new and curious

[3mtrship]

texas johnny,

I did not say wait, Dr. said that. And THAT is the problem. Restoration needs to start soon.

I agree with the recommendation to "Get a pump" and start as soon as you are released 6-8 wks. after surgery.

Jim

[cockringok]

Enjoyed everyone's response. I have pumped but basically received no help from urology. Because of my busy lifestyle I have let this matter go for awhile.
I hate pumping, but I will try the injections or gel. I have stayed on Cialis since surgery and with agressive stimulation I can get a little tumescence.
Johnny, I will call later today if that is alright. Any advice is appreciated.

[3mtrship]

Cockringok,

The following took place a little over 2 years after my open radical surgery. (NOTE: This was the day one or more nerves made new connections.)

We had made some progress on the physical side of our lives before radiation. We decided to include all options and see what worked now. Well radiation set me back months. We found ways to tell the other how much we loved. Climaxes were present for both but full intercourse was a ways in the future. I was clean, had soft skin and smelled good but no penetration. We used all the samples and bought a few more but then about a 1 1/2 years goes by with little change.

A birthday pool party for a Grandson gets us all together, 20-30 people. My daughter in law is of Cuban heritege. She was sisters. One of those sisters is a knockout and she had a new yellow bikini. Waterpolo in the pool and I'm sitting in the Cabana with ice tea watching that bikini. My goodness it starts. It grows, it bulges. it protrudes and felt wonderful but embarrasing. I mean "HELLO BUDDY, WELCOME BACK. WHERE HAVE YOU BEEN SO LONG" I quickly grabbed a towel and went to the bathroom. It went down just as quick as it came up and before I could do anything about it too, darned.

After we drove away hours later, my wife says "Was that what I think it was?" "YES." "Lets go invite him back, I want to see him again."

During those next months he accepted our invitations once in a while and showed up. Each appearance was a surprise because we could never quite figure out how to phrase the invitation.

It was also during that time some of the pressure or selfishness began to ease and I lightened up. I was alive after all. I decided to thank those who had helped me.

I sat down and wrote personal letters to each of my care givers including my wife. In those letters I expressed my appreciation for some of the things they did for me. I delivered each letter during normal checkup appointments and made the person sit down while I stood. You know they make you sit down for a reason. I made them sit for the same reason and read each their letter and then signed thru the tears running down my cheeks. The reactions were precious.

My Urologist gave me a hug. My Radiation Oncologist cried. My personal GP (remember from above?) say's. "You know Jim, I gave you the same advice I gave my Dad. Here you sit 2 years later healthy. I just buried my Father a couple of weeks ago." "Do You mean?" "Yes, he did NOT take my advice. He went to some hack on the East coast and got butchered. They missed removing the cancer completely and botched the bladder connection. He died with no bowel control, 2 bags and painfully slow. To say I appreciate your letter is an understatement. I will treasure it for the rest off my life and Thank You."

So gang we arrive at the end of this chapter in My Cancer Story. There are a few things I wish to bring to your attention. Open your heart and your mind and allow others to walk in. Accept their help and thank them. Find that part of you that allows you to be nutured in the most basic part of your heart. Find the humility of a child again. Admit you need help and then step back and allow it to happen. You can not help but benefit no matter the outcome from your Cancer.

My path has been aided by many and I have benefitted by getting to know them as they worked on me.

I am the same as I was? NO. Am I OK? YES. Is this life I have worth living? YES.

Kind Regards Jim

[bob1138]

Welcome to Frank Talk Cockringok.
I am also a Prostate Cancer Survivor --- Open Radical Prostatectomy in February 2004 (just had my eight year anniversary).
I developed ED Post-ORP and suffered all of the negative emotional side effects of ED for 3+ years Post-ORP so I can appreciate your feelings now.
There is a wealth of information in this Group about all the treatment options available for your ED and many men who are willing to share their experiences with you. Do not hesitate to ask questions. You are among friends here.
Personally, I was implanted with an IPP (Inflatable Penile Prosthesis) in December 2007 after not responding satisfactorily to the "standard" ED Treatments (Pills, VED, MUSE, Injections).
Thankfully, my the IPP completely corrected my ED and 4+ years later, my wife and I are still enjoying my implant.
It restored my sex life and gave me back the emotional intimacy with my wife of 45 years.
Also, many men in the FT Group have had success with the other modalities. I urge you to read their posts and talk with them in the Chat Room or via PM.

Best of luck,

Bob
----------------------------------------------------------------------------------------------------------------------------------------------
Age: 73; Developed ED Post Prostatectomy in February 2004; Pre-op PSA 2.2 with positive DRE; Gleason 3+3= 6;
Post-op PSA undetectable as of 12/13/2011; Implanted December 13, 2007 (Coloplast Titan); Completely corrected my ED.

bob1138
Posts: 115
Joined: Wed Sep 28, 2011 5:41 pm
Private message

[cockringok]

Well, I don't know what to say. I'm sorry that I came here only for help on getting erections. I am 60, not 39, not 73. My Gleason score was 6. Not 13, not 9. I had 4 positives two probables and six negative biopsies. I got on the treadmill for 4 months and then had a DaVinci robotic nerve sparing prostatectomy and my PSA is 0. The surgery was a breeze. I had no pain, and walked the hospital corridors with Toradol and an unpleasant catheter. I had itching for a few days and I leaked urine rarely for only one month. I delivered a baby(with forceps) three days after my surgery and barely leaked at all. Back to work in less than ten days and I never felt better.

For those of you who have had ED from medical reasons and trauma, for more of your life than two years, I am ashamed. To all the diabetic fellows and the Pyronie's disease and the cancer warriors please let me apologize. I was just ignorant. I thought I was getting advice from faceless men who had time to surf the net and pass around quips pertaining to their orgasms. Men, brothers, I am sorry. Better for you all if I had just stayed away. Thank you Jim and Bob for adjusting me. Johnny, Bill, Greg, Antelope, Corvetteman I appreciate the blueprints and game plans. I thought I was alone in all this.

I have had a wonderful life and my wife and family have been along for the ride for over 32 years. I feel sad that I have been so nearsighted these last few months but I am pleased to make your cumulative acquaintances. I would be quite pleased to offer any meager help as the new guy here and I have been a surgeon and physician to women for over 25 years.

As to being open...well...that may take a while longer. Not my strong suite I guess.

Trimix gel or MUSE to start with? I will call tomorrow.
Start from home or find a more interested urologist and follow their advice?
So much advice I am seeking over such a little penis.
That was an attempt at humor.

I will start tonight with the letter writing. I am so touched Jim. Thanks to you all.

Mike

[3mtrship]

cockringok,

Nonsense, we are better off with you aboard. You arrived as many of us did with injured pride and a soft penis. Your personal story is incomplete and now we like you. If you leave we will never know how things turned out. Now you have gathered our attention but we want the "rest of the story."

Please pause to consider how your personal experiences can be of benefit to others in a forum such as this. We know how busy a Dr's life can be and we understand you will not be able to visit very often.

You are moving thru this trial in your life from within the professional community. I am not sure if that makes your path easier or more difficult but it sure is different and we want to hear about it.
So go easy with the irrevocable decisions and please continue to post.

We also wish you the best outcome.

Feedback is always welcome and I remain respectfully yours, Jim.

[anothernight]

Hello. I am still a Texan but my identity has changed and I am no longer cockringok. I am now anothernight. You are never alone with a schizophrenic.

[anothernight]

Thank you for the encouragement. I really enjoy reading here and posting. Can't wait for a spare moment to get back to it.

I cannot keep the smile off my face today, and I can't overstate how much I have been helped by the ones of you who have written to me.

I will continue as anothernight and see you in the members site.

Once was cockringok.