ED since 35

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AirWolf
Posts: 84
Joined: Wed Aug 02, 2017 8:19 pm
Location: Northern CO

ED since 35

Postby AirWolf » Thu Aug 03, 2017 8:01 pm

Starting 12 years ago at age 35 I've had ED. It came on suddenly with no known cause. The only cause I can think of is extreme anxiety due to my personality and issues with raising kids with mental health issues like bipolar and OCD. Since it seemed to be anxiety related, I went straight to injections which were very effective. I started on Quadmix which I used for the first 5 years; but it was very expensive, at about $1,000.00 per six months. I then switched to Trimix at the common 10/1/30 dose. This worked great for the next 5 years allowing for an erection for 90 minutes which was sufficient time (about 0.18 cc or 18 units per dose). The last 2 years have been a gradual increase in Trimix (about 20% increase every 6 months) for a 60 minute erection. The last two months have been a rapid decline in effectiveness. I can use 10x my former dose but only have about 15 minutes with a marginal erection. Needless to say this is very disconcerting. I know there are stronger doses out there but I'm considering an implant. At first thought it seemed totally disturbing, but reading success stories on this site has made it a very encouraging possibility. Been browsing this site for years and appreciate knowing I'm not alone in this struggle. Not to diminish the disability of being blind, but I've often thought I'd rather be blind than have ED.
ED since 35 with no known cause -- injections successful for over a decade with 10/1/30 and less than 20units but that became ineffective. Implanted penoscratally by Dr. Kramer of Baltimore on 9/13/17 with AMS 700 LGX 21cm + 0.5cm RTE at 47 years old

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bldoink
Posts: 3921
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: ED since 35

Postby bldoink » Fri Aug 04, 2017 11:33 am

Welcome!
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.

radiodec
Posts: 523
Joined: Fri Aug 31, 2012 2:52 pm
Location: Portland, TN

Re: ED since 35

Postby radiodec » Fri Aug 04, 2017 1:01 pm

I injected for quite a while until the injections quit working. ED was from prostate cancer and related surgery. Had a good run for over ten years on injections, then suddenly they were no good. Got an implant and it has been much better.

Oh yes! WELCOME!

Hope to see your posts once and while. If you disappear after a successful implant, we will understand. You are often too busy after success to frequent the board.

Anyway, welcome.

Davud
70 - married 47 years: RP - 2000, injections till 2012, AMS700LGX with 21cm tubes 2cm extenders 11/7/2012, failed 6/5/2017 --- Re-implanted 8/18/2017 with AMS 700CX -- Implants by Dr. David Morris, Hendersonville,TN

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bldoink
Posts: 3921
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: ED since 35

Postby bldoink » Fri Aug 04, 2017 6:36 pm

AirWolf, have you considered or tried adding a cock ring to the mix. I use one (Lyps novelty ring set) behind the boys and it allows me to use less units on injection than without. It might buy you some more time.
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.

tomas1
Posts: 2003
Joined: Tue Jul 23, 2013 5:12 pm
Location: Tempe, AZ

Re: ED since 35

Postby tomas1 » Fri Aug 04, 2017 7:40 pm

Quad mix shouldn't cost nearly $1k for 6 months unless you don't have access to an out-of-state compounding pharmacy like Talon in Texas. They don't ship everywhere, but if they ship to your state (or country), try them. You'd look at about $122 shipped for 10ml.
86 years
Inject testosterone weekly.
Implant on 1/22/19 by Dr Avila.
Scrotal, hor. incision just over 1"
18cm AMS 700 CX, 3.5cm RTE 100cc res
Gleason 6 prostate cancer. Monitoring it for now.
Update: On my last biopsies the cancer wasn't found.

radioradio
Posts: 1012
Joined: Tue Aug 09, 2016 2:44 pm
Location: Philly Burbs

Re: ED since 35

Postby radioradio » Fri Aug 04, 2017 8:47 pm

Here's a link to a thread on this topic.




viewtopic.php?f=3&t=7722&p=55241&hilit=Urine#p55241


Bob2.0
Born '52. Married '79. RALP 3/1/17. ED 50+% prior to surgery even w/ meds. VED, Injections, ineffective. Considering implant even before PCa diagnosis. Dr. Kramer 8/2/17. LGX 21cm+0.5 RTE. Kramer replaced/repositioned pump 12/13/17. Willing to Show/Tell.

AirWolf
Posts: 84
Joined: Wed Aug 02, 2017 8:19 pm
Location: Northern CO

Re: ED since 35

Postby AirWolf » Sun Aug 06, 2017 9:24 pm

Thanks for the comments and the welcome! I did ask my urologist about cock rings and he discouraged their use as he says it increases risks for blood clots. Maybe he's just being overly cautious. The quadmix was expensive because it was from a men's clinic and not from a compounding pharmacy.
ED since 35 with no known cause -- injections successful for over a decade with 10/1/30 and less than 20units but that became ineffective. Implanted penoscratally by Dr. Kramer of Baltimore on 9/13/17 with AMS 700 LGX 21cm + 0.5cm RTE at 47 years old

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bldoink
Posts: 3921
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: ED since 35

Postby bldoink » Sun Aug 06, 2017 10:13 pm

You should probably follow your doctors advice.
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.

antelope
Posts: 1497
Joined: Sun Nov 14, 2010 3:17 am
Location: Baton Rouge

Re: ED since 35

Postby antelope » Sun Aug 06, 2017 10:21 pm

Have you spoken to your doctor(s) about the decrease in effectiveness? There could be several causes other than "you need to use more happy juice." Maybe it's time for a complete physical AND a full uro work-up. Make sure you fix what's broken before changing what not longer seems to work. All the best. Hope for hard times ahead.
Born 1948, wed 1969. BPH & Type II Diabetes at age 35. TURP-2002; ED even before that--diabetes. Cardiac valve surgery: 2007 & 2019. Poor results with pills. Started trimix injections in Nov, 2010. Great results from the very beginning.

AirWolf
Posts: 84
Joined: Wed Aug 02, 2017 8:19 pm
Location: Northern CO

Re: ED since 35

Postby AirWolf » Mon Aug 07, 2017 10:13 pm

Wise suggestion antelope!

I recently had my annual physical and nothing showed up

My urologist stated that this can happen (needing to increase dosage and strength) but I don't think he knows how much the quality of the erection has declined -- I'll have to speak to him further.
ED since 35 with no known cause -- injections successful for over a decade with 10/1/30 and less than 20units but that became ineffective. Implanted penoscratally by Dr. Kramer of Baltimore on 9/13/17 with AMS 700 LGX 21cm + 0.5cm RTE at 47 years old


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