was implanted with a Coloplast Titan by a high volume surgeon
*June 2016 I am 100% satisfied with my implant. I have now recovered 100% of my Pre_ED size (that was because of the continuous rehab). My erections now remind me of a steel spike.
My only regret is that I couldn't have it done any sooner because of insurance.
*2010 diagnosed with Venous Leakage, 3 months later had a Nerve Sparing Radical Prostactectomy
*None of the Oral Meds worked at all
*Refused to try Muse
*Trimix worked but it was extremely painful
*Bimix would give me a slight chubby and that is all
*For purposes of sex I found the VED to be extremely frustrating and a mood killer. I did continue to use it for Rehab purposes
*July 2014 got new insurance
*Jan 2015 I was implanted with a Coloplast Titan by a high volume surgeon
*June 2016 I am 100% satisfied with my implant. I have now recovered 100% of my Pre_ED size (that was because of the continuous rehab). My erections now remind me of a steel spike.
My only regret is that I couldn't have it done any sooner because of insurance.
Total ED since a 6/2010 RPA. Pills and injections didn't work. 2nd revision with a Coloplast Titan (24CM w & 2CM RTEs)on 12/15/2022. 68 years old
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