trying to get a revision

The final frontier. Deciding when, if and how.
trekfish
Posts: 40
Joined: Fri Aug 09, 2013 8:45 am
Location: merritt island, florida

trying to get a revision

Postby trekfish » Sat Apr 28, 2018 5:21 pm

I emailed my doctor to see if I could get a revision I lost an inch in length and girth. Fully erect I can fold the glans over the tips and I have lots of loose skin on the shaft. I had the implant done 12/8/2017 and have exercised it and no change at all, right now I'm 6 1/4 length and 5 1/4 girth, The problem is my wife and I are used to that and now it's gone.
Last edited by trekfish on Sat Apr 28, 2018 5:35 pm, edited 1 time in total.
I'm a c-4 quadriplegic incomplete as of 1/1/11. I'm 66 years old with ed for for 6 years, went to dr. Raphael Carrion at the VA and am waiting for an appointment to perform an implant with a titan. Titan implanted on 12/8/17, 22cm with 1.5 cm rtes.

radioradio
Posts: 1012
Joined: Tue Aug 09, 2016 2:44 pm
Location: Philly Burbs

Re: trying to get a revision

Postby radioradio » Sat Apr 28, 2018 5:33 pm

Thanks for your service, and sorry to hear your implant doesn’t seem to be right. I’ve got no advice. Just best wishes.
Bob
Born '52. Married '79. RALP 3/1/17. ED 50+% prior to surgery even w/ meds. VED, Injections, ineffective. Considering implant even before PCa diagnosis. Dr. Kramer 8/2/17. LGX 21cm+0.5 RTE. Kramer replaced/repositioned pump 12/13/17. Willing to Show/Tell.

Lost Sheep
Posts: 6163
Joined: Mon Jul 04, 2016 11:16 pm

Re: trying to get a revision

Postby Lost Sheep » Sat Apr 28, 2018 5:44 pm

trekfish wrote:I emailed my doctor to see if I could get a revision I lost an inch in length and girth. Fully erect I can fold the glans over the tips and I have lots of loose skin on the shaft. I had the implant done 12/8/2017 and have exercised it and no change at all, right now I'm 6 1/4 length and 5 1/4 girth, The problem is my wife and I are used to that and now it's gone.

A glans that folds over when your implant is fully inflated? That is not right.
Have your read Ruktitan's thread? He has a similar condition and has received a TON of replies with excellent advice which would be eqully applicable to your situation.

viewtopic.php?f=6&t=9851

By the way, your dimensions confuse me. "right now I'm 6 1/4 inch" Is that inflated? What were you just before the implant? What were you before E.D. took its toll?

Good luck. Don't wait any more than you must for a revision. The more time you go without stretching your tissues, the more elasticity (and length) you loose.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

trekfish
Posts: 40
Joined: Fri Aug 09, 2013 8:45 am
Location: merritt island, florida

Re: trying to get a revision

Postby trekfish » Sat Apr 28, 2018 6:24 pm

The head isn't floppy, but if I pull on it, I can pull the head over with my fingers, I've always been a grower, it keeps on stretching.
I was 7 1/4 length wise, 6 1/4 girth, sometimes more. It doesn't sound like much, but volume wise it's almost double my current size.
I'm a c-4 quadriplegic incomplete as of 1/1/11. I'm 66 years old with ed for for 6 years, went to dr. Raphael Carrion at the VA and am waiting for an appointment to perform an implant with a titan. Titan implanted on 12/8/17, 22cm with 1.5 cm rtes.

trekfish
Posts: 40
Joined: Fri Aug 09, 2013 8:45 am
Location: merritt island, florida

Re: trying to get a revision

Postby trekfish » Sat Apr 28, 2018 6:40 pm

http://mraverage.com/sizer.php

This site has a visualizer, you enter your stats and it shows a picture and calculates the volume, on the same page it displays a small average and a larger average, very interesting. I use the actual size graph.
I'm a c-4 quadriplegic incomplete as of 1/1/11. I'm 66 years old with ed for for 6 years, went to dr. Raphael Carrion at the VA and am waiting for an appointment to perform an implant with a titan. Titan implanted on 12/8/17, 22cm with 1.5 cm rtes.

Lost Sheep
Posts: 6163
Joined: Mon Jul 04, 2016 11:16 pm

Re: trying to get a revision

Postby Lost Sheep » Sat Apr 28, 2018 7:39 pm

trekfish wrote:The head isn't floppy, but if I pull on it, I can pull the head over with my fingers, I've always been a grower, it keeps on stretching.
I was 7 1/4 length wise, 6 1/4 girth, sometimes more. It doesn't sound like much, but volume wise it's almost double my current size.

"Floppy" may mean something different to you than to me. Have you seen Ruktitan's pictre? Does your look substantially different ("I can pull the head over" conjures in my mind something very much like Ruktitan's condition shown in the picture in his first post.)
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

trekfish
Posts: 40
Joined: Fri Aug 09, 2013 8:45 am
Location: merritt island, florida

Re: trying to get a revision

Postby trekfish » Sat Apr 28, 2018 9:47 pm

I can pull the head to 90 degrees in relation to the shaft.
And that is after pumping as hard as it can get, then every 5 minutes putting as many pumps as I can in, I do that for over an hour, laying in bed.
I'm a c-4 quadriplegic incomplete as of 1/1/11. I'm 66 years old with ed for for 6 years, went to dr. Raphael Carrion at the VA and am waiting for an appointment to perform an implant with a titan. Titan implanted on 12/8/17, 22cm with 1.5 cm rtes.

Lost Sheep
Posts: 6163
Joined: Mon Jul 04, 2016 11:16 pm

Re: trying to get a revision

Postby Lost Sheep » Sat Apr 28, 2018 10:37 pm

trekfish wrote:I can pull the head to 90 degrees in relation to the shaft.
And that is after pumping as hard as it can get, then every 5 minutes putting as many pumps as I can in, I do that for over an hour, laying in bed.

That sounds like a classic description of an implant that does not reach into the distal end of the tunica albuginea. That is, the implant is too short.

There are a few names for this condition:

"SST Syndrome" (so named because of the nose on the Supersonic aircraft, the French Concorde', which had a nose that was lowered when taking off and landing so the pilots could see the runway.. Essentially the front of the airplant droopoed.

Floppy head, because the distal end of the penis is unsupported by the implant.

UBS: Unforgivable blunder by your surgeon. (This term is my own invention.)

This is not to be confused with the fact that the glans (penis' head) is engorged by a mechanism similar to erection but is not helped by the implant.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Ruktitan
Posts: 212
Joined: Thu Nov 16, 2017 2:51 pm
Location: Uk

Re: trying to get a revision

Postby Ruktitan » Sun Apr 29, 2018 2:37 am

Sounds the same as mine. Check my thread out 'floppy head' I went to see a private surgeon and he agreed my cylinders were 3 or 4cm too short. The are not supporting the glans at all I think due to the surgeon being scared of distal erosion. I am seeking a revision in 5 months time as I have to wait 6 months before the NHS in england will operate again. I have been told that regular use if possible will stop too much scar tissue formation but the private surgeon said there is no problem he can break that down when he fits new cylinders. Alot of relief but alot of frustration.
Hope this helps
29 years old. Suffered with ED since 17. No known cause. First Implanted date 23/3/2018. Cylinders way too short and revised by different surgeon 2019. 22cm titan.
Cylinders still short and now pump is upside down and protruding. Awaiting 3rd revision

trekfish
Posts: 40
Joined: Fri Aug 09, 2013 8:45 am
Location: merritt island, florida

Re: trying to get a revision

Postby trekfish » Sun Apr 29, 2018 11:45 am

Just realized how young you are, that sucks that you were screwed out of prime years of sex, hope they get you sorted out, you have a lot of good years ahead of you, sex can be wonderful even for old farts like me.
I'm a c-4 quadriplegic incomplete as of 1/1/11. I'm 66 years old with ed for for 6 years, went to dr. Raphael Carrion at the VA and am waiting for an appointment to perform an implant with a titan. Titan implanted on 12/8/17, 22cm with 1.5 cm rtes.


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