Three Titan Failures since 2013 and need I need help!

The final frontier. Deciding when, if and how.
Raptorpilot
Posts: 13
Joined: Sat Oct 20, 2018 11:56 am

Three Titan Failures since 2013 and need I need help!

Postby Raptorpilot » Mon Nov 05, 2018 9:47 am

Hey guys, here is my story! In Jan 2013 I had a Coloplast Titan installed and all went well and was thrilled with it till 18 months in and the pump failed!
Doc told me it was rare but happens! Second pump installed with insurance paying and all was great for 30 months and same issuse with pump failure. Unfortunately I was without insurance and Coloplast covered the equipment but I paid out of pocket to the new Specialist hoping maybe it was something the previous Doc did wrong twice. Here we go again, October 2018 just 14 months later and it has failed! Once again I have no insurance and need help with options. Question 1, should I consider the AMS?
Question 2, does anyone know any insurance company that will cover pre-existing conditions, since the new enrollment just started? I'm 58 so I don't qualify for medicare, but I am a Veteran. Question 3, has anyone heard of a similar situation and do you think I have any legal recourse?
Thanks for any help
58 & married. Titan implant in 2013 by Dr. Garber. 2014 1st revision done by Dr. Garber with Titan again. Third revision done with Dr. Kramer in August 2017 with Titan. 10/10/18 third Titan failure. Now in the process of setting up a fourth!

Leek65
Posts: 81
Joined: Thu Aug 06, 2015 7:39 pm
Location: Minnesota

Re: Three Titan Failures since 2013 and need I need help!

Postby Leek65 » Mon Nov 05, 2018 10:10 am

Raptorpilot wrote:Hey guys, here is my story! In Jan 2013 I had a Coloplast Titan installed and all went well and was thrilled with it till 18 months in and the pump failed!
Doc told me it was rare but happens! Second pump installed with insurance paying and all was great for 30 months and same issuse with pump failure. Unfortunately I was without insurance and Coloplast covered the equipment but I paid out of pocket to the new Specialist hoping maybe it was something the previous Doc did wrong twice. Here we go again, October 2018 just 14 months later and it has failed! Once again I have no insurance and need help with options. Question 1, should I consider the AMS?
Question 2, does anyone know any insurance company that will cover pre-existing conditions, since the new enrollment just started? I'm 58 so I don't qualify for medicare, but I am a Veteran. Question 3, has anyone heard of a similar situation and do you think I have any legal recourse?
Thanks for any help


I am looking at AMS pump failure after 3 years so I am not sure the failure rate is any different.

It pays to look around for insurance options for 2019 if you can. I am a federal retiree and called Blue Cross and found out they have broadened their reimbursement for implants. At least here in Minnesota the ED had to be caused by radical prostatectomy. No longer since starting in 2018 they cover any ED cause. So I will switch to Blue Cross my current plan pays nothing for implants regardless of reason.

I would definitely check with the VA. I am a veteran but have never needed to use VA for medical services but you should see what they might cover.

Good luck, you certainly are due for some after all the bad luck.
Age 68 - AMS LGX 12+2cm. Lost over an inch from pre-ED length but thicker for what it's worth (not much). ED result of heart meds.

Tsanchez12369
Posts: 227
Joined: Fri Dec 23, 2016 7:52 pm
Location: SAN Francisco

Re: Three Titan Failures since 2013 and need I need help!

Postby Tsanchez12369 » Mon Nov 05, 2018 11:44 am

Wow, three pump failures-was this related to the tubing or strictly the pumps? I would def check w coloplast, I think they should def consider covering all expenses as this speaks very poorly to their product.
Sept 11, 2018: excision, grafting (human cadever tissue) and implant. Doc is Dr Edward Karpman in Mountain View, surgery at El Camino Hospital, LOS Gatos CA. AMS 700 CX infrapubic 18 cm + 3 cm RTE. http://www.peyroniesforum.net/index.php

ED2013
Posts: 1273
Joined: Tue Mar 05, 2013 8:15 pm

Re: Three Titan Failures since 2013 and need I need help!

Postby ED2013 » Mon Nov 05, 2018 3:17 pm

These kinds of issues are rare, but do happen with both brands. As a poster mentioned above, I would reach out to coloplast to see if they’ll help cover the cost of the procedure. Maybe a slim chance but it’s worth it to try.

Larry10625

Re: Three Titan Failures since 2013 and need I need help!

Postby Larry10625 » Mon Nov 05, 2018 4:26 pm

Tsanchez12369 wrote:Wow, three pump failures-was this related to the tubing or strictly the pumps? I would def check w coloplast, I think they should def consider covering all expenses as this speaks very poorly to their product.



I definitely agree...shame on them if they don't. :(

Larry

LMCatman
Posts: 1017
Joined: Wed May 08, 2013 11:11 am
Location: South Florida, USA

Re: Three Titan Failures since 2013 and need I need help!

Postby LMCatman » Mon Nov 05, 2018 4:47 pm

I feel your pain man....I'm currently on my third Titan (since April 2013). First was botched installation, second had a "tube coil" and pulled loose. Third is working well. I'm hoping not to need a fourth but, I'm also hoping to live a lot longer too....good luck man!!!
73 Years old. RP Oct 2010, No erections after, Botched Titan implant April, 2013, Successful Titan revision, April , 2014 by Dr. Paul Perito, Miami. Titan failure Feb 2017. Rev. by Dr Perito March 1st, 2017. Titan failure Nov 2020. New Titan January 2021


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